Eric Marder Scholarship Fund Inc
1912 ROLLING GREEN CIRCLE
SARASOTA FL 34240-9312
Mission

The Eric Marder Scholarship Fund, Inc. provides scholarships for college and/or trade school to financially  needy students suffering from primary immune deficiency diseases.

 

Leadership
CEO/Executive Director No Executive Director
Board Chair Mrs. Anne Marder Bishop
Board Chair Affiliation Community Volunteer
General Info
Tax Exempt Status Public Supported Charity
Incorporation Year 2015
State Charitable Solicitations Permit Yes Oct 2017
State Registration Yes Jan 2017
Financial Summary
 
 
Projected Revenue $50,000.00
Projected Expenses $43,000.00
IRS Letter of Determination
IRS LETTER OF DETERMINATIONView
Impact Statement

2015 was our first year: (1) we set up our board of directors, all necessary accounts;  (2) contacted primary immunodeficient medical clinics and financial aid offices in colleges all over the country to advise of our existence and (3) accepted and reviewed 56 applications for assistance and (4) awarded 29 scholarships to students in 15 states (including Florida) totaling $40,000.

Coming year goals:  (1) raise up to $800,000 for scholarships and endowment fund.  (2) Review and award as many scholarships as possible. (3) Look for ways to improve exposure in Florida counties. 

Needs Statement
(1) Raise funds to give out annually in the form of scholarships to students suffering from primary immunodeficiency disease.  We need at least $40,000 per year.
(2)  Build the endowment fund to $1 million so that we can award scholarships in perpetuity.  I am 73 years old and want this organization to be able to award $50,000 in scholarships annually.  The endowment fund currently contains $103,000.
Background Statement

My son died in September 1999.  I wanted to help kids like  him, so I approached the Immune Deficiency Foundation (IDF) about giving scholarships to kids who had the same disease my son had.  IDF had helped me when Eric was alive.  I originally promised them $1,000 per year.  The drug company, Sandoz, also gave IDF funds for scholarships.  After 10 years we grew Eric's Fund so much that Sandoz stopped and we  were their only source of funds.  We continued working through IDF until August of 2015.

In August 2015 Eric's Fund left the Immune Deficiency Foundation and established itself as a 501(c)3. Our board consists of me, Eric's stepdad, two of Eric's uncles, a dear family friend, a doctor who is head of an immune deficiency clinic, and a former four-year scholarship recipient.   In our first year of operation we received 56 applications for scholarships and awarded 29 scholarships to students who qualified (some didn't) totaling $40,000.
Areas Served
Areas Served
Area
FL
FL- Sarasota
National
Areas Served Comments Scholarships from Eric's Fund are available to any student who is a US citizen living in the United States. The organization is headquartered in Sarasota, Florida and historically approximately one-third of our applicants come from counties in Florida...Sarasota, Broward, Desoto, etc.
Service Categories
Primary Org Type Education
Secondary Org Type Youth Development
Tertiary Org Type Unknown
Statement from the Board Chair/Board President

I started this organization after the death of my son due to a primary immune deficiency.  I am intimately aware of how this disease depletes the financial resources of families, and if the student is able to get to the point of going to college, our organization wants to give these students some assistance.  Some insurance does not cover primary immunodeficient diseases (PIDs) as sometimes the disease and treatment can be rare.  Insurance NEVER totally covers treatment.  For example, lots of students with PID get monthly immunoglobulin infusions.  The cost of just this, not including other tests and treatments, exceeds $3,500 every month.  Usually one-third of the cost is covered by insurance. 

Last year Eric's Fund gave $3,000 to Karly (her real name with her permission), a brave young girl suffering from DOCK 8 deficiency.  For treatment, she needs to travel to National Institutes of Health in Bethesda, Maryland.  As a result of her PID, she suffered chronic kidney disease, heart failure, closing of her esophagus so it was hard to eat solid food and take pills, on and on.  Karly contracted Burkitt's Lymphoma and had chemotherapy for that.  She survived the cancer, but other DOCK8 issues continued.  In order to survive, Karly HAD to have a bone marrow transplant.  In 2014 Karly had a successful bone marrow transplant and is now doing much better.  The family has no funds for college.  Karly has to go to a college near her home so she can continue treatment and needs to travel frequently to Maryland to be treated at NIH.  Eric's Fund gave Karly $3,000 in 2016 to help with her expenses and affording her the opportunity to go to college.

One of the biggest challenges our organization faces constantly -- is fundraising.  We are considered a "tier two" charity and, as such, find it extremely difficult to raise funds.  Even though EVERY PENNY raised goes to "our kids," that is not enough to encourage contributions. 
 
Eric Marder Scholarship Fund accepts and reviews applications from financially needy students suffering from primary immune deficiency diseases. All contributions are given out in scholarships, with a small portion going to the endowment fund. The students and their families contact us all the time thanking us for doing this work. 
Programs
Description Eric's Fund seeks students with primary immunodeficiency diseases and offers them scholarships to attend undergraduate college and/or trade school. 
Budget $2,500
Category Education, General/Other Student Financial Aid
Program Linked to Organizational Strategy Yes
Population Served People/Families of People with Health Conditions
Short Term Success
Eric's Fund expects to award more scholarships going forward, allowing students to achieve personal successes and often do what they couldn't normally do given their immuno deficiencies.
Long Term Success
Karly was diagnosed with DOCK8 Deficiency, a rare inherited primary immunodeficiency and must travel to be treated at National Institutes of Health (NIH) in Bethesda. In 2012, NIH started research into Haplo Bone Marrow transplantation (bone marrow transplants from a less than perfect match). She underwent the first Haplo bone marrow transplant for DOCK 8 in 2014 using her brother’s marrow which was highly successful, and she has been taken off several medications. Her heart failure is improving. Her renal artery stenosis has not yet seen the same improvements, and she has stage 3 chronic kidney disease.
Karly maintains a 4.0 grade point average, and is thriving. She needs adjustments to her scholastic schedule due to some remaining issues, but is excited for her future. She attends a local college and lives at home to keep her expenses down. In 2016 Eric's Fund awarded Karly $3,000.
Program Success Monitoring

We measure our success by the amount of  "eligible" applications we receive.  We are quite proud that because of our outreach to financial aid offices in college and outreach to doctor's clinics where immune deficient students are treated, we received 56 applications in our first year of operation.  Only three applicants didn't qualify. 

Program Success Examples

In August of 2015 we evaluated 56 applications and awarded 29 scholarships totaling $40,000 for the school year August/September 2016 - June 2017. 

Here is one of our many success stories:  One of the members of our board of directors (Cory Schierberl) just 3 months ago received  his PhD.  Cory was very ill and could not have attended undergraduate college without our help.  Because of Eric's Fund Cory was able to attend University of Ohio undergraduate school and complete his bachelor's degree free of debt.  Since he couldn't actually live away at college, we helped him do what his family couldn't due to their funds being depleted because of his immune deficiency. 
   Another of our graduates was so thankful that after receiving funds from Eric's Fund for four  years, she went on to get a job with Make A Wish Foundation so she could continue to help other kids as she had been helped.
    This past  year, one of the kids we helped was Carly Koch.  Her story is contained elsewhere in this application.  Carly was very ill, and because she must live at home and go to school locally, the funds we gave her just about paid her expenses for the year.
     Immuno deficient kids have many, many medical expenses and their families -- no matter how wealthy -- don't have the ability to spare anything for education.  And these kids usually cannot work for extra income because just going to school is a major accomplishment. 
Comments
Program Comments by Organization

We give talks all the time explaining what primary immunodeficiency is and why these kids need help.  We contact many college financial aid offices and also medical clinics who treat primary immunodeficiency disease.  In 2017 we plan to do a 5K walk to promote awareness, and add additional programs. The walk is sponsored by the doctor who is the medical director of our organization. 

CEO/Executive Director
CEO/Executive Director No Executive Director
CEO Term Start 0
CEO/Executive Director Email annieb3907@gmail.com
Former CEOs/Executive Directors
NameTerm
Senior Staff
NameTitle
Staff & Volunteer Statistics
Full Time Staff 0
Part Time Staff 0
Staff Retention Rate % N/A
Professional Development No
Contractors 0
Volunteers 6
Management Reports to Board N/A
CEO/Executive Director Formal Evaluation N/A
Senior Management Formal Evaluation N/A
Non-Management Formal Evaluation N/A
Collaborations

The Eric Marder Scholarship Fund worked through the Immune Deficiency Foundation for 14 years until becoming an independent 501(c)3 in August of 2015.  We no longer are part of nor collaborate with the Immune Deficiency Foundation or any other group.

External Assessments and Accreditations
Assessment/AccreditationYear
Risk Management Provisions
Government Licenses
Organization Licensed by the Government No
Plans
Fundraising Plan No
Communication Plan No
Strategic Plan No
Strategic Plan Years
Strategic Plan Adopted 0
Management Succession Plan No
Continuity of Operations Plan No
Policies
Nondiscrimination Policy No
Whistle Blower Policy No
Document Destruction Policy No
Directors and Officers Insurance Policy No
Policies and Procedures Yes
Comments
Management Comments by Organization

We are small but strong organization.  Everyone associated with our organization helps.  Our attorney gives free legal advice; our CFO supplies and files needed financial forms; our scholarship committee reviews all applications and awards the scholarships.  Our biggest challenge is fundraising...in order to address this, we have contacted a gentleman who is helping us find someone.  

Board Chair
Board Chair Mrs. Anne Marder Bishop
Company Affiliation Community Volunteer
Board Term Aug 2015 to June 2025
Board Chair Email annieb3907@gmail.com
Board Members
Board Members
NameAffiliation
Mrs. Anne Marder Bishop nonePresident, Director
Mr. Wally Bishop noneDirector, Vice President
Dr. Niraj Patel Medical Advisor
Mr. Elliott Puretz noneDirector, CFO
Mr. Jeffrey Puretz EsqVice President
Mrs. Elsa Rohow noneDirector, Secretary
Mr. Cory Schierberl noneDirector, Vice President
Constituency Includes Client Representation Yes
Board Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 6
Hispanic/Latino 0
Native American/American Indian 0
Other 0 1Indian decent
Board Gender
Male 5
Female 2
Unspecified
Governance
Board Term Lengths 99
Board Term Limits 99
Board Orientation No
Number of Full Board Meetings Annually 1
Board Meeting Attendance % 83
Board Self-Evaluation Yes
Written Board Selection Criteria No
Board Conflict of Interest Policy Yes
% of Board Making Monetary Contributions 100
% of Board Making In-Kind Contributions 100
Standing Committees
Scholarship
Fiscal Year Projections
Fiscal Year Begins 2016
Fiscal Year Ends 2017
Projected Revenue $50,000.00
Projected Expenses $43,000.00
Total Projected Revenue includes "in-kind" contributions/ donations No
Organization has Endowment Yes
Endowment Value $103,000.00
Endowment Spending Policy N/A
Capital Campaign
Currently In a Capital Campaign No
Anticipate Campaign within 5 years? No
Campaign Purpose


Campaign Goal
Campaign Dates 0 to 0
Amount Raised To Date 0 as of 0
IRS Form 990s
Audit/Financial Documents
Historical Financial Review
Expense Allocation
Fiscal Year201620152014
Program Expense$43,461----
Administration Expense$4,350----
Fundraising Expense$0----
Payments to Affiliates$0----
Total Revenue/Total Expenses3.05----
Program Expense/Total Expenses91%----
Fundraising Expense/Contributed Revenue0%----
Assets and Liabilities
Fiscal Year201620152014
Total Assets$101,831----
Current Assets$101,831----
Long-Term Liabilities$0----
Current Liabilities$0----
Total Net Assets$101,831----
Top Funding Sources
Fiscal Year201620152014
Top Funding Source & Dollar AmountContributions, gifts, grants $145,330----
Second Highest Funding Source & Dollar AmountInvestment Income $339----
Third Highest Funding Source & Dollar Amount0 $0----
CEO/Executive Director Compensation
Tax Credits No
Solvency
Short Term Solvency
Fiscal Year201620152014
Current Ratio: Current Assets/Current Liabilities------
Long Term Solvency
Fiscal Year201620152014
Long-Term Liabilities/Total Assets0%----
Financials Comments
Financial Comments by Organization

Our challenge is raising enough capital to give out scholarships and contribute to our endowment fund.  This is our biggest challenge.  Our first  year we raised $60,000.  Of this amount, we gave out $40,000 in scholarships, put $15,000 in our endowment fund, and kept $5,000 in our bank account to start the next  year. 

For the first time this year we had some help with fundraising ideas.

Financial Comments by Foundation
Financial information taken from the Federal 990-EZ.
 
The funds that were received in FY 2016 were approximately $60,000 (rounded) from donors.  The other approximate $80,000 was a transfer of funds from the endowment fund previously held by IDF.  This transfer was required to be treated as income on the tax return but was really a transfer of funds previously received by the Agency when it was under the auspices of the IDF.  Of the $60,000, $43,000 was paid in scholarships.  Scholarships are recognized as expenses on the Form 990 and are shown as grants paid out.  The expense of approximately $4,000 represents donations made by the president to cover the Agency operating expenses.  Of the $47,000 of expenses, $43,00 were given in scholarships and $4,000 were covered by the president of the Agency.
Nonprofit Eric Marder Scholarship Fund Inc
Address 1912 ROLLING GREEN CIRCLE
SARASOTA, FL 34240 9312
Phone 941 377-4999

THE COMMUNITY FOUNDATION OF SARASOTA COUNTY, INC. IS A REGISTERED 501(C)(3) NON-PROFIT CORPORATION. A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE WITHIN THE STATE (1-800-HELP-FLA) OR FROM THE WEBSITE: WWW.FRESHFROMFLORIDA.COM. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE. ONE HUNDRED PERCENT (100%) OF EACH CONTRIBUTION IS RECEIVED BY THE COMMUNITY FOUNDATION OF SARASOTA COUNTY. REGISTRATION #SC-02471.