Parents In Action Inc
21450 Gibralter Drive
Suite 2
Port Charlotte FL 33952-5417
Mission
Parents in Action, Inc. has been founded on the principle that it will take a combination of parents, caregivers, providers, educators, legislators and the community to address the needs of the rapidly increasing population of individuals diagnosed with Autism Spectrum Disorders and other Developmental Disabilities. We believe that in order to face this National Health Crisis, we must all work together to train an army of caregivers to assist as these individuals mature into adulthood. We also must ensure that newly diagnosed individuals get immediate treatment to ensure the best possible outcomes. Parents in Action Inc., will be the leader in Behavioral Services ensuring that not one child will fall between the cracks of an inadequate system. We will be a household name and the one people go to for ongoing support for their loved one with an Autism Spectrum Disorder as well as other Developmental Disabilities.
Leadership
CEO/Executive Director Ms. Sharon R Boyd
Board Chair Sharon R Boyd
Board Chair Affiliation Parents in Action Inc
General Info
Organization DBA
DBA
Parents in Action for Autism
Tax Exempt Status Public Supported Charity
Incorporation Year 2013
State Charitable Solicitations Permit Yes Sept 2016
State Registration Yes Apr 2017
IRS Letter of Determination
View
Financial Summary
 
 
Projected Revenue $250,000.00
Projected Expenses $230,000.00
Impact Statement

 

In 2015 Parents in Action has:

-Provided over $227,000 of services to families living with autism

-Provided over 10,000 hours of Behavior Assistant Services

-Provided over 1,000 hours of Respite Services

-Provided over 200 hours of Personal Supports to individuals over 21 years of age


The past year for Parents in Action Inc. has been one of growth and learning. We have added the Personal Supports Service for clients with developmental disabilities over 21 years of age.  Most are not eligible for Behavior Services but still need supports to live as independently as possible in the community.  It is exciting to provide this service with an emphasis on the adult client's goals, choices and rights. 

We are Medicaid and Medicaid Waiver Providers of Applied Behavior Analysis services with an emphasis on the front-line Behavior Assistants that implement the plans written by Board Certified Behavior Analysts in the homes of those we serve. Although we have experienced difficulty finding the Board Certified Behavior Analysts (BCBAs) to keep up with the endless stream of families seeking help, we have had some exciting successes. We provided help to clients through the Agency for Persons with Disabilities Medicaid Waiver program, as well as through the Medicaid State Plan.

Our Primary Goals for the next year are as follows:

1.     Expand Behavior Assistant Program through better, more cost effective program of training to a higher level to meet the Registered Behavior Technician (RBT) criteria as set forth by the Behavior Analysis Certification Board (BACB).

2.    Provide Personal Supports to more adult clients and position ourselves to continue services to our clients as they become adults and are no longer eligible for Behavior Services but may require other supports to navigate their community.

4.     Hold monthly training sessions for parents/guardians of individuals with developmental disabilities and provide free respite so that they can attend.

5.     Offer "Special Sitters" Respite Program at no charge to families utilizing a combination of paid staff with volunteers from local colleges that are specially trained to provide parents with the desperately needed services.

 


Needs Statement

PRIORITY NEEDS

 1. Behavior Technician Toolbox: $5-$100 Items every good behavior technician needs to engage their client. Examples: fun teaching materials, cause and effect toys, sensory/squishy toys, gift certificates for community outings to reward the child and to encourage interaction in the community.

2. Therapy Supplies/Materials:  $250 The majority of the families we serve do not have the funds necessary to purchase expensive therapy supplies/materials.  We try to provide what is needed by purchasing used items or we improvise less expensive materials.  We often make items used for communication such picture boards for children who have limited speech. Consumable supplies such as ink, laminating film and velcro are used often.  Some materials must be bought new and cannot be re-used.  A gift of $250 will set up a new client with the materials he or she needs to succeed. 

3. Training & Screening Behavior Technicians: $1500 each, to meet our goal of 100 over the next year the total is $120,000

4. Parent Trainings: $705 each, $8460 for monthly trainings for a year.  We receive over 20 calls per week from persons needing information or guidance on how to obtain supports and services for their loved one living with a developmental disability. There will be no charge to attend and we will also provide free respite by our trained staff and activities & snacks for the children to make it easy & enjoyable for the family to attend.

5.  Office staff: We started out running all aspects of this organization ourselves, as volunteers. This includes recruiting, hiring, scheduling, billing, answering phones, etc. This last year we were able to hire an amazing assistant but it is not enough to grow a company of this size.  In order to do this, we must hire approximately 2 administrative staff for day to day operations. The estimated cost for each would be $32,000.

Background Statement

“Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it’s the only thing that ever has.” – Margaret Mead.


Shortly after my son Austin was diagnosed with Autism Spectrum Disorder in 2002, I came across this quote. I copied it and placed it everywhere to remind me that anything was possible.

About this time, I met another autism mom with a son the same age as Austin, and a baby girl the same age as my other son, Adam. We were incredibly different; our backgrounds, our income, everything. We came together for the one thing we shared, our sons were diagnosed and we were scared and desperate.

That mother, Tammie Baker, reached out to me one day and invited my family to her house for a barbeque by the pool. We never went together anywhere as a family for fear of a meltdown or having people not understand what we were going through.

This was the first invitation we accepted. As they say the rest is history. Our families shared many happy days together, relaxed and being ourselves.

Tammie and I became the self-proclaimed “Lucy and Ethel” of the autism community. Sometimes we “bit off more than we could chew”. Sometimes we chased after loopholes, developed some hair-brained schemes, and searched for every connection we thought may help to get what our sons needed. We did everything we could think of to help the autism community. No matter how big the goal or how unlikely success may have seemed, we always prevailed, as long as we were a team.

We built successful walks with our group of friends, also in the autism community. We became a support group that happened to put on a walk, and that walk became a family reunion of sorts.

We helped in 2008 to pass Autism Insurance Legislation in Florida. We and our group of friends continued to support each other over the next few years.

By 2012 there was no doubt in our minds about our next step. Many insurance companies and Medicaid were now paying for behavior services. It was very frustrating to hear from families that they could not access the services we had all been fighting for due to a lack of providers.

That was the birth of Parents in Action, Inc. We knew the time had come to step up and set an example of how we can join the existing system and mold it into something to finally help our families.

We ARE a small group of committed individuals.

It’s time- Lets change the world.

Written by Sharon Boyd

Areas Served
Areas Served
Area
FL- Charlotte
FL- DeSoto
FL- Lee
FL- Sarasota
Areas Served Comments We are currently serving the Suncoast Region of Florida as defined by the Agency for Persons with Disabilities. We plan to expand to cover the rest of Florida over time. We are mainly in Sarasota, Charlotte, & Lee counties at this time.
Service Categories
Primary Org Type Human Services
Secondary Org Type Health Care
Tertiary Org Type Civil Rights, Social Action, Advocacy
Statement from the Board Chair/Board President

 

As an organization founded by parents directly impacted by Autism and with a mission to work within the existing system of services, we definitely have faced some challenges. We started as adversaries of the system we felt was failing our children. We were quite vocal and spent many early meetings opposing some of the very people that we are now working to build collaborations with. We have each grown considerably in the ten+ years since our boys were small and Autism was very new in our world. We each have acquired skills and expertise that allow us to join high-level conversations and add to them. We are helping to shape the future through these collaborations with state and local agencies.

Our previous time serving on task groups and work groups has led to an appointment for our President, Sharon Boyd to the Agency for Persons with Disabilities Behavior Analysis Policy Council which was created due to a recommendation from the previous groups. Her input as a provider, a parent, an advocate, and a leader is proving to be a welcome addition to creating true changes affecting our families. She remains an impassioned voice shaping policies for families and providers.

We have seen that there is a HUGE need for highly trained Behavior Technicians, Respite, and Personal Care Assistants to work with individuals like our sons. We also know that Florida is facing a severe Job Crisis. We have proven that the RIGHT person with the proper training can and does work very well with these individuals. We know the requirements for training, and have designed a program that does not only meet Florida’s expectations for these caregivers, but exceeds them and meets PARENTS expectations. The need is even bigger today!

Our main challenges are financial in nature. WE NEED BCBAs that can write and oversee the Behavior Plans. In order to be sure we have access to them, we need to be able to hire them. That takes finances. Also, it costs approximately $1,500 per Behavior Technician to Recruit, Screen, Train, and oversee them for one year. For that Behavior Technician working 40 hours per week, we can bill Medicaid for their services, pay them a decent wage, and give them the benefits of being a full-time employee. Any “profit” is reinvested into more services, training, etc. for more families. We now have two full years under our belts and are more convinced than ever that our formula can and does work!

We are not only meeting a need within our non-profit structure, but we have also built in a way for it to sustain itself over time. We need financial help to build this to a certain level. We have done it so far with a combination of tenacity, prayer, sweat, and tears. IT IS WORKING! It is sustaining itself but we need to grow. Since 2013 we have provided over 30,000 hours of services and $600,000 of services so far! All of this with two volunteer administrators and one paid Administrative Assistant. We can’t slow down now!

 


 

Statement from the CEO/Executive Director

 

We are parents creating the system, looking at it from two perspectives, as providers, and as consumers. We have a deep understanding of the difficulties of living with a developmental disability. We have lived the autism crisis since it was considered a rare disorder and behavioral health treatment was considered unproven and unnecessary. Today, it is a national health crisis and behavioral services are the primary scientifically proven treatments. We have been a part of the conversation through the years and have brought to light the struggles of families and the need for services not only in Florida but nationwide. We have unique insight to bridge the gap between providers, caregivers and parents, providing a "translation" between each. Parents in Action is the business incarnation of our volunteer efforts as leaders in the autism community. Our grassroots leadership resulted in Florida becoming the 4th state to pass autism insurance reform, mandating the coverage of behavioral health treatment for autism spectrum disorders. We have been the go-to people in the autism community for information and now we will be the go-to people for services as well.

We are also operating as a nonprofit organization in order to allow us to receive donations and raise funds in addition to receiving Medicaid, Medicaid Waiver, and Insurance payments for services, the proceeds of which will be reinvested into providing services for those without coverage regardless of their ability to pay.

We are excited to have our office at the Charlotte County Family Services Center. We are now in the hub of services to the most desperately in need. We are a valued addition to the Center due to our expertise in Autism, which is having far-reaching effects for many of the families each agency is tasked with serving. We are needed and ready to help!

Programs
Description

To face the shortage of front-line behavior help (Registered Behavior Technician (RBT), we need to become an "RBT Factory”. 

Costs for 1 RBT:

$75 State required courses at Tallahassee CC

$83.50 Background screen

$20 CPR/First Aid materials (instructor is donating time)

$127    40 hour behavior technician class

$50 Registration fee to the Behavior Analysis Certification Board 

$0 Class in special needs family dynamics

$0 Class in data collection & documentation taught by RN

$50 PCM Book (instructor is donating time)

$820 2 weeks training/class time to obtain certification (40 hours per week at $9.00/hr +burden rate)

$400 1:1 Oversight/guidance on plan implementation with specific child in their home (working closely to ensure BCBA satisfaction)

Result: 1 Registered Behavior Technician (RBT) with “PIA Gold Standard” training: $1500 approx.

1 yr. Full Time RBT services billable through Medicaid: $35,859.20

Impact on local families: PRICELESS

Budget $250,000
Category Employment, General/Other Job Training & Employment
Program Linked to Organizational Strategy Yes
Population Served Unemployed, Underemployed, Dislocated Families People/Families with People of Developmental Disabilities
Short Term Success Since we began offering services in September 2013, we have provided over 16,000 hours of Behavior Assistant Services and 4,000 Hours of Respite services  to families. We have billed Medicaid for over $390,000 in reimbursement for these services, which covered the payroll for the employees providing the services including the burden rate. We hope to expand services to over 100+ families in the Suncoast region within the next year.
Long Term Success Long term success will be determined by the number of families served and the expansion of counties having access to our services. A key element of our long term success is having the financial ability to add administrative staff to run the services that we provide, and the ability to HIRE our OWN BCBAs to train and grow our BCaBA's and BCBA's from within our Non-profit structure.
Program Success Monitoring

We have provided over 16,000 hours of behavior assistant services to families since program development in September 2013. This has been accomplished without the required administrative infrastructure to run a program of this magnitude.  To this point, our success in numbers were obtained by two volunteer mothers that have a PASSION and DRIVE to ensure qualified treatment is available for those approved for it. We know that with funding to add to our infrastructure will increase our reach in the community and exponentially increase the individuals that we are working to help!


The structure we have created by providing services within our organization has already shown the potential to sustain itself over time. We need the resources to grow as fast as our client base needs us to grow!

Program Success Examples

Our mission and the success of its impact is said best here, by a parent of a client. This is WHY we continue as volunteers awaiting funding. How could we not?


“In the past seven yrs. our son has not received behavior assistants (BA’s) within our home. The problem...lack of available trained providers that could handle his level of need. While waiting, he went through puberty and his behavior hit an all-time high. The severity of aggression and self-injury dramatically affected his life, our family, and the lives of the all people in his world. While we waited...HE suffered.

Enter HOPE...Parents In Action, Inc... Founded and run by precious women who have worked tirelessly in advocating for our extraordinary children and families, while they too walk their own personal journey with autism.

We now receive consistent support within our home. BA’s who provide support and protection for our young man when he tries to hurt himself or harm others, supports that keep our son safe”.

Description

Parents in Action, Inc. provides in home respite services to families living with Autism and Developmental Disabilities. This allows families to have time outside of the home to do recreational and practical things like doctors’ appointments, grocery shop, or go on a date with a loved one or a movie with their non-affected children. We believe strongly that for the safety of all concerned, these workers must also have clear understanding of Behavior and ASD. ALL of our Respite workers will be trained as Behavior Technicians. The reimbursement rate for Respite through Medicaid Waiver does not allow for this, so we make no “profit” on these services. We provide this because of NEED, we do it correctly as PARENTS in Action, and we refuse to lower the standard of care to meet the level of reimbursement. Our GOAL is to provide this service whenever needed, not based on ability to be reimbursed for it.

 

Budget $50,000
Category Human Services, General/Other Services for Individuals with Disabilities
Program Linked to Organizational Strategy Yes
Population Served People/Families with People of Developmental Disabilities People/Families with of People with Psychological Disabilities People/Families with of People with Disabilities
Short Term Success Our short term goal is to provide services to over 60 families within the next year. 
Long Term Success We hope to be providing services in all 11 counties of the Suncoast Region in Florida.  We are currently developing a collaborative plan that will utilize community service requirements with College Level students. We have included in the budget the cost of an administrator to facilitate this collaboration further.
Program Success Monitoring The number of families served and the responses from families regarding the effectiveness of the help they receive.
Program Success Examples

We have provided over 2600 Respite services since Sept, 2013. Below are some examples of their thoughts on the successes of our program.

· “The need is great! Parents In Action, Inc. are changing the lives of all individuals on the autism spectrum...giving them HOPE.” – Mother of 19 yr. old with ASD

· “I'm still standing here because you've helped me…” – Mother of 10 yr. old with ASD

· “Parents in my situation are frustrated but have very little options. Thank GOD for PARENT IN ACTION. I now have someone that I can trust that can keep up with my son. I have a young girl who is willing to try new things with my son while I take care of household matters. I feel like she is an extension of me. I can go to my other children’s sporting events. I now can work late and go shopping without meltdowns in the supermarket. We need more support financially and help for groups like Parent in Action in order to help more families. ” – Mother of 11 yr. old with ASD

Description

Regular Medicaid, which the majority of our clients have, does not cover Respite care in Florida. Parents cannot find caregivers who have the training to safely watch a child with unpredictable behaviors or medical issues. Special Sitters is our plan to offer trained caregivers so that parents can take a much-needed break. We will work with local colleges to find students needing to meet their community service requirements. We will provide basic training in CPR/First Aid, Autism, and Behavior.

2 Special Sitters volunteers will provide Respite Services from our RESPITE POOL to families needing service.

For every hour someone volunteers with Parents in Action, 2 hours of Special Sitters will be added to the “RESPITE POOL”. This offers another way to reduce the costs of providing the service needed with collaboration from our community and an opportunity for volunteers to see the direct result of their time donated.

The budget for this is to cover staff to oversee the program.

 

Budget $50,000
Category Human Services, General/Other In-Home Assistance
Program Linked to Organizational Strategy Yes
Population Served People/Families with People of Developmental Disabilities People/Families with of People with Psychological Disabilities People/Families with of People with Psychological Disabilities
Short Term Success Short term success will be determined when we have successfully built the relationships to begin recruiting. We will also have to have an approved curriculum for the Special Sitters. Partnership with other organizations may be key to overall success. 
Long Term Success Long term success will be determined by the number of volunteers that we are able to recruit and train to be Special Sitters, and on their satisfaction with the program. It will also be determined by the families we are able to serve.
Program Success Monitoring

Ability to serve this much under-served population. Recruitment of at least 10 individuals that are able to provide Respite services to local families. Families expressing that they are able to step away from their stressors for a short time successfully.

Program Success Examples

The need for a Free Respite program to families are shown below in two messages from mothers who received services with us.

· “No matter what PIA accomplishes for any other family, and it will do much for many, know that it has kept our family together, and given our son heart healing caregivers who gave him friendship and hope. Thank you again so very much for changing our life!”- Mom, 10 yr. old, ASD

· “No matter how I tried to warn him, he didn’t understand the danger and precautions that we were taking for his safety. Soon, his clever mind knew how to “escape” from anywhere. At school, he was assigned a one on one but when he was home, my parents who were my sitters were no longer able to keep him contained. I had to lock the doors with keys every room in the house. We felt like prisoners in the house. We needed a key to use the bathroom! Imagine how unsafe it was (if there was any emergency) not to be able to leave the house in a timely matter.”- Mom, 11 y old, ASD

Description

We receive over 20 calls per week from persons needing information or guidance on how to obtain supports and services for their loved one living with a developmental disability. There is a clear need for training in this area.  We will discuss a different topic every month.

We will offer free respite so while the parent attends the training, the child and their siblings will be cared for by one of our trained Behavior Assistants or Respite Personnel. Snacks and activities will be provided by Parents in Action. We want it to be very accessible and easy for the parent to attend.

We (Sharon & Tammie) met at a training when our boys with autism were only two years old so we know how helpful it can be. We want our trainings to be something parents look forward to. It will also be a time to meet and socialize with other parents who truly understand you in addition to learning something new.


Budget $8,460
Category Human Services, General/Other Parenting Education
Program Linked to Organizational Strategy Yes
Population Served People/Families with People of Developmental Disabilities Children and Youth (0 - 19 years) Families
Short Term Success Parents will learn how to help their children with developmental disabilities. Parents will meet other parents of children with developmental disabilities. Children will be cared for by trained staff so parents can enjoy the training.
Long Term Success More services will be provided when parents learn how to access and advocate for them.
Program Success Monitoring We will ask parents to fill out a short survey after the training. 
Program Success Examples The way we are operating now we help each parent individually & the volume of requests for help is overwhelming.  Many have the same questions.  While we will always answer individual questions, this will help streamline getting the information out to the parents.  
Comments
Program Comments by Organization

In writing our programs and plans for presentation on the Giving Partner, I realized that we may seem overly ambitious to some viewing this for the first time. I believe that this is the perfect moment for me to back up a bit and explain where we are coming from and why we are approaching things as we are, and why with such urgency.

March 11, 2002, 11:29 AM is burned in my memory for very good reason. That was the exact moment that my life focus changed. That was the time my son Austin received his diagnosis of Autism. I was a Critical Care RN, loved my job, and was pregnant with my fifth child. It all came to a screeching halt with a few simple words, “You know he has Autism, right?”

The thing is, I was given no direction, no solutions, nothing. We were sent on our way to figure it out. What I found was appalling. 1 in 500 kids diagnosed with Autism at that time, although, sadly, those numbers have increased to 1 in 68 today. Parents wandered aimlessly, searching for answers that weren’t there. Applied Behavior Analysis was considered experimental, yet so promising, but was so unattainable due to cost that it only deepened your sorrow that you couldn’t provide it.

I quit my job as an RN just so I could qualify for Medicaid to get Austin Speech and Occupational Therapy. We lived in enforced poverty but I FOUND MY VOICE! I FOUND MY PURPOSE!

The turning point for me was when I found the quote from Einstein that says, “The definition of INSANITY is doing the same thing over and over and expecting a different result”.

From that point on, I fought in any way that I could. I educated myself about his rights and the systems designed to help him. I FORCED them to help him make great strides. When I succeeded in getting something everyone said could NEVER be done, I YELLED to other parents exactly how I did it, so that they could do it too.

Parents in Action is the result of families finding their voices and speaking up and saying that the status quo is JUST NOT GOOD ENOUGH! Every barrier we broke down fueled us to break down more. We won’t take “no” for an answer when it comes to our kids and what they need. We are not afraid to turn the existing system on its ear and make it work for our families.

Our Challenge is that we must take on the “status quo”, never accepting that “this is just how it is”. Our OPPORTUNITY is to assist the 1 in 68 diagnosed with Autism to be a part of EVERY COMMUNITY rather than just the AUTISM COMMUNITY.

CEO/Executive Director
CEO/Executive Director Ms. Sharon R Boyd
CEO Term Start Mar 2013
CEO/Executive Director Email Sharon.boyd@parentsinactioninc.org
Experience She founded and chaired the Southwest Florida Walk for Autism Speaks with her daughter, Elizabeth, and best friend, Tammie Baker. She became an outspoken advocate across the state of Florida and eventually beyond over her five years chairing the Walk, and eventually helped lead the Grassroots of the Florida Developmental Disabilities Community to pass Autism Insurance Reform in 2008.Her drive and passion for assisting families was noticed during the push for the legislation, and she was invited to join Autism Speaks Government Relations Team as the Advocacy Relations Coordinator.Sharon has always been a strong advocate for children and families in her private life as well as her business life. She has grown to be a well-respected advocate for Individuals with Disabilities Education Act issues, as well as issues dealing with all aspects of living with autism. Sharon and all five of her children make it a family mission to make life better for all those affected by autism. •Sharon left her position with Autism Speaks in December 2012, and knew immediately what her next career would be. She is committed to continuing to ensure that those affected by autism and their families receive the medically necessary treatment and supports and services needed to face this health care crisis. Parents in Action, Inc. is the next logical step for Sharon, and is her way to continue the fight. She believes strongly that complaining about a problem is useless unless you choose to be a part of the solution. Parents in Action, Inc. IS THAT SOLUTION.
Former CEOs/Executive Directors
NameTerm
Senior Staff
NameTitle
Staff & Volunteer Statistics
Full Time Staff 10
Part Time Staff 6
Staff Retention Rate % 81
Professional Development Yes
Contractors 3
Volunteers 6
Management Reports to Board Yes
CEO/Executive Director Formal Evaluation No
Senior Management Formal Evaluation Yes
Non-Management Formal Evaluation Yes
Collaborations

Agency for Persons with Disabilities: We represented providers and parents on these multi-disciplinary workgroups at the request of Director Palmer:

Applied Behavioral Analysis Oversight Workgroup

Coordinating Crisis Supports Workgroup

Intensive Behavior Workgroup

Behavior Analysis Practice Committee created in Florida Statute: President, Sharon Boyd appointed by Director Barbara Palmer from Agency for Persons with Disabilities

 

 

 
We are excited to have our office at the Charlotte County Family Services Center. We are now in the hub of services to the most desperately in need. We are a valued addition to the Center due to our expertise in Autism, which is having far-reaching effects for many of the families each agency is tasked with serving. We are needed and ready to help!
 

 

CareerSource Florida:

We are working with them to find candidates for on-the-job training, employing Florida residents who have passion and drive, by giving them the skills that are needed to succeed.

 

Fascination Advantage:

Sally Hogshead, the CEO of www.howtofascinate.com believes in our mission and is dedicated to helping us achieve it. She has donated assessments to us so that we may the see greatest value in each employee and how they contribute to the team. They have also donated assessments for any individuals on the Autism Spectrum to help them see their value and reach their goals.

 

Many of our long term goals involve collaborations with the community. We believe individuals with autism and other disabilities belong in and can be valuable members of their community. Embracing the differences between those on the Autism Spectrum and those in the community that are considered to be “typical” is mutually beneficial. It is only when this happens that we will truly see inclusion. 

 

External Assessments and Accreditations
Assessment/AccreditationYear
Risk Management Provisions
Government Licenses
Organization Licensed by the Government No
Plans
Fundraising Plan No
Communication Plan No
Strategic Plan No
Strategic Plan Years N/A
Strategic Plan Adopted 0
Management Succession Plan No
Continuity of Operations Plan No
Policies
Nondiscrimination Policy Yes
Whistle Blower Policy Yes
Document Destruction Policy Yes
Directors and Officers Insurance Policy No
Policies and Procedures Yes
Comments
Management Comments by Organization
  • Without outside funding, we have utilized and exhausted our personal funds to get Parents in Action up & running to help families. We tried to start slowly. We (President and VP) did all of the administrative duties as volunteers. We didn’t advertise for fear of being flooded with requests for help. Word spread anyway and the need for help quickly overwhelmed our capacity. We added a much needed Administrative Assistant to help to utilize the time that the Volunteer leaders had in a more efficient manner.

    In our early cases the families were unable to find providers. They were awaiting an appropriate place to transfer their loved ones who could no longer live at home due to uncontrolled aggression. Without our staff, these families were left alone and in danger. No family should have to WAIT in these circumstances!

    We chose to be PART OF THE SOLUTION rather than adding to the complaints. The current system is NOT PREPARED to handle the number of individuals diagnosed with Autism. Florida has a huge demand for behavior services and we developed a way to meet that demand but we do have challenges:

    • The demand for Board Certified Behavior Analysts (BCBAs) is huge and less than 20% accept Medicaid Coverage. Our solution was for Parents in Action to become a Medicaid provider and contract with them to provide the services. Even so, it has proven incredibly difficult to find the BCBAs we need so we are seeking grants to HIRE OUR OWN.
    • On top of  heavy client loads, BCBAs are expected to recruit, screen, train, and oversee Behavior Technicians. This is time-consuming and expensive. The result is that families lucky enough to get a BCBA to write a Behavior Support Plan have no Behavior Technicians to implement that plan. This is the equivalent of going to a doctor for a prescription and then not having a pharmacist to fill it. What is the point? Our solution was for Parents in Action to employ Behavior Technicians, taking on those burdens for the BCBA. We need more staff to interview, screen, train, and place RBTs as quickly as needed.
    • Our President, Sharon Boyd suffered two near fatal events in our first year and a half of service. This added to the load on the Vice President tremendously. Thankfully, she is back and working with us again to move this endeavor forward. We MUST have additional help from our community now that we have proven that our plan does, in fact, work!

    Multi-Media Comments by Organization

    Our initial video is included to show how we started on our mission, and why. We felt very strongly about sharing awareness with our community as a whole about the critical shortage of providers. This was the reason we posted this first video. We are currently filming various interactions between our staff and clients (with parent permission, of course) to increase understanding of the services that we provide. We can’t wait to share these amazing interactions with the community!

    Board Chair
    Board Chair Sharon R Boyd
    Company Affiliation Parents in Action Inc
    Board Term Mar 2013 to Dec 2016
    Board Chair Email sharon.boyd@parentsinactioninc.org
    Board Members
    Board Members
    NameAffiliation
    Tammie Baker Parents In Action
    Sharon Boyd Parents In Action
    Jean Felder Louis A Behavioral Approach
    Michelle Woods Assistant
    Constituency Includes Client Representation Yes
    Board Ethnicity
    African American/Black 1
    Asian American/Pacific Islander 0
    Caucasian 2
    Hispanic/Latino 1
    Native American/American Indian 0
    Other 0 0
    Board Gender
    Male 1
    Female 3
    Unspecified 0
    Governance
    Board Term Lengths 3
    Board Term Limits 99
    Board Orientation Yes
    Number of Full Board Meetings Annually 2
    Board Meeting Attendance % 100
    Board Self-Evaluation Yes
    Written Board Selection Criteria No
    Board Conflict of Interest Policy Yes
    % of Board Making Monetary Contributions 100
    % of Board Making In-Kind Contributions 100
    Comments
    Governance Comments by Organization

    In the beginning stages of Parents in Action, Inc., we looked within our immediate group of supporters and built our Board from them. We knew we had shared visions for what we were trying to accomplish and that seemed the best place to start. We knew that over time we would need to expand our Board to increase the input that we received from the communities that we serve as well as our fellow providers and support systems. We feel very strongly about having representation from our constituency. While we do have two parents of children living with autism on our board, a main focus is adding adults living with Autism Spectrum Disorders in Southwest Florida in order to help guide our efforts to be proactive in meeting their needs and the needs of our other constituents as they become adults needing services within this overwhelmed system. We also want more representation from parents, siblings, and other family members to include their experiences. We know that a Board with various areas of expertise will only make our organization stronger and suited to meet the needs of this community with the collaborations that are essential for success. This will take some time. Unfortunately, TIME is the thing that we, as leaders of every aspect of the organization, never seem to have. All of our efforts in grant writing and fundraising, as well as operating the business aspects of Parents in Action, are aimed at freeing our TIME to make this all possible. We do have a clear vision. We simply need the right people to see it, and believe enough to invest in it for the good of ALL of our community.

    Fiscal Year Projections
    Fiscal Year Begins 2016
    Fiscal Year Ends 2016
    Projected Revenue $250,000.00
    Projected Expenses $230,000.00
    Organization has Endowment No
    Capital Campaign
    In a Capital Campaign No
    Campaign Purpose
    Campaign Goal
    Campaign Dates 0 to 0
    Amount Raised To Date 0 as of 0
    Anticipate Campaign within 5 years? Yes
    Historical Financial Review
    Expense Allocation
    Fiscal Year201620152014
    Program Expense$110,693$236,693$251,195
    Administration Expense$3,133$11,825$26,310
    Fundraising Expense$232$653$0
    Payments to Affiliates$0$0$0
    Total Revenue/Total Expenses1.090.931.09
    Program Expense/Total Expenses97%95%91%
    Fundraising Expense/Contributed Revenue4%23%0%
    Assets and Liabilities
    Fiscal Year201620152014
    Total Assets$0$0$26,919
    Current Assets$0$0$26,919
    Long-Term Liabilities$0$0$0
    Current Liabilities$0$0$32,329
    Total Net Assets$0$0($5,410)
    Top Funding Sources
    Fiscal Year201620152014
    Top Funding Source & Dollar AmountMedicaid Billing Income $119,422Medicaid Billing Income $227,522Behavioral Services $277,728
    Second Highest Funding Source & Dollar AmountContributions, gifts, grants $5,248Contributions, gifts, grants $2,896Contributions, gifts, grants $25,473
    Third Highest Funding Source & Dollar Amount0 $0Discounts/Refunds Given $457Investment Income $2
    CEO/Executive Director Compensation $0 - $50,000
    Tax Credits No
    Solvency
    Short Term Solvency
    Fiscal Year201620152014
    Current Ratio: Current Assets/Current Liabilities----0.83
    Long Term Solvency
    Fiscal Year201620152014
    Long-Term Liabilities/Total Assets----0%
    Financials Comments
    Financial Comments by Organization

    In 2015 Parents in Action has:

    -Provided over $227,000 of services to families living with autism

    -Provided over 10,000 hours of Behavior Assistant Services

    -Provided over 1,000 hours of Respite Services

     Looking over our financial records has given us a real sense of accomplishment.  We rarely have time to slow down and think about what we have created here but this did make us pause and reflect on the difference we are truly making!  In 2014  and 2015 we provided over $500,000 of services to families living with Autism in SW Florida!  We (the President & the VP) are volunteers.  90% of our expenses are for programs & services.  This is no especially challenging considering the duties we are performing; serving clients, managing employees, billing Medicaid for services, etc.

    We are both proud and humbled when we receive a note or email from a parent thanking us for changing their lives.  The feeling is short-lived however as we think of how much more we have to accomplish and how many families are out there waiting for help.  What is limiting us the most is lack of funds. The Behavior Assistant Program is sustaining itself already but there is no surplus to expand.  We are hoping our financial records will serve as proof of what we can accomplish.  Three years ago we were two moms with a mission, hoping people would believe in us.  We had been told many times from the start that what we were seeking to do was impossible.  Now we have proven that we can do this.  We have earned our place among the many deserving organizations in our community.   Donors will know that funding us is not a gamble and the return on their investment will be immense.  An investment in Parents in Action WILL change the future for those that we serve.

    Financial Comments by Foundation For 2013, financial information taken from unaudited compilations, as the organization filed a 990-N. No balance sheet information has been provided for 2013.  For 2014, financial information was taken from the organization's Federal 990.  For 2015 and the short period 1/1/16-6/30/16, financial information taken from unaudited compilations. No balance sheet information is available for these periods.
    Nonprofit Parents In Action Inc
    Address 21450 Gibralter Drive
    Suite 2
    Port Charlotte, FL 5417
    Phone 941 625-1742

    THE COMMUNITY FOUNDATION OF SARASOTA COUNTY, INC. IS A REGISTERED 501(C)(3) NON-PROFIT CORPORATION. A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE WITHIN THE STATE (1-800-HELP-FLA) OR FROM THE WEBSITE: WWW.FRESHFROMFLORIDA.COM. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE. ONE HUNDRED PERCENT (100%) OF EACH CONTRIBUTION IS RECEIVED BY THE COMMUNITY FOUNDATION OF SARASOTA COUNTY. REGISTRATION #SC-02471.