The Payton Wright Foundation Inc
6991 Professional Parkway E
c/o Patrick Wright
Sarasota FL 34240
Mission
The Payton Wright Foundation is a 501 (c) 3 non-profit organization established to support pediatric brain cancer research, financially assist families nationwide who have children with brain cancer and to support organizations tied to cancer research/care.
Leadership
CEO/Executive Director Holly Wright
Board Chair Holly Wright
Board Chair Affiliation Vice-President
General Info
Tax Exempt Status Public Supported Charity
Incorporation Year 2008
State Charitable Solicitations Permit Yes Dec 2015
State Registration Yes May 2016
Financial Summary
 
 
Projected Revenue $300,000.00
Projected Expenses $275,000.00
IRS Letter of Determination
The Payton Wright IRS determination letterView
Impact Statement
Accomplishments:
1) Our Fuel for Friends gas card program is in place at several children's hospitals both locally and nationally. The gas cards are given to hospital case managers who identify families in need of assistance transporting their children to and from treatment/therapy facilities. 
2)We partner with several destination hospitals such as All Children's Hospital, Arnold Palmer Children's Hospital, Children's Hospital of Cincinnati, Children's Hospital of Colorado, Children's Hospital of Pittsburgh, Bostons Children's among other organizations tied to pediatric cancer care in an effort to increase awareness of pediatric research funding, as well as, the importance of financially assisting families who are caring for children with brain cancer.
3) Our donations to research/financial assistance have increased from an average of $6,000 per month to $8,500 per month in a relatively short  time frame which illustrates our commitment to serving others dealing with this horrific disease.
4) We have increased our network of children's hospitals nationally.  The Payton Wright Foundation started as a local organization in Lakewood Ranch and has expanded the network in a matter of 3 years to a national level working with hospitals such as Children's Hospital of Pittsburgh, Children's Hospital of Cincinnati, Children's Hospital of Colorado, Boston's Children's, Duke Children's Hospital and Sick Kids of Toronto.
5) Our marketing literature and collateral was recently redeveloped and rebranded and is being used to target new prospects and grow our resources.
6) Our foundation was instrumental in developing the pediatric unit at Lakewood Ranch Medical Center featuring "Payton's Playroom," an area for pediatric patients to play and take their minds off of their illnesses. We donated toys, books, art supplies, an iPad for the Child Life Specialist as well as Wii gaming systems for every patient room on the unit.
7.   Developed the Payton's Angels program. This program identifies and sends children who are fighting brain cancer a customized "gift box" full of items plus gas/grocery gift certificates for their parents.
 
Goals for 2015:
1) We would like to combine the Fuel for Friends gas card program to include all types of transportation (ex: Flights for Friends). With increased funding, we this is a very attainable goal.  
2) We hope to grow our ability to financially assist families caring for children with brain cancer. Due to national exposure via television, radio and events which have taken place in other states, we are seeing a substantial increase in the number of requests for assistance. We will continue to adhere to the following intake protocol: AFTER assessing a family's need and verifying with their doctor that the child is actively undergoing treatment, the foundation pays the family's living expenses such as rent/mortgage, utility bills, etc. directly to the debtor in which the money is owed. 
3) We are developing a marketing campaign for 2015 to educate the public of the need for additional funding to support pediatric brain cancer research initiatives and provide financial assistance to families caring for a child with brain cancer. We hope to take this awareness campaign to a national level.
4) Develop a position for an Event Coordinator to assist with fundraising efforts both locally and nationally. 
Needs Statement
1)  Financial Support for 20 families per month to help with day to day expenses (rent/mortgage, utilities, travel expenses, phone bills, groceries, etc). Families send their bills to The Payton Wright Foundation and the foundation issues payment directly to the debtor.
2) A need for $4,000 per month in gas cards to provide families assistance with travel to and from treatment facilities. This will double the gas program that we currently have which will enable us to reach more families and continue to broaden our partnerships with national hospitals.
3) A need for $5,000 per month to assist with household bills (utilities, rent/mortgage, phone bill, car insurance, etc).
4) Available funding for hospitals (currently working with All Childrens Hospital, Arnold Palmers in Orlando, Duke Children's Hospital, Children's Hospital in Pittsburgh, Children's Hospital in Boston, Vanderbilt in Tennessee, Children's Hospital in Cincinnati, & Children Hospital of Colorado, Sick Kids in Toronto) to use at their discretion for equipment such as wheelchairs, eye glasses, parking, transportation, etc. for their patients fighting brain cancer. 
5)  Continue to create awareness locally and nationally to help more families caring for children with brain cancer.
Background Statement
In early 2006, Payton Wright began complaining of a pain in her knee. Thinking at first that it was nothing more than growing pains her parents, Holly and Patrick, took her to the doctor where they were told that the pain would probably go away on its own. When the pain persisted, The Wrights were told that it was probably juvenile arthritis, or perhaps diskitis.

After a few weeks with no improvement, Dr. Bob Morelli, the ER doctor at All Children's Hospital in St. Petersburg, FL ordered an MRI. On May 17, 2006, just weeks after her 4th birthday, Payton was diagnosed with cancer when the MRI revealed a tumor on her spine and pelvis. Always worried about everyone else, as she was wheeled into her first surgery Payton looked at her worried father and said "Don't worry Dad. It's gonna be a good day." Payton fought her entire battle with the attitude that everyday was going to be a good one.

Doctors determined that Payton had Medulloepithelioma, a very rare form of brain cancer, and one for which there was no treatment protocol and very little hope for recovery. First at All Children's and later at Duke University Medical Center in Durham, NC, doctors pieced together Payton's treatment, which included intense rounds of chemotherapy and radiation.

In August of 2006, Payton was paralyzed from the waist down due to the tumor's compression of her spine. She received as much radiation as a human body can tolerate, but the tumor continued to grow. Payton continued to fight, and she was able to graduate with her pre-school class in May of 2007. However, the cancer continued to spread, and on May 29, 2007, Payton Wright passed away at the age of 5.

Patrick and Holly Wright saw how courageously their daughter fought and they promised her that they would never stop fighting. The Payton Wright Foundation was created both in Payton's memory and with her fighting spirit, so that children with brain cancer will know that "it's gonna be a good day!"
Areas Served
Areas Served
Area
National
Areas Served Comments
Sarasota,Manatee, St Petersburg, Orlando, Gainesville, Pittsburgh, Texas, North Carolina, Tennessee, Atlanta, Boston, Maine, Ohio, Colorado and anywhere a family is in need.
Service Categories
Primary Org Type Human Services
Secondary Org Type Health Care
Tertiary Org Type
Statement from the Board Chair/Board President
Statement from the CEO/Executive Director
My husband and I started The Payton Wright Foundation after our 5 year old daughter, Payton, passed away from brain cancer.  When you are told your child has cancer...all you think about is saving your child's life.  Nothing else matters, but to help your child.  We were very fortunate to have an adequate savings and a community to help us keep our "heads above water" financially.  I took a leave from work while my husband tried to continue to work as best he could.  However, when you are told your child is terminal...there should not be a choice of caring for your child or going to work. We started Payton's foundation to give back to others just like many had helped us during our time of need.  We understand the financial impact cancer has on a family.  Health insurance only pays a certain amount...and it does not help with day to day living expenses. Providing financial relief to families caring for children with brain cancer enables them to concentrate solely on their child...and is priceless.   
 
Funding for pediatric cancer research is very limited ....funding for pediatric brain cancer even more so.  Pediatric brain cancer is the leading cause of death in the cancer arena.  My 5 year old daughter along with all of the children who have fought and who are now fighting cancer deserve to be heard, they deserve to be helped and they deserve to have a voice.  Children can not raise funding, they shouldn't have to. They should be outside playing, enjoying their childhood. It is up to adults to help these children who didn't choose to have cancer and are left fighting for their lives. I am incredibly proud that The Payton Wright Foundation represents these children and will continue to do whatever is needed to help fight this battle for them.  
Programs
Description
Our Fuel for Friends gas card program is intended to help families of children diagnosed with pediatric brain cancer enabling them to travel to and from appointments. Sometimes these appointments can be daily and/or weekly and can be 80-100 miles each trip.  This can be quite costly for those families.  The Payton Wright Foundation verifies the diagnosis of treatment with the hospital/Neuro-oncologist before financially assisting a family.  Once confirmed, gas cards are given to them to help with travel expenses. Additionally, The Payton Wright Foundation sends gas cards to children's hospitals for the nurses to identify and distribute gas cards to families of children undergoing treatment for pediatric brain cancer. 
Budget $30,000
Category Human Services, General/Other Human Services, General/Other
Program Linked to Organizational Strategy Yes
Population Served People/Families of People with Cancer Children and Youth (0 - 19 years) Children and Youth (0 - 19 years)
Short Term Success
The Fuel for Friends gas card program meets an immediate need for families of children undergoing treatment.  Without this program, the families may not be able to afford getting to and from appointments and life saving treatments.  This removes this obstacle for them.
Long Term Success
The Fuel for Friends gas card program has been identified as a core program for The Payton Wright Foundation.  We hope to expand this program as funds increase to include assistance with airfare and launch a new grocery card program.
Program Success Monitoring
During quarterly meetings, The Payton Wright Foundation Board assesses the Fuel for Friends program's success identifying the number of families assisted and comparing the quarter to the previous quarter. 
Program Success Examples
Each gas card is $50.  Approximately 50 cards are given away each month with the hopes of increasing that number significantly.
Description
Much like the gas card program, a child has to be a confirmed patient undergoing treatment for pediatric brain cancer.  Once the confirmation comes to the foundation from a hospital or Neuro-oncologist, the family qualifies for financial assistance from The Payton Wright Foundation.  They are able to send the foundation a bill and it will be paid directly to the company for payment on behalf of the family.  Sometimes the payment is for a mortgage payment the family is unable to make, other bills include utilities or phone bills.
Budget $72,000
Category Human Services, General/Other Human Services, General/Other
Program Linked to Organizational Strategy Yes
Population Served People/Families of People with Cancer Children and Youth (0 - 19 years) Children and Youth (0 - 19 years)
Short Term Success
Families can be helped immediately upon certifying the treatment.  As soon as a family is referred to the foundation, they can start recieving financial help.
Long Term Success
The ultimate goal would be for the foundation to never turn down a family for financial help, undergoing treatment for pediatric brain cancer.  Currently, we are helping as many as we can but know that many more can be helped financially. 
Program Success Monitoring
The board assesses quarterly how much money the foundation has given out.
Program Success Examples
On average, The Payton Wright Foundation gives over $6000 per month in financial assistance to those families undergoing treatment for pediatric brain cancer.  The foundation from 2010 to 2011 grew total revenue by 66%.  Expenses for the foundation (what the foundation gave away year over year) increased a whopping 128%.  In an economy where giving has been flat as a nation, The Payton Wright Foundation continues to grow awareness and give back to the community.
CEO/Executive Director
CEO/Executive Director Holly Wright
CEO Term Start Sept 2008
CEO/Executive Director Email Holly@paytonwright.org
Former CEOs/Executive Directors
NameTerm
Senior Staff
NameTitle
Staff & Volunteer Statistics
Full Time Staff 1
Part Time Staff 0
Staff Retention Rate % N/A
Professional Development No
Contractors 0
Volunteers 35
Management Reports to Board Yes
CEO/Executive Director Formal Evaluation N/A
Senior Management Formal Evaluation N/A
Non-Management Formal Evaluation N/A
Collaborations
In 2012, The Payton Wright Foundation partnered with Children's Hosiptal of Pittsburgh and a local foundation in Sarasota, Florida to raise awareness/funds for both pediatric cancer research and to financially assist families caring for children with brain cancer. The Payton Wright Foundation worked with Lakewood Ranch Medical Center to assist in the planning of the new pediatric unit.  Lakewood Ranch Medical Center named their new playroom after Payton. The Payton Wright Foundation provided the toys/art supplies to the playroom/pediatric patient rooms.
External Assessments and Accreditations
Assessment/AccreditationYear
Awards & Recognition
Award/RecognitionOrganizationYear
Women's RockPrudential2012
Foundation Dinner RecognitionArnold Palmer's Hospital2012
Advocate for OthersA2A Alliance2015
Risk Management Provisions
Government Licenses
Organization Licensed by the Government No
Plans
Fundraising Plan No
Communication Plan No
Strategic Plan No
Strategic Plan Years
Strategic Plan Adopted 0
Management Succession Plan No
Continuity of Operations Plan No
Policies
Nondiscrimination Policy Yes
Whistle Blower Policy No
Document Destruction Policy No
Directors and Officers Insurance Policy No
Policies and Procedures Yes
Comments
Management Comments by Organization
"Being on the front lines of our family's struggle I am so proud of Patrick and Holly's commitment to help others.  To honor the promise they made to their daughter and my niece, Payton to help the children and families that will go through the same ordeal.  The Wrights have inspired me every day throughout this tragedy and I hope they will inspire you!"  ~Brian Porter
 
"Their foundation gives much needed funds to families who have children with CNS malignancies for such things as gasoline, electric bills, rent, copayments etc. It is a foundation in which I strongly believe. It has helped many of my current patients in our hospice program as well as children in multiple states. It is my honor to be associated with such a worthwhile and compassionate organization." ~Dr. Morelli 
 

"Holly & Patrick have turned their personal grief into a passion to help other families whose children are fighting cancer.  Their foundation provides awareness and much needed funds directly to the families fighting pediatric brain cancer. The Payton Wright Foundation is built on compassion and I am proud to be a part of this incredibly worthwhile cause!"  ~Laura Roberts

Board Chair
Board Chair Holly Wright
Company Affiliation Vice-President
Board Term Sept 2008 to Jan 2018
Board Chair Email holly@paytonwright.org
Board Members
Board Members
NameAffiliation
Michael Allen SunCoast Metals
Kym Berceau Benefits Consultant, TriNet
Steven Cavanaugh ReMax Tropical Sands
Dee Dix Carr, Riggs & Ingram
Felicia Donson Think Donson
Gary Donson Think Donson
Dave Mann Atlas Solutions
Keith Martin Badger Bobs Services
Keith Mercier Vice President, Division Manager of Bouchard Insurance
Dr. Robert Morelli Medical Director of Pediatrics at Suncoast Hospice
Brian Porter Bouchard Insurance
Laura Roberts Director of Client Services for Barbara Glanz Communications, Inc.
Holly Wright The Payton Wright Foundation
Patrick Wright Bouchard Insurance
Constituency Includes Client Representation No
Board Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 14
Hispanic/Latino 0
Native American/American Indian 0
Other 0 0
Board Gender
Male 10
Female 4
Unspecified 0
Governance
Board Term Lengths 10
Board Term Limits 1
Board Orientation Yes
Number of Full Board Meetings Annually 6
Board Meeting Attendance % 94
Board Self-Evaluation Yes
Written Board Selection Criteria No
Board Conflict of Interest Policy Yes
% of Board Making Monetary Contributions 50
% of Board Making In-Kind Contributions 30
Standing Committees
Special Events (Golf Tournament, Walk / Run, Silent Auction, Dinner / Gala)
Volunteer
Marketing
Communications / Promotion / Publicity / Public Relations
Comments
Governance Comments by Organization Twelve children are diagnosed with a pediatric brain tumor each day in the U.S. Of the children diagnosed with a brain tumor, 72% of the children are younger than 15.  In the cancer arena, pediatric brain cancer is the leading cause of death in children, now surpassing acute lymphoblastic leukemia.  There are very few programs geared toward financially assisting parents caring for children with brain cancer Two thirds of parents who have children fighting cancer are forced into debt due to the high cost of caring for them.  These are the challenges that The Payton Wright Foundation addresses on a daily basis.  There are many, many families in need of assistance but funding is limited.  The Payton Wright Foundation offers assistance to families right here at home as well as those located elsewhere in the U.S. Increasing national exposure for The Payton Wright Foundation has resulted in an increase in the number of families requesting assistance as well as the number of research institutions requesting grants. The Payton Wright Foundation is working to increase national exposure through marketing campaigns and social media outlets.  
Fiscal Year Projections
Fiscal Year Begins 2015
Fiscal Year Ends 2015
Projected Revenue $300,000.00
Projected Expenses $275,000.00
Organization has Endowment No
Endowment Spending Policy Income Only
Capital Campaign
Currently In a Capital Campaign No
Campaign Purpose
Campaign Goal
Campaign Dates 0 to 0
Amount Raised To Date 0 as of 0
IRS Form 990s
Audit/Financial Documents
Historical Financial Review
Expense Allocation
Fiscal Year201420132012
Program Expense$186,453$232,753$195,773
Administration Expense$17,518$18,099$62,740
Fundraising Expense$24,307$34,677$20,627
Payments to Affiliates$0$0$0
Total Revenue/Total Expenses0.930.581.33
Program Expense/Total Expenses82%82%70%
Fundraising Expense/Contributed Revenue12%21%6%
Assets and Liabilities
Fiscal Year201420132012
Total Assets$65,142$79,979$218,172
Current Assets$64,642$79,979$218,172
Long-Term Liabilities$0$0$0
Current Liabilities$2,005$864$0
Total Net Assets$63,137$79,115$218,172
Top Funding Sources
Fiscal Year201420132012
Top Funding Source & Dollar AmountFundraising $124,023Fundraising $97,651Fundraising $247,313
Second Highest Funding Source & Dollar AmountContributions, gifts, grants $87,143Contributions, gifts, grants $68,085Contributions, gifts, grants $124,808
Third Highest Funding Source & Dollar AmountMiscellaneous $1,073Miscellaneous $603Investment Income $43
CEO/Executive Director Compensation $75,001 - $100,000
Co-CEO/Executive Director Compensation N/A
Tax Credits No
Solvency
Short Term Solvency
Fiscal Year201420132012
Current Ratio: Current Assets/Current Liabilities32.2492.57--
Long Term Solvency
Fiscal Year201420132012
Long-Term Liabilities/Total Assets0%0%0%
Financials Comments
Financial Comments by Organization Please note, the Total Expenses Amount in the above Historical Financial Review is inclusive of all funding that The Payton Wright Foundation provides to families through the Fuel for Friends transportation program, financial assistance with living expenses and funeral costs, the Payton's Angels program, fundraising expenses as well as operational costs. 
Financial Comments by Foundation Financial information taken from IRS Forms 990/990-EZ.  Individual contributions include foundation and corporate support.
Nonprofit The Payton Wright Foundation Inc
Address 6991 Professional Parkway E
c/o Patrick Wright
Sarasota, FL
Phone 941 893-7007

THE COMMUNITY FOUNDATION OF SARASOTA COUNTY, INC. IS A REGISTERED 501(C)(3) NON-PROFIT CORPORATION. A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE WITHIN THE STATE (1-800-HELP-FLA) OR FROM THE WEBSITE: WWW.FRESHFROMFLORIDA.COM. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE. ONE HUNDRED PERCENT (100%) OF EACH CONTRIBUTION IS RECEIVED BY THE COMMUNITY FOUNDATION OF SARASOTA COUNTY. REGISTRATION #SC-02471.