All Children’s Hospital Guild, Inc.
PO Box 3142
St Petersburg FL 33731
Mission
To advocate, volunteer, and fundraise for children and families of Johns Hopkins All Children's Hospital.
Leadership
CEO/Executive Director No Exec Director
Board Chair Mrs Pat Ballance
Board Chair Affiliation Chairman
General Info
Supported Organization All Children's Hospital Foundation
Tax Exempt Status Public Supported Charity
Incorporation Year 1952
State Charitable Solicitations Permit Yes July 2017
State Registration 0
IRS Letter of Determination
View
Financial Summary
 
 
Projected Revenue $37,452,500.00
Projected Expenses $2,317,500.00
Impact Statement

In June 2015, the Guild completed a three-year $900,000 pledge, acatually raising $1,000,000, for Palliative Care. The Pediatric Palliative Care Program at All Children's Hospital helps provide a coordinated, comprehensive, and compassionate approach to caring for children with life-limiting or potentially life-threatening illnesses and injuries. The Guild's gift will create an endowment to expand and sustain the multidisciplinary Palliative Care Program. In addition it will establish a Palliative Care Fellowship to provide training, enhance direct patient care and provide much need medical research and education in Palliative Care.

As of July 2015 the Guild embarked on a four-year $1,350,000 Pledge to achieve Magnet Status - a gold standard for Nursing Excellence -  and a state of the art Hospital Transport.
 
In addition, each Branch has a Legacy Fund where monies support timely and urgent needs of the hospital and the ACH Outpatient Care Sarasota.  This includes research funding, program or clinical support, and advocacy or educations support.  In addition, the Voice Lab with Visi-Pitch and Nasometer equipment has been funded at ACH Outpatient Care Sarasota.
 
Fundraisers in 2015-2016 including 3rd party:
Miracle Ball - February 21, 2015
Kids for Kids Dash - April 11, 2015
Give Back Nite for Kids at Grasshoper Restaurant - May 4, 2015
19th Annual Luncheon - October 3, 2015
Miracle Ball - February 27, 2016
 
All donations raised will fund the NAS program, special requests from the Outpatient Care Sarasota ,the Nursing Magnet Program and a new state of the art Ambulance Transport at All Children's Hospital.
Needs Statement
Needs for 2016-2017:
  1. Four year $1,350,000 Pledge for Excellence in Nursing Program and a Hospital Transport.
  2. Neonatal Abstinence Syndrome (NAS) program
  3. Outpatient Center in Sarasota:  special requests include... MOTOmed Gracile 12 movement trainer.
  4. Others related to ABA or other programs
Background Statement

All Children's Hospital Guild is a volunteer service organization which advocates, volunteers, and fundraises for children and families of All Children's Hospital. It was formed in 1949 in St. Petersburg, Florida and has grown to more than 450 members and nine Branches.  The nine Branches cover four counties, with further expansion plans across Florida in the works. Our current Branches are St. Petersburg Day, St Pete Beach, Seminole/Largo, North Pinellas, St. Petersburg Evening, Pasco, Sarasota/Manatee, Tampa, and Brandon. The Branches host more than fifty fundraising events throughout the year in our effort to support this mission. Events include galas, golf tournaments, fashion shows, polo event, bunco parties and much more.Our vision is supporting healthy tomorrows for one child, for All Children.

 

Our history of caring

The Sarasota/Manatee Branch was organized in 1997 by a handful of dedicated, energetic volunteers and it has continued to grow since then. The funds raised support not only the Hospital but also the All Children’s Hospital Outpatient Centers here in Sarasota . 100% of the funds raised go to benefit local children of our community.


Over the years, our local Sarasota/Manatee Branch has provided philanthropic support for All Child Hospital Outpatient Center in our community and the Hospital. Some of the projects that we have funded since 1997 include:

  • A Therapeutic Playground for the Outpatient Center in Sarasota
  • Wheelchair & premature scales, other specialized equipment for newborns
  • The Neonatal Abstinence Syndrome (NAS) clinical study and follow up care of babies born addicted to drugs in the Sarasota community
  • The Applied Behavior Analysis (ABA) Program which assists children with challenging behavior problems through treatment at the Outpatient Centers of Sarasota and Lakewood Ranch 
  • At the Hospital our branch along with the other 8 branches have funded the Neonatal Intensive Care Unit (NICU) in the new All Children’s Hospital, as well as a Palliative Care Program


Areas Served
Areas Served
Area
FL- Sarasota
FL- Manatee
FL-Pinellas
FL- Hillsborough
Areas Served Comments

The All Children’s Hospital guild branches; St. Petersburg Day, St. Petersburg Beach, Seminole/Largo and St. Petersburg Evening offer support to the hospital directly for these branches are located in Pinellas County. The other branches, North Pinellas, Pasco, Sarasota/Manatee, Brandon and Tampa offer outreach support to the All Children's Outpatient Care Locations. These OCC locations bring high quality pediatric services closer to home for children and families in the Tampa Bay region and beyond. More children and their families get the care that they need close to home with the help of the All Children's Outpatient Care Locations.

Service Categories
Primary Org Type Health Care
Secondary Org Type Health Care
Tertiary Org Type Human Services
Statement from the Board Chair/Board President
Programs
Description Neonatal Abstinence Syndrome (NAS) is a growing problem among infants in Sarasota County. There has been an increase of approximately 700% of babies exposed prenatally to addictive drugs who exhibit physical and behavioral symptoms of NAS after birth. Most end up in the Neonatal Intensive Care Unit (NICU) at Sarasota Memorial Hospital. 

 

A new Follow-Up Clinic at All Children's Outpatient Care Center in Sarasota will give these babies, discharged from the NICU at Sarasota Memorial, access to a variety of special services to help them overcome NAS. The clinic is being funded by a $70,000 grant from the All Children's Hospital Guild Sarasota/Manatee Branch.

"We are concerned about the impact of NAS on babies," said Shirley Jankelevich, M.D., an All Children's Hospital physician who will lead the clinic. "The Follow-Up Clinic will help us provide support for these infants and their families."

The Follow-Up Clinic will offer a variety of services, including: Occupational and Physical Therapy, Speech Therapy, Feeding Therapy and Applied Behavior Analysis. The Healthy Start Coalition of Sarasota will supply a social worker to assist families in the program.

"This program will help give babies a new lease on life," said Kay Aidlin, President of the All Children's Hospital Guild Sarasota/Manatee Branch. "We are happy to provide the funding to support such a needed program in the Sarasota community."

Budget $70,000
Category Health Care, General/Other Maternal & Infant Care
Program Linked to Organizational Strategy Yes
Population Served Infants to Preschool (under age 5) Infants to Preschool (under age 5) Infants to Preschool (under age 5)
Short Term Success
Infant needs identified through early assessment during clinic visits:
36% of new patients received PT evaluation referral
60% of these patients continued to receive physical therapy treatment
43% of new patients received SLP evaluation referrals for feeding
71% of all patients seen received a recommendation for sub-specialty evaluation (neuroly, urology, ent, pulm, cardiology, etc.)
43% of new patients received a referral recommendation for diagnostic testing or labs
Long Term Success
Assist in maintaining safety and wellbeing of the infant or child
Secure relationships with infant, mother or caregiver
Promote progress in motor, cognitive, speech and language skills and development
Promot ability to self-regulate activity, attention and affect
Research findings will assist in developing treatment intervention for infants, children and caregivers during critical developmental years
Program Success Monitoring
Statistacl data is collected to determine outcomes related to maintaining safe and secure caregiver relationships
Periodic surveys of parents and caregivers will determine program effectiveness and need for implementation of additional services or education
Program Success Examples
See above statistics
We are the only clinics serving the NAS population in our area.
This unique team and community approach is serving the multiple needs of NAS infants and their families to utilize the expertise of highly specialized pediatric professionals, that is not found in a non-clinic type of medical setting
Description

The Palliative Care Program at All Children's Hospital is designed to provide an active and comprehensive interdisciplinary approach to serving children who are our patients with life-threatening or life-limiting conditions. The interdisciplinary team includes physicians, a nurse practitioner, a social worker, a child life specialist, and a chaplain. The team focuses on enhancing the quality of life for the child and family throughout the trajectory of the child’s illness. In addition to dealing with medical issues surrounding chronic illness, the team addresses the emotional, psychological, and spiritual needs of the child and family.

Budget $72,756,200
Category Health Care, General/Other Patient & Family Support
Program Linked to Organizational Strategy Yes
Population Served Children and Youth (0 - 19 years) Children and Youth (0 - 19 years) Children and Youth (0 - 19 years)
Short Term Success

The program is 2.5 years old. Our measure of success is based upon growing the program and increasing the number of patients referred to the Palliative Care Program. Our referrals have shown good growth since the program’s inception:


FY



New
Consults



Readmitted
Consults



Total



Feb 2012-Jun 2012 (4 mos.)



15



9



24



Jul 2012-Jun 2013 (12 mos.)



57



24



81



Jul 2013-Jan 2014 (6+ mos.)



40



37



77



TOTAL



112



70



182


We are on track for an annualized volume of 150+ total patient consults.

Long Term Success

The Palliative Care Team is able to follow the child throughout the trajectory of the child’s illness and provide consistency throughout the child’s multiple admissions to the hospital. The consistent follow-up allows for clarity of communication regarding the child’s and family’s goals of care to the usually multiple sub-specialists involved in caring for the child. The team is also able to identify what is the family’s definition of quality of life for their child.


We work in partnership with palliative care providers in the community.

Program Success Monitoring

We are in the process of developing a family satisfaction survey to measure our long-term success.

We currently are monitoring the number of consults requested, the length of stay, referrals to community palliative care programs, and deaths that occur outside of the ICU setting. We will begin to look at other outcome monitors as our program matures.

Program Success Examples

 BENEFITS

  • The Palliative Care Team provides consistency of care by following the patient during multiple hospitalizations throughout the illness.
  • The Team is an extra support for the patient,family,and health care team; available to have in depth conversations on a daily basis if needed.
  • The Team can develop care goals consistent with the patient’s and family’s definition of quality of life and advocates for the patient and family.

Scenario: Jim was a 5-month old baby,in NICU since birth,with a large tumor in his neck, when he was referred to Team Hope for palliative care services. Despite all the physicians’ efforts,nothing could stop the tumor’s growth. He had breathing and feeding tubes,and on a ventilator. Team Hope was consulted to work with the parents to determine what their goals were.

The family wanted to bring Jim home for what time he had left. Although hospice care was discussed,they did not want him to go to an inpatient hospice. The family learnt how to care for Jim at home, including breathing tube and ventilator care. Team Hope and the primary care team worked with community resources for home nursing care and home visits from a pediatrician.
 
Team Hope provided support to the family to help them understand his condition and what to expect when he got home. The health care team did not think that his life expectancy would be very long. The child life specialist helped with memory-making,the chaplain helped the family discuss spiritual values and the social worker helped get services in place in the home. He was discharged at the end of November.
 
As of today, Jim is still with us. His mother says he is happy,interacts with his family and is walking. While we don’t know how long Jim will be with us,we think he has continued to survive because of the positive experience of being at home. Without Team Hope’s involvement, Jim may have lived out his life in the hospital. Quality of life is what palliative care is all about.
Description
The trainer gently moves the child's legs or arms.  It will be used with children with cerebral palsy, stroke, cardiac surgery, cancer and other acute and chronic diagnoses.  Either passive, motor assisted or active resistive training is used with the child's own muscle strength, as selected by the occupational or physical therapist.  Movements are smoothly controlled, like bicycling.  Children can train from a chair, wheelchair or lying down.  Movement is critical for children to learn, interact with peers and play, and this equipment will help them to achieve their goals.
Budget $9,345
Category Health Care, General/Other Occupational Therapy
Program Linked to Organizational Strategy Yes
Population Served Children Only (5 - 14 years) Children Only (5 - 14 years) Children Only (5 - 14 years)
Short Term Success
There is a specially developed MOTOmed game which can make the game character Max jump up, by engaging the right and left side of the child's body. Due to the simple and fun principle of the game, physical activity is rewarded and the user is motivated to train for a longer time.  Many children who need physical therapy may be coming for long period of time and equipment like the MOTOmed helps them to enjoy therapy as well as participate longer in the strengthening exercises.   
Long Term Success
The passive MOTOmed movement can lead to a reduction in muscle tone for children with spasticity and it prevents the shortening of muscles and the occurrence of contractures.  In addition, it allows children to develop strength in their arms and legs through fun and motivating exercise.  This strength will translate over to functional gains with things like standing, walking and climbing stairs.   
Program Success Monitoring
Success is measured on a case by case basis for each child.  Therapists determine specific functional goals for children and the MOTOmed help them to meet these goals.   
Program Success Examples
Success of using the MOTOmed will be determined by how long children participate on the trainer compared to typical therapeutic exercise, their satisfaction with the equipment as well as their success with meeting their functional goals.   
Comments
Program Comments by Organization
The MOTOmed  Movement Trainer still requires $6,000.00 which can be given in increments of $1,000.00.
CEO/Executive Director
CEO/Executive Director No Exec Director
CEO Term Start 0
CEO/Executive Director Email llanda@comcast.net
Former CEOs/Executive Directors
NameTerm
Senior Staff
NameTitle
Staff & Volunteer Statistics
Full Time Staff 0
Part Time Staff 0
Staff Retention Rate % N/A
Professional Development No
Contractors 0
Volunteers 450
Management Reports to Board N/A
CEO/Executive Director Formal Evaluation N/A
Senior Management Formal Evaluation N/A
Non-Management Formal Evaluation N/A
Collaborations
All Children's Hospital and Johns Hopkins Medicine:  Founded in 1926 as the American Legion Hospital for Crippled Children, All Children’s Hospital in St. Petersburg, FL has grown into a leading pediatric referral center for children with some of the most challenging medical problems. More than 250 pediatric specialty physicians provide state-of-the-art care in 43 medical and surgical programs. In April 2011, All Children's Hospital became part of the Johns Hopkins Health System (JHHS) as a fully integrated member of Johns Hopkins Medicine (JHM). All Children's becomes the first US hospital outside of the Baltimore/Washington DC region to achieve membership within JHM, which includes The Johns Hopkins University School of Medicine and the Johns Hopkins Hospital and Health System. All Children's Hospital and Johns Hopkins are working together to expand pediatric medical education and research opportunities in St. Petersburg while providing world-class care for all of Florida’s children.
External Assessments and Accreditations
Assessment/AccreditationYear
Risk Management Provisions
Government Licenses
Organization Licensed by the Government Yes
Plans
Fundraising Plan No
Communication Plan No
Strategic Plan Yes
Strategic Plan Years 3
Strategic Plan Adopted Aug 2012
Management Succession Plan No
Continuity of Operations Plan No
Policies
Nondiscrimination Policy Yes
Whistle Blower Policy No
Document Destruction Policy No
Directors and Officers Insurance Policy Yes
Policies and Procedures Yes
Board Chair
Board Chair Mrs Pat Ballance
Company Affiliation Chairman
Board Term July 2015 to June 2016
Board Chair Email patballance@yahoo.com
Board Members
Board Members
NameAffiliation
Mrs. Pat Ballance Chair-Elect
Jennifer Greene Treasurer Elect
Judy Keyak Treasurer
Paula Keyser Corresponding Secretary
Lydia H Landa Treasurer Elect
Rachael Russell Recording Secretary
Student serving on the board through Community Youth Development? No
Constituency Includes Client Representation Yes
Board Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 4
Hispanic/Latino 1
Native American/American Indian 1
Other 0 0
Board Gender
Male 0
Female 6
Unspecified 0
Governance
Board Term Lengths 1
Board Term Limits 1
Board Orientation Yes
Number of Full Board Meetings Annually 9
Board Meeting Attendance % 79
Board Self-Evaluation Yes
Written Board Selection Criteria No
Board Conflict of Interest Policy Yes
% of Board Making Monetary Contributions 100
% of Board Making In-Kind Contributions 100
Standing Committees
Board Governance
Executive
Finance
Membership
Nominating
Special Events (Golf Tournament, Walk / Run, Silent Auction, Dinner / Gala)
Strategic Planning / Strategic Direction
Technology
Communications / Promotion / Publicity / Public Relations
Fiscal Year Projections
Fiscal Year Begins 2015
Fiscal Year Ends 2016
Projected Revenue $37,452,500.00
Projected Expenses $2,317,500.00
Organization has Endowment No
Endowment Spending Policy N/A
Capital Campaign
In a Capital Campaign No
Campaign Purpose
Campaign Goal
Campaign Dates 0 to 0
Amount Raised To Date 0 as of 0
Audit/Financial Documents
Historical Financial Review
Expense Allocation
Fiscal Year201420132012
Program Expense$689,790$619,858$598,323
Administration Expense$48,056$40,585$45,895
Fundraising Expense$9,633$8,584$9,323
Payments to Affiliates$0$0$0
Total Revenue/Total Expenses1.000.941.05
Program Expense/Total Expenses92%93%92%
Fundraising Expense/Contributed Revenue------
Assets and Liabilities
Fiscal Year201420132012
Total Assets$65,290$63,438$102,007
Current Assets$65,290$63,438$102,007
Long-Term Liabilities$0$0$0
Current Liabilities$0$0$0
Total Net Assets$65,290$63,438$102,007
Top Funding Sources
Fiscal Year201420132012
Top Funding Source & Dollar AmountEvening Branch $247,198Evening Branch $262,837Evening Branch $221,090
Second Highest Funding Source & Dollar AmountSarasota Branch $152,494Net Income from Sales of Inventory $118,628Net Income from Sales of Inventory $124,240
Third Highest Funding Source & Dollar AmountNet Income from Sales of Inventory $111,759Seminole/Largo Branch $76,911Sarasota Branch $112,566
CEO/Executive Director Compensation
Solvency
Short Term Solvency
Fiscal Year201420132012
Current Ratio: Current Assets/Current Liabilities------
Long Term Solvency
Fiscal Year201420132012
Long-Term Liabilities/Total Assets0%0%0%
Financials Comments
Financial Comments by Organization
ALL revenues received by All Children's Hospital Guild, Inc. are donated to the appropriate Outpatient Care Centers, and needed programs at All Children's Hospital through All Children's Hospital Foundation.
Financial Comments by Foundation Financial information taken from IRS Form 990.
Nonprofit All Children’s Hospital Guild, Inc.
Address PO Box 3142
St Petersburg, FL 34238
Phone 727 767-3879

THE COMMUNITY FOUNDATION OF SARASOTA COUNTY, INC. IS A REGISTERED 501(C)(3) NON-PROFIT CORPORATION. A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE WITHIN THE STATE (1-800-HELP-FLA) OR FROM THE WEBSITE: WWW.FRESHFROMFLORIDA.COM. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE. ONE HUNDRED PERCENT (100%) OF EACH CONTRIBUTION IS RECEIVED BY THE COMMUNITY FOUNDATION OF SARASOTA COUNTY. REGISTRATION #SC-02471.