High Risk Hope Inc
1702 N Avenida Republica de Cuba
Tampa FL 33605
Mission
High Risk Hope provides support, encouragement, information and resources to women and families who are experiencing a high risk pregnancy resulting in hospital bed rest, potential premature birth and neonatal intensive care after delivery.
Leadership
CEO/Executive Director Bailey Nicholas
Board Chair Heather Barrow
Board Chair Affiliation High Risk Hope
General Info
Tax Exempt Status Public Supported Charity
Incorporation Year 2011
State Charitable Solicitations Permit Yes June 2018
State Registration Yes May 2018
Financial Summary
 
 
IRS Letter of Determination
Name
IRS Letter of DeterminationView
Impact Statement
High Risk Hope’s produced life changing results in 2016:

-200 Dedicated Volunteers
-4 Hospital Partners
-350 High Risk Pregnancies Prolonged
-1,100 NICU Families Supported PRICELESS LIFELONG IMPACT FOR -1,300 PREMATURE INFANTS

High Risk Hope’s local goals for 2017:

-Support 100 women on hospital bed rest at Sarasota Memorial Hospital
-Support 300 families with premature babies in the neonatal intensive care unit at Sarasota Memorial Hospital 
-Secure funding to reach 400 families experiencing high risk pregnancies and premature birth annually at
Sarasota Memorial Hospital
-Successfully execute High Risk Hope signature events, such
as the Tot Trot (www.tottrot.org) and Giving Challenge Story Time in Sarasota
Needs Statement
1. $25,000 in donations to fund High Risk Hope's programs at Sarasota Memorial Hospital. Every $25 donated supports the family of one premature baby in the neonatal intensive care unit. A $60 donation will support one pregnant mom on hospital bed rest at Sarasota Memorial Hospital.

2. New or gently used children books for High Risk Hope's Books for Babies program. 

3. Hand knitted/crocheted/sewn premature baby items such as blankets, hats and booties.  

4. Volunteers to assemble and deliver patient bags to Sarasota Memorial Hospital as well as HRH Ambassador families to visit Jersey Mike's Subs store locations in Sarasota on Wednesday, March 29 for the Day of Giving. 100% of sales on Day of Giving will be donated to High Risk Hope.   
Background Statement
High Risk Hope Founder, Heather Barrow was just 24 weeks into pregnancy with her second child when her water broke and she went into labor. Doctors immediately prepared Heather and her husband Bennett for the impending birth of her son Hill, warning he would have a 50% percent chance of survival and would certainly face some type of severe and permanent disability.
Preterm premature rupture of membranes at 24 weeks is rare, and the mother and baby’s life is at risk as long as the pregnancy continues. Heather and Hill were closely monitored due to the potentially fatal risk of umbilical cord prolapse and infection. With the cushioning amniotic fluid between the baby and umbilical cord gone, any movement could cause the baby to roll on the cord and stop the flow of oxygen, resulting in brain damage or death. Heather’s ability to remain calm and optimistic in such traumatic and stressful circumstances played a crucial role in her ability to prolong her pregnancy as long as medically feasible.
Thanks to an excellent medical team, prayers, the support of loved ones, and a positive outlook, Heather remained pregnant for 59 days on complete hospital bed rest. To the surprise of an operating room full of nurses, obstetricians and neonatologists, Hill was born kicking and screaming at 32 weeks by an emergency C-section. Despite being born two months premature, and having no amniotic fluid for two months in utero, Hill needed no breathing support during his brief stay in the neonatal intensive care unit. Since his birth in 2009, Hill has met or exceeded every developmental milestone and has shown no complications related to Heather’s hospitalization or his premature birth.
It is hard to imagine, or to adequately convey, how difficult and stressful this type of ordeal can be on a mother-to-be and her family. While in the hospital, Heather received no support from a local or national nonprofit. This was the norm for other hospital patients, most of whom also did not have a strong personal support system.
HRH evolved out of one mother wanting to encourage others facing similar terrifying circumstances by bridging the gap between their worst fears of losing a child and the hope of leaving the hospital with a healthy baby. HRH has become an unstoppable and evolving movement in the Fight For Preemies thanks to our hospital partners, dedicated volunteers and loyal donors serving 2,000 new HRH families every year.
Areas Served
Areas Served
Area
FL- Sarasota
FL- Hillsborough
FL-Pinellas
Areas Served Comments High Risk Hope does not provide any type of direct funds (cash or cash equivalents) to individuals, rather we provide programs, goods and services that benefit the following types of individuals and their families:

1. Pregnant women who are admitted to the hospital for a serious pregnancy complication requiring long term (> 3 weeks) hospital bed rest.
2. Families whose newborn infant is admitted to the neonatal intensive care unit (NICU) for long term care (> 3 weeks) following a premature birth. HRH's current hospital partners include St. Joseph's Women's Hospital, Tampa General Hospital, Sarasota Memorial Hospital and Johns Hopkins All Children's Hospital.
Service Categories
Primary Org Type Human Services
Secondary Org Type Human Services
Tertiary Org Type Health Care
Statement from the Board Chair/Board President

In January of 2016, our Board of Directors set lofty goals for fundraising and expanding our community outreach. Our employees, donors and volunteers rose to the challenge, proving a great deal can be accomplished by a passionate group in 12 months. In 2016, we increased revenue, hired two new employees, added two new hospital partners and served 1,450 families in crisis. While these achievements are incredible, our work is nowhere near complete.

Almost 400,000 babies are born prematurely every year in the United States. Premature birth is the greatest contributor to infant death and is a leading cause of long-term neurological disabilities, vision and hearing loss, learning and behavioral problems, cerebral palsy and lung problems. Because High Risk Hope (HRH) is the only local or national non-profit serving pregnant women on hospital bed rest and premature infants in the Neonatal Intensive Care Unit, the demand for our services exponentially exceeds what we are currently able to provide. Every community has a responsibility to combat the premature birth epidemic that affects the life of at least one in ten newborns.

Your continued support will ensure all eligible families at risk for premature birth and those who have delivered a premature baby in your community will receive crucial HRH support services. Thank you for your commitment to improving the lives of our tiniest newborns.

Sincerely,

Heather Barrow
Founder and Executive Director

Statement from the CEO/Executive Director
It is incredible what HRH has accomplished in six short years with your help. HRH has grown revenue by more than 175% every year and reached 5,500 families in crisis! As the only local or national organization serving both women on hospital bed rest and premature infants in the neonatal intensive care unit, HRH has also become the go-to resource online for families across the United States in desperate search of support. HRH is a dynamic and innovative for purpose organization that combines the head of a successful for-profit company with the heart of a traditional non-profit. While most companies, regardless of taxable status, fail within the first eighteen months to five years, HRH is thriving and is one of the fastest growing companies in this industry. HRH has achieved enormous impact in this community by keeping a close eye on the bottom line and making decisions based solely on what is best for HRH and our moms and babies. Thanks to your continued support, HRH has become a catalyst in the fight to end premature birth; winning a lifelong victory with every baby we help.  Heather Barrow, Founder and Executive Director
Programs
Description

HRH volunteers assemble and deliver Bed Rest Baskets to newly admitted, long-term high risk obstetric hospital patients. Bed Rest Baskets provide over 50 personal items that a mom-to-be needs to survive long-term hospital bed rest. The items included are not provided by hospitals and ensure every patient’s basic needs are met so the patients can focus on a healthy mom and baby. This program also provides practical and emotional support to hospital patients and hope that their family can leave the hospital with a healthy baby.

Budget $25,000
Category Human Services, General/Other Family-Based Services
Program Linked to Organizational Strategy Yes
Population Served Adults At-Risk Populations Females
Short Term Success

On a weekly (or monthly in Sarasota) basis, HRH volunteers are able to assemble and deliver Bed Rest Baskets to 100% of eligible patients at HRH hospital partners. 

Long Term Success

-100% of pregnancies of pregnant women served by HRH are prolonged (by 24 hours or more) in part by HRH’s services.

-100% of patients feel encouraged and supported by HRH. 
 
-50% of patients support future families in some way, either through donation, participation in an event or volunteering.  
Program Success Monitoring

Program success information, as well as HIPPA-compliant demographic information on patients, is required to be provided to HRH under a Memorandum of Understanding with each hospital. At least annually, HRH holds review and planning meetings with hospital administration and key players from all organizations to discuss past success and determine how HRH programs can be improved or expanded in the future. 

Program Success Examples HRH Mom Karyn Bersch said, " The amount of support I received from High Risk Hope for my seven weeks on hospital bed rest, and Kellan's months in the NICU, was overwhelming. All the visits, care baskets, phone calls, emails, texts, Facebook posts all made the time pass by fairly quickly. The hardest part was being away from my husband Kyle and daughter Kieresten.

HRH played a huge part in my overall well being and happiness while on bed rest and while my son was in the NICU. Heather Barrow was one of the first people at my bedside telling me her story and that I had to be the one to make the decision to be positive about my situation. Her advice stayed with me throughout this entire journey and even still today. The Bed Rest Basket I received from HRH had so many useful and fun things for me and so did the NICU Napsack. I had a few volunteers stop in to say hello and lift my spirits. This organization has wonderful people working for an amazing cause."

Description

HRH volunteers assemble and deliver NICU Napsacks to families of newly admitted premature infants to the NICU. NICU Napsacks provide 25 personal items that are crucial to a long term hospital stay and are not currently supplied by hospitals or any other non-profit organizations. NICU Napsacks ensure a family’s basic needs are met so parents can focus on the health of their baby.

Budget $25,000
Category Human Services, General/Other Children & Youth Services
Program Linked to Organizational Strategy Yes
Population Served Children and Youth (0 - 19 years) At-Risk Populations Families
Short Term Success On a weekly (or monthly in Sarasota) basis, HRH volunteers are able to assemble and deliver NICU Napsacks to 100 % of eligible patients at HRH hospital partners.  
Long Term Success

-100% of parents of premature babies feel encouraged, supported and more knowledgeable about the NICU experience because of HRH.

-50% of HRH families support future families in some way, either through donation, participation in an event or volunteering.
Program Success Monitoring This information, as well as HIPPA-compliant demographic information on patients, is required to be provided to HRH under of our Memorandum of Understanding with each hospital. At least annually, HRH holds review and planning meetings with hospital administration and key players from all organizations to discuss past success and determine how HRH programs can be improved or expanded in the future.
Program Success Examples

Emily Carbone's son Theo was born at 23 weeks, after several weeks of hospital bed rest for her. Emily said, “During my hospital stay, we received such amazing support from family, friends, hospital staff and High Risk Hope. As so many NICU parents, nurses, doctors and social workers will tell you – the NICU is a LONG roller coaster ride. The ups and downs can change in an instant, with your baby fighting to live and enduring painful surgeries and procedures on their tiny bodies.

The HRH volunteers rallied around us, offering to chat, get coffee and share their experiences. It was amazing! HRH was incredibly supportive throughout our time on bed rest and in the NICU. From the Bed Rest Basket to NICU Napsack to connecting with other moms, HRH is such an amazing support system for parents experience high risk pregnancy and long NICU stays.”

Description

Each NICU Napsack includes children’s books as part of HRH’s Books for Babies program. Premature babies face a number of challenges, including a known risk of speech and language delay. Three separate 2015 studies from Harvard, Brown and Vanderbilt Universities documented the short and long-term benefits of parents reading (talking or singing) to their premature infants in the NICU. HRH’s Books for Babies program ensures NICU parents are educated about the importance of reading to their baby in the NICU, giving them a proven and simple opportunity to help their baby.

Budget $5,000
Category Education, General/Other Early Childhood Education
Program Linked to Organizational Strategy Yes
Population Served People/Families with People of Developmental Disabilities Children and Youth (0 - 19 years) Families
Short Term Success

100% of parents of babies admitted to the NICU at hospital partners will receive at least one book along with instructions on why reading to their child in the NICU is critical. 

Long Term Success
-100% of NICU parents will read to their baby on a daily basis. 
-Preemies who were read to will:
   -learn to eat more effectively, and be released from the hospital earlier
   -have increased language abilities at 7 and 18 months
   -eventually perform better in school  
Program Success Monitoring High Risk Hope measure success by the number of books that are delivered annually to premature babies in the hospital. 
Program Success Examples
Comments from the parents of premature babies:
-Nicole Ferrante Sleyzak I loved my ergo, my water bottle, the blanket, all the personal items which helped while on bed rest, and of course, I loved the books! I read them to my baby every day in the NICU! 
-Kelly Marin Urbizu We loved our books!! My 3y/o daughter still says to me "We brought these home from the 'hostidal'?" every time we read them, over 4 months since bringing my son home! I think they're extra special to my daughter because she equates them with her brother getting big and healthy in the NICU, and I think Adam will love them because they mean so much to his sister. 
Comments
Program Comments by Organization The global premature birth epidemic affects 15 Million babies every year and is the leading cause of death for newborns and the second leading cause of death for children under five. It causes lasting complications in babies that survive their preterm birth, such as intellectual disabilities, vision and hearing loss, learning and behavioral problems, cerebral palsy and lung problems.
High Risk Hope is a catalyst in the fight to end premature birth, winning a life-long victory with every baby we help. Join our fight for preemies today and become part of the solution.
CEO/Executive Director
CEO/Executive Director Bailey Nicholas
CEO Term Start Oct 2017
CEO/Executive Director Email bailey@highriskhope.org
Experience

Bailey holds her BA in Religion from Wake Forest University and her MA in Arts Administration from Columbia University. She has worked and volunteered in the non-profit sector in the Tampa Bay Area since 2006, most recently as the Membership and Marketing Coordinator at the Museum of Fine Arts in St. Petersburg. She has also worked for the Tampa General Hospital Foundation and the Dali Museum, as well as volunteered at The Straz Center for the Performing Arts and The Junior League of Tampa. Bailey was introduced to High Risk Hope when on bed rest at St. Joseph’s Women’s Hospital while pregnant with her twins. Following a two-week stay in the NICU, twins Henry and Nora came home healthy. Bailey notes that “High Risk Hope supported me throughout my pregnancy and NICU stay, inspiring me to become a volunteer delivering Bed Rest Baskets and NICU Napsacks. During my time volunteering with High Risk Hope, I was continually impressed by the organization’s unique support of women on hospital bed rest and its passionate volunteers and donors.” Bailey began working at High Risk Hope in January 2016 as the Fund Development and Special Events Manager and became Executive Director in October 2017.

Former CEOs/Executive Directors
NameTerm
Heather Barrow Feb 2011 - Oct 2017
Senior Staff
NameTitle
Kerri Kibbey Director of Special Events, Marketing and PR
Bailey Nicholas Executive Director
Shannon Oras Development Coordinator
Sasha Shahnasarian Program Coordinator
Staff & Volunteer Statistics
Full Time Staff 3
Part Time Staff 1
Staff Retention Rate % 100
Professional Development Yes
Contractors 0
Volunteers 200
Management Reports to Board Yes
CEO/Executive Director Formal Evaluation Yes
Senior Management Formal Evaluation Yes
Non-Management Formal Evaluation Yes
Collaborations
High Risk Hope works closely with our hospital partners, doctors, nurses and staff to ensure patients receive the highest level of support. High Risk Hope performs annual reviews of hospital partners, addresses issues at a planning meeting and executes a signed Memorandum of Understanding with each hospital. 
External Assessments and Accreditations
Assessment/AccreditationYear
Awards & Recognition
Award/RecognitionOrganizationYear
Be More Unstoppable - Nonprofit Organization of the yearWEDU Be More awards2015
Be More Entertaining - Special Events AwardWEDU Be More awards2015
$25,000 First Place Business Plan awardChildren's Board of Hillsborough County2014
Woman of PromiseGirl Scouts of West Central Florida2014
Community Hero - $50,000Tampa Bay Lightning2013
Risk Management Provisions
Government Licenses
Organization Licensed by the Government No
Plans
Fundraising Plan No
Communication Plan No
Strategic Plan No
Strategic Plan Years
Strategic Plan Adopted 0
Management Succession Plan No
Continuity of Operations Plan No
Policies
Nondiscrimination Policy Yes
Whistle Blower Policy Yes
Document Destruction Policy No
Directors and Officers Insurance Policy No
Policies and Procedures No
Board Chair
Board Chair Heather Barrow
Company Affiliation High Risk Hope
Board Term Feb 2011 to Dec 2017
Board Chair Email heather@highriskhope.org
Board Members
Board Members
NameAffiliation
Heather Barrow High Risk Hope
Susie Bray none
Elizabeth Carrere none
Kate DeSantis Community Volunteer
Tracie Domino Tracie Domino Events
Betsy Graham
Dr. Lauren Companioni Strahan South Tampa Kids Dental Krewe
Dr. Alfonso Vargas Padiatrix Medical Group
Constituency Includes Client Representation Yes
Board Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 6
Hispanic/Latino 2
Native American/American Indian 0
Other 0 0
Board Gender
Male 1
Female 7
Unspecified 0
Governance
Board Term Lengths 3
Board Term Limits 2
Board Orientation Yes
Number of Full Board Meetings Annually 5
Board Meeting Attendance % 86
Board Self-Evaluation Yes
Written Board Selection Criteria No
Board Conflict of Interest Policy Yes
% of Board Making Monetary Contributions 100
% of Board Making In-Kind Contributions 25
Standing Committees
Advisory Board / Advisory Council
Special Events (Golf Tournament, Walk / Run, Silent Auction, Dinner / Gala)
Fiscal Year Projections
Fiscal Year Start Month Jan
Fiscal Year Start Day 01
Fiscal Year Begins 2017
Fiscal Year End Month Dec
Fiscal Year End Day 31
Fiscal Year Ends 2017
Projected Revenue $427,000.00
Projected Expenses $403,900.00
Total Projected Revenue includes "in-kind" contributions/ donations Yes
Organization has Endowment No
Capital Campaign
Currently In a Capital Campaign No
Anticipate Campaign within 5 years? No
Campaign Purpose
Campaign Goal
Campaign Dates 0 to 0
Amount Raised To Date 0 as of 0
Historical Financial Review
Expense Allocation
Fiscal Year201620152014
Program Expense$144,700$145,499$53,329
Administration Expense$16,878$12,141$10,995
Fundraising Expense$32,966$7,701$635
Payments to Affiliates$0$0$0
Total Revenue/Total Expenses1.271.481.88
Program Expense/Total Expenses74%88%82%
Fundraising Expense/Contributed Revenue14%3%1%
Assets and Liabilities
Fiscal Year201620152014
Total Assets$274,052$222,005$140,568
Current Assets$263,819$217,972$140,387
Long-Term Liabilities$0$0$0
Current Liabilities$6,330$5,944$3,876
Total Net Assets$267,722$216,061$136,752
Top Funding Sources
Fiscal Year201620152014
Top Funding Source & Dollar AmountContributions, gifts, grants $190,932Contributions, gifts, grants $172,223Contributions, gifts, grants $97,768
Second Highest Funding Source & Dollar AmountFundraising $53,129Fundraising $65,447Fundraising $23,947
Third Highest Funding Source & Dollar AmountNet Income from Sales of Inventory $2,144Government Grants - Unspecified $5,000Gross Profit from Sale of Inventory $576
CEO/Executive Director Compensation $0 - $50,000
Tax Credits No
Solvency
Short Term Solvency
Fiscal Year201620152014
Current Ratio: Current Assets/Current Liabilities41.6836.6736.22
Long Term Solvency
Fiscal Year201620152014
Long-Term Liabilities/Total Assets0%0%0%
Financials Comments
Financial Comments by Foundation For 2012, financial information was taken solely from the audited financial statements, as the organization filed a 990-N (postcard).  Beginning in 2013, the financial information was taken from the Federal 990-EZ and audited financial statements.  Contributions include foundation and corporate support as they are not separately identified in the available financial information.
Nonprofit High Risk Hope Inc
Address 1702 N Avenida Republica de Cuba
Tampa, FL 34237
Phone 813 247-5483

THE COMMUNITY FOUNDATION OF SARASOTA COUNTY, INC. IS A REGISTERED 501(C)(3) NON-PROFIT CORPORATION. A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE WITHIN THE STATE (1-800-HELP-FLA) OR FROM THE WEBSITE: WWW.FRESHFROMFLORIDA.COM. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE. ONE HUNDRED PERCENT (100%) OF EACH CONTRIBUTION IS RECEIVED BY THE COMMUNITY FOUNDATION OF SARASOTA COUNTY. REGISTRATION #SC-02471.