Juvenile Diabetes Research Foundation International
5625 Strand Blvd
Suite 504
Naples FL 34110
Mission
JDRF's goal is to progressively remove the impact of T1D from people's lives until we achieve a world without T1D.
Leadership
CEO/Executive Director Carolyn Boos
Board Chair Steve Pino
Board Chair Affiliation Pharmacy
General Info
Organization DBA
DBA
JDRF Florida Suncoast Chapter
Supported Organization JDRF International
Tax Exempt Status Public Supported Charity
Incorporation Year 1970
State Charitable Solicitations Permit Yes Feb 2017
State Registration No 0
IRS Letter of Determination
View
Financial Summary
 
 
Projected Revenue $1,823,330.00
Projected Expenses $871,145.00
Impact Statement

Because of members of the JDRF family like you, we can report real progress in T1D research that will impact millions of people living with the disease. Together, we can celebrate achievements you helped make possible this past year such as:

  1. Beta cell encapsulation therapy that can create insulin independence for up to two years is moving to human safety testing.
  2. The Artificial Pancreas has shown great progress and is now legally available in Australia.
  3. Lucentis, the first new therapy with the ability to reverse diabetes-related vision loss in 30 years-creating a brighter future for millions.
Goals for this year include
1) Drive research progress to cure, treat, and prevent T1D, and compellingly demonstrate results so as to inspire greater support for our mission.

2) Meet or exceed our budgeted performance for topline public support AND net available to mission.

3) Utilizing an aggressive advocacy effort, influence others to fund T1D research and remove regulatory and commercial barriers to T1D therapies.
Needs Statement
The JDRF Florida Suncoast Chapter's upper five county region is most in  need of sponsorship support for the following community activities:
  1. The goal for the 2016 One Walk taking place in Lakewood Ranch is raising its goal to $185,000 total income for the Lakewood Ranch 2015 Walk.  Walk income will be derived from Corporate Teams, Family Teams, Cash sponsorships, National Corporations, Walk Sponsorship, Walk individuals, Walk Matching Gifts, Walk School Teams, and Walk Corporate Other Income.
  2. $38,500 in income for the JDRF Polo Cup.  This income we plan to solicit in the form of tickets, donations,sponsorships, and silent auction items.
Background Statement
JDRF was founded in 1970 by parents of children with type 1 diabetes (T1D). Since its founding JDRF has awarded more than $1.7 billion to T1D research.  More than 80 percent of JDRF's expenditures directly support research and research-related education.  Past JDRF research efforts have helped to significantly improve the care of people with this disease, and have expanded the critical scientific understanding of T1D.  JDRF will not rest until T1D is fully conquered.
Areas Served
Areas Served
Area
Internationally
FL- DeSoto
FL- Sarasota
FL- Manatee
FL- Hardee
Areas Served Comments JDRF is the leading global organization focused on type 1 diabetes (T1D) research. The Florida Suncoast Chapter serves an area in Southwest Florida that includes: Sarasota, Manatee, Highlands, DeSoto, Hardee, Glades, Hendry, Charlotte, Lee, and Collier counties.  
Service Categories
Primary Org Type Medical Research
Secondary Org Type Health Care
Tertiary Org Type
Statement from the Board Chair/Board President
Statement from the CEO/Executive Director
JDRF is the leading global organization funding type 1 diabetes (T1D) research. We were founded in 1970 by volunteers with the goal of finding the cure for T1D through the support of research.  In its first year of existence, JDRF raised $1 million for research.  Since that time, JDRF has invested over $1.7 billion in research.  JDRF’s goal is to progressively remove the impact of T1D from people’s lives until we achieve a world without T1D. JDRF collaborates with a wide spectrum of partners and is the only organization with the scientific resources, regulatory influence, and a working plan to better treat, prevent, and eventually cure T1D.  As someone who has lived with T1D for 39+ years, I have witnessed, first-hand, the vastly better therapies, the tremendous improvements in life expectancy, and the marvelous enhancements and improvements to our lives as a consequence of the leadership of JDRF in this mission.  Our Florida Suncoast Chapter is committed to funding the research and delivering outreach and education in our communities.
Programs
Description
JDRF's Outreach Program offers personalized support to families and adults living with type 1 diabetes (T1D). Our goal is to provide information and resources about T1D, diabetes research, and how best to manage and cope with this disease during each new phase of life.
 
The Outreach Programs include, but are not limited to:
  • Cups of Hope Coffees: Families meet with others dealing with T1D
  • Online Diabetes Support Team - Online forum for asking questions
  • Teen mentoring program
  • Adult T1D Group - Allows adults with T1D to network
  • School Advisory Toolkit - Materials to educate schools on T1D
  • Quarterly events that provide networking and informaitonal opportunites for our families.
  • Bag of Hope - For the newly diagnosed as they learn to manage T1D
Budget $25,000
Category Diseases, Disorders & Medical Disciplines, General/Other Diseases, Disorders & Medical Disciplines, General/Other
Program Linked to Organizational Strategy Yes
Population Served Adolescents Only (13-19 years) Adults People/Families with of People with Disabilities
Short Term Success
These Outreach Programs help provide a close network of individuals and families who are all managing the same disease. We work to help people of all ages who have T1D to network with others for support, advice and encouragement
Long Term Success
JDRF's mission is to find a cure for diabetes and its complications through the support of research. Funding is generated to support the following areas:
  • Immune Therapies - To stop the immune system attack on the body's insulin-producing beta cells that cause type 1 diabetes.
  • Beta Cell Therapies - Finding ways to restore the body's ability to make insulin through regeneration of insulin-producing beta cells and the replacement of beta cells lost to diabetes.
  • Glucose Control - Identify ways to dramatically improve blood glucose control while avoiding dangerous highs and lows in people at all stages of type 1 diabetes.
  • Complications Therapies - Free people from the devastating long-term complications that can accompany diabetes, including diseases of the eyes, nerves and kidneys.
Program Success Monitoring
We monitor program success through our budgeted goals as well as a survey that Outreach event attendees are given at the events.
Program Success Examples
The Outreach Program continues to grow each year, and we continuously integrate new elements to better accommodate the needs of those with T1D and their families.
 
In 2012 we held an new Adult T1D gathering in conjunction with a research update and it was well received offering a networking opportunity for adults to communicate about how they manage their own diabetes at different stages of life. Combined with the latest research
Description Adults in their 20's and 30's getting together in fun ways and supporting the JDRF mission.
Budget $0
Category Health Care, General/Other Health Care Equipment & Supplies Provision
Program Linked to Organizational Strategy Yes
Population Served Families
Short Term Success We have seen a generational gap between the students with type one and the parents of those students.  Those who are now grown professionals need to be able to speak with their peers. The young adults group meets in fun areas just for the chance to talk with one another and offer each other support.
Long Term Success The long term benefit is to JDRF in that their constituency continues to maintain numbers that will continue to support the research.
Program Success Monitoring Our Outreach Coordinator monitors attendance at each of the meetings and gives them suggestions for activities.
Program Success Examples  We began with one individual who said he would give it a try.  We now have 7 individuals that have been meeting quarterly.
CEO/Executive Director
CEO/Executive Director Carolyn Boos
CEO Term Start June 2015
CEO/Executive Director Email Cboos@jdrf.org
Experience

Carolyn Boos is the Executive Director, for the JDRF (Juvenile Diabetes Research Foundation) Tampa Bay Chapter. Carolyn has been the Chapter’s Executive Director for the past eight years overseeing the Chapter’s programs and services.

Prior to JDRF she was the Executive Director for the Alabama Chapter of the Leukemia & Lymphoma Society and Division Director for the March of Dimes.
She has served as Assistant General Manager for Visionland Theme Park in Birmingham, Alabama and Director of Public ImPressions the public relations division of +Willis Case Harwood Advertising Agency in Dayton, Ohio, and spent fifteen years as a marketing and public relations manager with Paramount Parks at Paramount’s Kings Island in Cincinnati, OH.
Former CEOs/Executive Directors
NameTerm
Senior Staff
NameTitle
Staff & Volunteer Statistics
Full Time Staff 4
Part Time Staff 0
Staff Retention Rate % 75
Professional Development Yes
Contractors 0
Volunteers 200
Management Reports to Board N/A
CEO/Executive Director Formal Evaluation Yes
Senior Management Formal Evaluation N/A
Non-Management Formal Evaluation Yes
Collaborations
We collaborate with Sarasota Memorial Hospital, All Children's Hospital and health care providers in the area. This year we are proud to announce the affiliation with LECOM University and Hendrick Honda Cars of Bradenton. In addition we collaborate with the local pharmacy reps and political leaders. This year we are collaborating with State College of Florida and the University of South Florida, Tampa campus. The University of Florida participated with our chapter as well this past year.
Affiliations
AffiliationYear
Greater Sarasota Chamber of Commerce
Affiliate/Chapter of National Organization
Manatee Chamber of Commerce
External Assessments and Accreditations
Assessment/AccreditationYear
Awards & Recognition
Award/RecognitionOrganizationYear
"All Star Charity"Forbes2012
"The foundation typically outperforms, in lobbying and funding, nearly ever other interest group around a particular disease."The New York Times
"Since its founding in 1970, JDRF has spent some $1.7 billion on research. It has a pile of accomplishments to show for it..."The Wall Street Journal
For the 13th year in a row, JDRF was topped ranked by the American Institute of Philanthropy-the only national diabetes organization to earn an "A" grade every year over this time period.American Institute of Philanthropy
Recognized as an "Accredited Charity: by the BBB's Wise Giving Alliance, JDRF meets all of the BB 20 standards for Charity Accountability and is accredited BBB Charity Seal HolderBetter Business Bureau
Risk Management Provisions
Government Licenses
Organization Licensed by the Government No
Plans
Fundraising Plan No
Communication Plan No
Strategic Plan No
Strategic Plan Years 4
Strategic Plan Adopted July 2013
Management Succession Plan No
Continuity of Operations Plan
Policies
Nondiscrimination Policy Yes
Whistle Blower Policy Yes
Document Destruction Policy Yes
Directors and Officers Insurance Policy No
Policies and Procedures Yes
Comments
Management Comments by Organization

Obviously, the challenges we face locally are similar to that of all nonprofits: the competition for the philanthropic dollar is fierce, and the ability to meet all the needs of our donors and volunteers is totally dependent upon our success in maximizing our fundraising efforts. We are a very efficient organization, and our efficiency stems from donor expectations and our committed focus on achieving our mission. To be this efficient, we have limited staff resources that have to be rationalized effectively, while partnering with volunteers and supporters who give us their time, energy, and resources. The support of local donors, foundations, and philanthropists will support our commitment to provide the deserved attention and stewardship locally to those in need of our programs and services.

Other Documents
Board Chair
Board Chair Steve Pino
Company Affiliation Pharmacy
Board Term July 2015 to June 2017
Board Chair Email Stevepharm63@yahoo.com
Board Members
Board Members
NameAffiliation
Diana Almeida Community Volunteer
Bob Beauregard Allegra Printing
Linda Clapp Community Volunteer
Mrs. Tammy Craft Community Volunteer
Dave DeVito Century Link
Mr. Maurice Gray Walmart DC
Jason Johnson Medtronic
Leon Kaplan Leon Kaplan & Associates
Mrs. Beverly Kennedy retired
Dr. Asjad Khan Lee Memorial
Jack Kuhn BMO Financial Group
Ean Lambert Centeranet Works
Taso Milonas Community Volunteer
Steve Pino Pharmaceutical
Tricia Rudd Community Volunteer
Mark Stevens Steven's Construction
Mr. Craig Wolf Sothebys Realty
Student serving on the board through Community Youth Development? No
Constituency Includes Client Representation Yes
Board Ethnicity
African American/Black 1
Asian American/Pacific Islander 0
Caucasian 15
Hispanic/Latino 0
Native American/American Indian 0
Other 0 1 Middle East
Board Gender
Male 12
Female 5
Unspecified 0
Governance
Board Term Lengths 2
Board Term Limits 3
Board Orientation Yes
Number of Full Board Meetings Annually 6
Board Meeting Attendance % 49
Board Self-Evaluation Yes
Written Board Selection Criteria Yes
Board Conflict of Interest Policy Yes
% of Board Making Monetary Contributions 100
% of Board Making In-Kind Contributions 75
Standing Committees
Executive
Nominating
Program / Program Planning
Special Events (Golf Tournament, Walk / Run, Silent Auction, Dinner / Gala)
Investment
Trusteeship
Project Oversight
Comments
Governance Comments by Organization

The Chapter Board is responsible for raising money and awareness of diabetes in the communities they serve. The Chapter Board does not assume fiscal oversight for the organization, but does ensure that the Chapter is following national policies and procedures. The board and staff work in partnership to achieve fundraising goals as established by JDRF. The Board is chosen by a Nominating Committee and then voted on by current Board Members and JDRF Members.

Fiscal Year Projections
Fiscal Year Begins 2016
Fiscal Year Ends 2017
Projected Revenue $1,823,330.00
Projected Expenses $871,145.00
Organization has Endowment No
Capital Campaign
In a Capital Campaign No
Campaign Purpose
Campaign Goal
Campaign Dates 0 to 0
Amount Raised To Date 0 as of 0
IRS Form 990s
9902014
9902013
9902012
9902011
9902010
9902009
Historical Financial Review
Revenue SourcesHelpThe financial analysis involves a comparison of the IRS Form 990 and the audit report (when available) and revenue sources may not sum to total based on reconciliation differences. Revenue from foundations and corporations may include individual contributions when not itemized separately.
Fiscal Year201420132012
Foundation and
Corporation Contributions
$0$0$0
Government Contributions$0$0$0
Federal$0$0$0
State$0$0$0
Local$0$0$0
Unspecified$0$0$0
Individual Contributions$77,389,865$68,863,648$67,880,737
$4,650,283$4,406,173$4,376,048
$0$0$650
Investment Income, Net of Losses$8,724,630$9,200,541$6,976,700
Membership Dues$0$0$0
Special Events$128,979,077$123,678,493$123,716,215
Revenue In-Kind$14,685,688$13,616,269$13,247,486
Other$136,667$74,636$117,723
Expense Allocation
Fiscal Year201420132012
Program Expense$171,195,390$169,806,654$167,678,014
Administration Expense$17,938,120$15,986,558$14,759,158
Fundraising Expense$26,572,210$23,702,529$22,914,668
Payments to Affiliates$0$0$0
Total Revenue/Total Expenses1.020.980.99
Program Expense/Total Expenses79%81%82%
Fundraising Expense/Contributed Revenue13%12%12%
Assets and Liabilities
Fiscal Year201420132012
Total Assets$207,538,339$196,040,120$187,007,468
Current Assets$64,243,759$176,159,736$174,112,457
Long-Term Liabilities$2,411,967$2,459,831$0
Current Liabilities$161,265,000$160,049,984$150,608,537
Total Net Assets$43,861,372$33,530,305$36,398,931
Top Funding Sources
Fiscal Year201420132012
Top Funding Source & Dollar AmountFundraising $128,979,077Fundraising $123,678,493Fundraising $123,716,215
Second Highest Funding Source & Dollar AmountContributions, gifts, grants $77,389,865Contributions, gifts, grants $68,863,648Contributions, gifts, grants $67,880,737
Third Highest Funding Source & Dollar AmountInvestment Income $8,724,630Investment Income $9,200,541Investment income $6,976,700
CEO/Executive Director Compensation
Tax Credits No
Solvency
Short Term Solvency
Fiscal Year201420132012
Current Ratio: Current Assets/Current Liabilities0.401.101.16
Long Term Solvency
Fiscal Year201420132012
Long-Term Liabilities/Total Assets1%1%0%
Financials Comments
Financial Comments by Organization

As an organization we have been successful in funding a great deal of successful research which has allowed us to move from 10 clinical trials to over 50 clinical trials in a short time period including $120 million of research here in Florida since the year 2000.   Of this amount, we still have over $30 million of these outstanding research grants to fund. As we move research from the laboratory to clinical trials it becomes more expensive, and the amount of funds required to ultimately deliver therapies to individuals with T1D becomes increasingly challenging. Additionally, because of the need to maximize fundraising for our research, it limits our ability to deliver programs in the marketplace for individuals and families affected by T1D. Local funding is needed to help support local programs.

Financial Comments by Foundation
The financials reported are based on the international organization. Foundations and corporations are included with individual contributions as they were not separated in the 990s or audits.  The Federal 990s reconcile with the audited financial statements. The figures reflected in the audited financial statements are rounded to the nearest thousand; accordingly, there are minor differences due to rounding.
Nonprofit Juvenile Diabetes Research Foundation International
Address 5625 Strand Blvd
Suite 504
Naples, FL 34240
Phone 941 685-6875

THE COMMUNITY FOUNDATION OF SARASOTA COUNTY, INC. IS A REGISTERED 501(C)(3) NON-PROFIT CORPORATION. A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE WITHIN THE STATE (1-800-HELP-FLA) OR FROM THE WEBSITE: WWW.FRESHFROMFLORIDA.COM. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE. ONE HUNDRED PERCENT (100%) OF EACH CONTRIBUTION IS RECEIVED BY THE COMMUNITY FOUNDATION OF SARASOTA COUNTY. REGISTRATION #SC-02471.