Parkinson Research Foundation Inc
5969 Cattleridge Blvd
Suite 100
Sarasota FL 34232
Mission

The MISSION of the PARKINSON RESEARCH FOUNDATION is to help find a cure for Parkinson’s disease through funding research, while providing education and services that improve the quality of life TODAY for Parkinson patients and their caregivers.  

Leadership
CEO/Executive Director MR Lawrence S Hoffheimer
Board Chair Mr Lawernce S Hoffheimer
Board Chair Affiliation Chairman and CEO Parkinson Research Foundation
General Info
Organization DBA
DBA
Parkinson Research Foundation, Inc
Supported Organization Parkinson Place
Tax Exempt Status Public Supported Charity
Incorporation Year 2003
State Charitable Solicitations Permit Yes Jan 2018
State Registration Yes 0
Financial Summary
 
 
IRS Letter of Determination
Name
PRF IRD Determination LtrView
Impact Statement
Accomplishments:
1. Provide funds for Parkinson Place, an 11,000 sq. ft. Comprehensive Care Center in Sarasota Florida, dedicated exclusively to meeting the physical, mental, emotional and social needs of Parkinson patients and caregivers.  Parkinson Place includes on site USF Parkinson Clinic,  a full service medical clinic, and psychology department, a full service physical therapy department, and  over 60 free evidence based programs per month led by licensed professionals.
 
2. Provide ongoing empowerment, educational and support programs for Parkinson patients, caregivers and community.
 
3. Provides for free 5 different evidence based free exercise programs to benefit Parkinson patients and caregivers.
 
4. Provide and maintain two sophisticated websites and  free video webcasts to better serve the Parkinson Community locally, nationally and on an international level.
 
5. Provide ongoing educational conferences with faculty to include noted experts in the field.
 
Top Goals:
1. Increase awareness and fundraising efforts to sustain and grow current and future programs to better serve the Parkinson Community. 
 
2. Educate healthcare providers regarding Parkinson care management, cutting edge procedures and the latest therapies available.  
 
3. Develop a Parkinson  resource and referral hub that supports quality medical care, emotional wellness and quality of life for patients and families.
 
 
Needs Statement
1. Finances: Parkinson Place  and comprehensive care center, a program of PRF, offering over 60 free programs each month had a 2016 operating budget of approximately $500,00.00.  2018 proves to be a higher operating budget due to facility expansion and additional free programming and onsite services. Approximately $ 150,00.00 would assure revenue for current and future growth and program development.
 
2. Fundraising:  Currently the majority of donations are secured from direct mail efforts.  Our current goal is to include additional fundraising opportunities such as events, corporate donations, grants endowments annual fundraising drive and contributions from individuals who have benefited from our services. In 2017 numerous local business and community sponsors did small fundraising events to help support our annual operating budget.
 
3. Volunteers:  Currently operations at Parkinson Place is accomplished by a minimal staff of 4 paid employees.   Volunteer help from the community and Parkinson Place members is essential for continued growth.
Background Statement
Areas Served
Areas Served
Area
FL- Sarasota
FL- Manatee
FL- Charlotte
FL- DeSoto
FL-Pinellas
FL- Hillsborough
Areas Served Comments
Parkinson Place serves the greater Sarasota area but appeals to residents of surrounding counties due to the unique services provided.  With easy access to the I-75 north and south corridor  Parkinson Place draws from Sarasota, Manatee, Charlotte, DeSoto, Pinellas and Hillsborough counties.  
 
The ParkinsonPlace.org website outreach program is available to all 50 states as well as any foreign land with internet accessibility.  The ParkinsonResearch Foundation.org website has an international reach as well.  At present researchers, physicians, healthcare professionals and the public are viewing both sites daily. 
 
 
Service Categories
Primary Org Type Human Services
Secondary Org Type Health Care
Tertiary Org Type
Statement from the Board Chair/Board President
Programs
Description Parkinson Place comprehensive care center originally a 7500 sq. ft. site opened September 2012 offering 16 programs per month. Today it has expanded to 11,000 sq. ft. offering over 60 free educational and participation programs each month free to its members.  PARKINSON PLACE is dedicated exclusively to the physical, mental, emotional and social needs of those living with Parkinson’s disease. Offering special activities and social events that keep patients and caregivers engaged with life.  Programs are instructed by licensed professionals and experts in the field. All participation programs are ability based and can be performed standing or sitting in a chair so everyone can participate.  Open 9am - 4:30pm Monday through Friday, membership and classes are FREE.  
Budget $500,000
Category Human Services, General/Other Services for Individuals with Disabilities
Program Linked to Organizational Strategy Yes
Population Served Elderly and/or Disabled People/Families with of People with Disabilities Poor,Economically Disadvantaged,Indigent
Short Term Success Short Term goal :85%  of male and female participants note immediate improvement of their mental and emotional state followed by improved physical function with continued participation. Sense of self and motivation levels improve immediately due to sociability, physical activity and strong peer support.
Long Term Success To increase physical function, emotional wellness and quality of life for those diagnosed with this progressive degenerative neurological disorder for which there is no cure. There is no data to quantify long term success of this program based on the natural progression of the disease the anticipated outcome without a cure is continued decline followed by death. To assure the best possible out come continued emotional and physical support for the patient and family remain the top goal long term for this program.  
Program Success Monitoring We track success by various means: surveys, personal interviews and testimonials, physician documentation noting physical and emotional improved status. Noted stress reduction and coping skills for Parkinson caregivers. 
Program Success Examples
One caregiver remarked "Parkinson Place has saved our lives!  I don't know what we would have done without it!"  
Another Parkinson patient remarked "I have never been so happy, I have friends now and no one looks at me strange.  They all understand what I am going through!"
Another said "Miracles happen at Parkinson Place!"
Description Juan Sanchez-Ramos, MD, PhD, a Fellowship Trained Movement Disorders Specialist, serves as the PRF Medical Director  and director of the USF Parkinson Clinic at Parkinson Place.   Dr. Sanchez-Ramos see complex Parkinson patients every Wednesday at the Sarasota location.  
Budget $58,180
Category Diseases, Disorders & Medical Disciplines, General/Other Parkinson Disease
Program Linked to Organizational Strategy Yes
Population Served People/Families with of People with Disabilities Poor,Economically Disadvantaged,Indigent Elderly and/or Disabled
Short Term Success Short Term success for Parkinson Research Foundation is to increase our contribution to the USF Center of Excellence by double in 5 years. 
Long Term Success Long term goals for this program is to have a world class research facility for Parkinson's Disease at the Tampa USF campus.  We would like to see the cure for Parkinson's disease come from the Parkinson Research Foundation USF Center of Excellence.
Program Success Monitoring Program success is monitored by Doctor's notes and results from research and trials.
Program Success Examples Sarasota Manatee Medical News reported on research by Dr. Sanchez-Ramos the Medical Director of the Parkinson Research Foundation's Center of Excellence and his research team. In the journal Experimental Neurology, the team detailed how the cells in bone marrow can, at least in laboratory conditions, be coaxed to develop into immature neurons and glial cells — the supporting cells of the brain. The restructured cells also contain several neural proteins....In fact, the paper authored by Sanchez-Ramos and his colleagues has been something of a sensation in the world of neurological research.  "Our paper now has more than 500 citations to it, so it's very significant," he noted.

That means they could potentially be used to repair damage to the brain caused by Parkinson's and other conditions, Sanchez-Ramos said.
Description
Parkinson patients, caregivers and the health care professionals are  provided free and easy access to the latest in Parkinson research, treatment options and clinical advancments.  Parkinson Research Foundation maintains two  sophisticated websites. www.parkinsonresearchfoundation.org  focuses on current updates, research and education. www.parkinsonplace.org  offers awareness about local education and participation programs as well as special events. A comprehensive video library of classes and educational programs are available for viewing online.  Both site's  have an international reach and are visited  daily by Parkinson patients, caregivers, physicians, researchers and related healthcare professionals. 
Budget $300,000
Category Human Services, General/Other Services for Individuals with Disabilities
Program Linked to Organizational Strategy Yes
Population Served Elderly and/or Disabled People/Families with of People with Disabilities Poor,Economically Disadvantaged,Indigent
Short Term Success
 The short term goal of the sites is to increase knowledge of the condition, inform on the latest research and provide programs to improve the quality of life NOW for Parkinson patients and their caregivers.   The ability to provide education and help for a shut in or a person outside an area where they can receive services to help improve their quality of life is an integral mission of the websites.  If an individual follows the programs already on the sites they could increase their quality of life by a estimated 10% per program. 
Long Term Success
The long term success of this program lies in the ability to reach as many Parkinson Patients, Caregivers and those of the various Medical communities that deal with this debilitating disease.  As knowledge of our sites increase the free help that many so desperately need will be available to them even though they live elsewhere in the world.  Due to this the success rate could prove to be a 75% behavior change in the Parkinson patient and caregiver as to their quality of life.  The medical community may be more informed about evidence based programs that really work in practice not just in theory.
Program Success Monitoring
Feedback from comments on the website, Facebook, Twitter and email we receive from the international Parkinson community, researchers and physicians.
Program Success Examples
A researcher from China commented on the Parkinson Research Site about how he appreciated the latest news on Parkinson Research coming out on our site.  He also appreciated the Ask the Doctor videos on the Parkinson Place site as well as the exercise videos that he can use in his research and recommend to Parkinson patients in China.
 
Another person commented on the fun events we post from our social activities.  She comments that "I am a shut in and really enjoy seeing people have a good time."  She also said "I enjoy the Parkinson Power program, it helps me deal with my problems in a positive way. Thank You!"
Description Onsite ARNP and Physician office visits by appointment or walk in opportunity. Full service medical clinic offers screenings, physical examinations, lab work, specialty referrals, flu shots, etc...
Budget $50,000
Category Health Care, General/Other Health Care, General/Other
Program Linked to Organizational Strategy Yes
Population Served Elderly and/or Disabled Families Adults
Short Term Success This clinic start date in July 1 2016- therefore no data available to date.
Long Term Success
This clinic start date in July 1 2016- therefore no data available to date.
 
Program Success Monitoring 1600 Parkinson Place members and adults in the community are well served by the superior care, convenience and timely appointment availability.
Program Success Examples This clinic start date July 1 2016- therefore no data available to date.
CEO/Executive Director
CEO/Executive Director MR Lawrence S Hoffheimer
CEO Term Start Jan 2014
CEO/Executive Director Email lhoff2@mac.com
Experience

 

Mr. Hoffheimer was a federal prosecutor with the United States Department of Justice and a practicing healthcare attorney in Washington, D.C. for thirty three years.  During the course of his career he has represented numerous voluntary health agencies and healthcare delivery professionals.

Mr. Hoffheimer formed and led the advocacy effort that resulted in the Congressional Resolution and Presidential Proclamation declaring the 1990s as “The Decade of the Brain.” He founded the National Foundation for Brain Research which provided enhanced visibility for neurological disorders.

Mr. Hoffheimer was asked by the National Parkinson Foundation to serve as its Washington counsel where he became a leader in the lobbying effort to pass the Morris K. Udall Bill, which provided $100,000,000 for research into the cause and cure for Parkinson’s disease.

He was elected President of the Parkinson Foundation for the National Capital Area during which time the foundation raised more than $2 million for medical research. In 2006, Mr. Hoffheimer moved to Sarasota and formed the Parkinson Research Foundation.  He continues his lifelong commitment to the Parkinson community by playing an active role as chairman of the PRF.


 

Former CEOs/Executive Directors
NameTerm
Ms Marilyn Tait Jan 2012 - Dec
Senior Staff
NameTitle
Mrs Toni Goin Service Coordinator
Ms Lynne Henry Administrative Director
Ms Marilyn Tait Director Parkinson Place Program
Mr. Dustin Tenney Communications Specialist
Staff & Volunteer Statistics
Full Time Staff 4
Part Time Staff 1
Staff Retention Rate % 100
Professional Development Yes
Contractors 0
Volunteers 20
Management Reports to Board Yes
CEO/Executive Director Formal Evaluation N/A
Senior Management Formal Evaluation Yes
Non-Management Formal Evaluation Yes
Collaborations
USF Neurology Department USF Parkinson Place / Parkinson Research Foundation, Angelo Domingo, Phsy.D., Delta Medical Associates, USF Department of Music, Sarasota Contemporary Dance Company.
 
External Assessments and Accreditations
Assessment/AccreditationYear
Risk Management Provisions
Plans
Fundraising Plan No
Communication Plan No
Strategic Plan No
Strategic Plan Years
Strategic Plan Adopted 0
Management Succession Plan No
Continuity of Operations Plan No
Policies
Nondiscrimination Policy Yes
Whistle Blower Policy Yes
Document Destruction Policy Yes
Directors and Officers Insurance Policy
Policies and Procedures No
Other Documents
Board Chair
Board Chair Mr Lawernce S Hoffheimer
Company Affiliation Chairman and CEO Parkinson Research Foundation
Board Term Sept 2003 to Sept 2043
Board Chair Email lhoff2@mac.com
Board Members
Board Members
NameAffiliation
Mrs Amy Carroll Board Member
Mr Lawrence Hoffheimer Chairman
Juan Sanchez-Ramos M.D., PhD.USF, Vice-Chair, Research
Mrs Marilyn Tait Board Member
Constituency Includes Client Representation No
Board Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 3
Hispanic/Latino 1
Native American/American Indian 0
Other 0 0
Board Gender
Male 2
Female 2
Unspecified 0
Governance
Board Term Lengths 50
Board Term Limits 99
Board Orientation No
Number of Full Board Meetings Annually 6
Board Meeting Attendance % 83
Board Self-Evaluation Yes
Written Board Selection Criteria No
Board Conflict of Interest Policy Yes
% of Board Making Monetary Contributions 75
% of Board Making In-Kind Contributions 100
Fiscal Year Projections
Fiscal Year Start Month Jan
Fiscal Year Start Day 01
Fiscal Year Begins 2018
Fiscal Year End Month Dec
Fiscal Year End Day 31
Fiscal Year Ends 2018
Projected Revenue $2,000,000.00
Projected Expenses $1,600,000.00
Total Projected Revenue includes "in-kind" contributions/ donations No
Organization has Endowment No
Capital Campaign
Currently In a Capital Campaign No
Campaign Purpose
Campaign Goal
Campaign Dates 0 to 0
Amount Raised To Date 0 as of 0
IRS Form 990s
Audit/Financial Documents
Historical Financial Review
Expense Allocation
Fiscal Year201620152014
Program Expense$1,091,361$985,493$1,048,590
Administration Expense$261,336$247,760$258,437
Fundraising Expense$371,283$385,184$460,949
Payments to Affiliates$0$0$0
Total Revenue/Total Expenses0.840.940.85
Program Expense/Total Expenses63%61%59%
Fundraising Expense/Contributed Revenue26%25%32%
Assets and Liabilities
Fiscal Year201620152014
Total Assets$647,361$886,524$1,007,457
Current Assets$611,990$821,230$907,406
Long-Term Liabilities$6,000$0$0
Current Liabilities$53,071$28,390$76,352
Total Net Assets$588,290$858,134$930,490
Top Funding Sources
Fiscal Year201620152014
Top Funding Source & Dollar AmountContributions, gifts, grants $1,407,085Government Grants - Unspecified $1,526,581Contributions, gifts, grants $1,441,360
Second Highest Funding Source & Dollar AmountNet Rental Income $45,8700 $0Net Rental Income $56,344
Third Highest Funding Source & Dollar Amount0 $00 $00 $0
CEO/Executive Director Compensation $0 - $50,000
Tax Credits No
Solvency
Short Term Solvency
Fiscal Year201620152014
Current Ratio: Current Assets/Current Liabilities11.5328.9311.88
Long Term Solvency
Fiscal Year201620152014
Long-Term Liabilities/Total Assets1%0%0%
Financials Comments
Financial Comments by Foundation
Financial information taken from IRS Form 990 and audit documents.  Individual contributions include foundation and corporate support.
Nonprofit Parkinson Research Foundation Inc
Address 5969 Cattleridge Blvd
Suite 100
Sarasota, FL
Phone 941 870-4438

THE COMMUNITY FOUNDATION OF SARASOTA COUNTY, INC. IS A REGISTERED 501(C)(3) NON-PROFIT CORPORATION. A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE WITHIN THE STATE (1-800-HELP-FLA) OR FROM THE WEBSITE: WWW.FRESHFROMFLORIDA.COM. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE. ONE HUNDRED PERCENT (100%) OF EACH CONTRIBUTION IS RECEIVED BY THE COMMUNITY FOUNDATION OF SARASOTA COUNTY. REGISTRATION #SC-02471.