Macular Degeneration Association
5969 Cattleridge Blvd
Ste 100
Sarasota FL 34232
Mission
The mission of Macular Degeneration Association (MDA)  is to find a cure for macular degeneration through funding research, while providing education and services that will improve the quality of life TODAY, TOMORROW and in the FUTURE for patients with macular degeneration. While providing education, preventable measures and helpful tips to their caregivers and families. 
Leadership
CEO/Executive Director Mr. Lawrence S Hoffheimer
Board Chair Mr. Lawrence S Hoffheimer
Board Chair Affiliation Macular Degeneration Association
General Info
Organization DBA
DBA
Macular Degeneration Association, Inc.
Tax Exempt Status Public Supported Charity
Incorporation Year 2010
State Charitable Solicitations Permit Yes Aug 2018
State Registration 0
Financial Summary
 
 
Projected Revenue $281,690.00
Projected Expenses $249,994.00
IRS Letter of Determination
Letter of DeterminationView
Impact Statement
Accomplishments:
1. Provide ongoing empowerment through awareness, educational and support programs for patients of macular degeneration and their caregivers and the community.
 
2. Provides 12-24 programs yearly for free. These programs cover research, preventative measures, new treatments, medications and low vision equipment demonstrations.
 
3. Educating patients, caregivers, and the general public. Bringing awareness of this insidious vision-robbing disease, preventive measures, coping strategies and treatments that are available.
 
4. Provide ongoing and updated sophisticated websites and free video's to better serve the macular community locally, nationally and on an international level.
 
5. We continue to receive evaluations from the participants of these programs "Thanking" us for hosting them. They feel that this kind of education is needed. Participants stated that after these programs they felt empowered and better equipped to make decisions pertaining to their eye disease, research that is being done, treatment options, nutritional aspects, low vision products available, all leading to a fuller life for them.
 
Top Goals:
 
1. Increase awareness and fundraising efforts to sustain and grow current and future programs to better serve the macular community.
 
2. Educate healthcare providers regarding macular degeneration care management, cutting-edge procedures and the latest therapies available and adding personalized medicine.
3. Offer additional educational conferences and opportunities with renowned faculty to include noted experts in the field as well as provide funding for research into a cure for macular degeneration.
 
 
 
Needs Statement
1. Research: Research in the field of dry macular degeneration is needed- there aren't any treatments for this type of macular degeneration. The money will help fund new treatments for dry macular degeneration. New medications that will continue to help stop the" leaking of blood" in the eye of those with wet macular degeneration by not only stopping the leakage but also stopping the growth of abnormal blood vessels.  Our need is $ 50,000.00 
 
2. Program Growth: Macular Degeneration Association offers over 12-24 free programs locally and nationally each year. With $ 40,000.00 we would be able to extend our programs to other areas that are currently not reaching. We would be able to provide state of the art education by well-known doctors in the field of macular. These programs will provide empowerment to those affected by these devastating eye diseases that have the potential to rob their vision and lead to Blindness.
 
3. Educational Resources:  The Macular Degeneration Association needs additional funds to help with our programs, education, and resources that are provided free to those that are affected by these diseases. $25,000.00 would provide more resources.
 
 4. Educational Tools and Videos: $25,000.00 would be used to produce online videos for those that are homebound or are unable to attend a program.
 
Background Statement

The Macular Degeneration Association was originally started by our Chairman of the Board Lawrence Hoffheimer; it was his vision to see that people that were diagnosed with macular degeneration learn about their disease. Options that were available through education. Mr. Hoffheimer started this organization in 2007 and from there it has served over 65,000 people through awareness programs both locally and nationally, educational resources and a robust website.

Areas Served
Areas Served
Area
FL- Manatee
FL- Charlotte
FL- DeSoto
FL- Hillsborough
FL- Manatee
FL-Pinellas
FL- Sarasota
National
Areas Served Comments
Macular Degeneration Association (MDA) serves the greater Sarasota area but appeals to residents of surrounding counties, states and internationally due to the unique awareness programs provided.  
  
We have held 13 awareness conferences in 2017-Ft. Lauderdale, Jacksonville, The Villages, Clearwater and, Sarasota, FL. Conferences are also being held nationally in Phoenix, AZ, Salt Lake City, UT,  Tucson, AZ, Madison, WI, Sacramento, CA, Portland, OR, Austin, TX, Greenville, SC and Jackson, MI. 
Service Categories
Primary Org Type Education
Secondary Org Type Health Care
Tertiary Org Type
Statement from the Board Chair/Board President
We have held over 77 conferences since 2013 locally and nationally. Macular degeneration is reaching epidemic proportions. People are asking for more education on this disease and we are unable to provide it due to budget constraints. Of the 77 conferences that we have held we ask that the participants fill out an evaluation form. We have told that the programs are excellent and provide the education and information that they are looking for. We have a short fall of $25,000.00
Statement from the CEO/Executive Director
It really warms my heart when participants at the programs come up to us and tell us how important these programs are. They state that they have learned more about their disease and now are able to handle their diagnosis. With the knowledge that they gained they state that they will be able to make better treatment decisions. 
Programs
Description Held in Sarasota, FL this program is designed to bring specialists, patients, caregivers and the general public together. Participants are able to communicate with the specialists and each other to have a better understanding of their disease. In 2018 the Macular Degeneration Association is planning on hosting 24 free programs locally and nationally.
Budget $30,000
Category Human Services, General/Other Services for Individuals with Disabilities
Program Linked to Organizational Strategy Yes
Population Served Elderly and/or Disabled People/Families with of People with Disabilities At-Risk Populations
Short Term Success Interaction with the specialists and each other. Support of each other in the discussions and their trials along their journey.
Long Term Success Participants would walk away with knowledge about their disease, treatment options, research and tips on living with this disease, this way giving them more power over their choices and a more fulfilled life.
Program Success Monitoring We track success by various means: evaluation forms, surveys, personal interviews and testimonials, and physician evaluation of the programs. Caregivers and family members noted that they had a better understanding of the disease and how to help their loved ones cope with their vision impairment.
Program Success Examples On the evaluation forms, the participants stated that they came away from the program with a better understanding of their disease and were reassured that they could make difference for a better outcome. They loved the interaction between the speaker and the audience. One participant wrote "I thought I knew everything about macular degeneration and now my eyes were opened. Thank you" another wrote " everyone should participate in these educational programs you will learn a lot. Thank you"  "It's great to interact with others going through the same things I am and hearing about their successes and tips that they shared" " There is a strong need of these programs and the information that is shared. Thank you."
Description
Macular patients and caregivers and the medical community are given free and easy access to the latest information on research, education, and events.
 
Macular Degeneration Association has a very progressive website www.macularhope.org  On this site you will find video's of past programs, patient testimonials, educational articles. The Macular Degeneration Association's website has an international reach, visited by professionals in the field, nurses, researchers and visually impaired persons from around the world.
 
Budget $380,000
Category Human Services, General/Other Services for Individuals with Disabilities
Program Linked to Organizational Strategy Yes
Population Served Elderly and/or Disabled People/Families with of People with Disabilities Poor,Economically Disadvantaged,Indigent
Short Term Success Our short-term goal for our site is to increase knowledge of macular degeneration, inform on the latest research and provide programs to improve the quality of life for each individual, their families, and caregivers. We value our ability to provide education and information to those outside our area and internationally to improve their quality of life is an integral mission of the website. This information can help an individual whether inside or outside the USA improve their life by 40%.
Long Term Success Our long-term success lies in the ability to reach those with macular degeneration along with their family members as this is a hereditary disease, caregivers, and the general public. As knowledge of our site increases the help that is provided for free to the many that so desperately are in need of this information will be available to them no matter where they live in the world. Due to the availability of this information, there has been a 75% behavior change in those suffering from some from macular degeneration and a noticeable change in their quality of life.
Program Success Monitoring We receive feedback from comments on our website, Facebook, Twitter and through the many emails that we receive from the macular community and researchers and physicians.
Program Success Examples One researcher from Germany commented on the information that was provided on the latest research. Our patients commented on the Ask the Doctor section- " I asked the doctor a question and his answer was very helpful."  The information about upcoming programs is appreciated " So glad you will be in my area. Can't wait to attend." "The information provided helps me deal with the loss of vision in a more manageable way and lets me know that I am not alone in my struggles." All I can say is "Thank you"
Comments
Program Comments by Organization These programs have been very successful. We have reached over 1000 people this year (2017). All the participants were looking for education about their disease, treatment information and ways to prevent their disease from progressing. They had many questions and concerns that were answered by the specialist in the field of retina. These programs provided them with better knowledge and empowered them to take control of their eye health. 
CEO/Executive Director
CEO/Executive Director Mr. Lawrence S Hoffheimer
CEO Term Start Jan 2010
CEO/Executive Director Email info@macularhope.org
Experience Mr. Hoffheimer was a federal prosecutor with the United States Department of Justice and a practicing health care attorney in Washington, D.C. for thirty-three years. During the course of his career, he has represented numerous voluntary health agencies and healthcare delivery professionals. Mr. Hoffheimer was asked by the National Parkinson Foundation to serve as its Washington counsel where he became a leader in the lobbying effort to pass the Morris K. Udall Bill, which provided $100,000,000 for research into the cause and cure for Parkinson’s disease. In 2007, Mr. Hoffheimer formed the Macular Degeneration Association. He continues his lifelong commitment to the Macular Degeneration community by playing an active role as Chairman of the Board for MDA and his continued effort to bring awareness to this devastating disease.
Former CEOs/Executive Directors
NameTerm
Senior Staff
NameTitle
Donna Auger Executive Director
Staff & Volunteer Statistics
Full Time Staff 2
Part Time Staff 1
Staff Retention Rate % 100
Professional Development Yes
Contractors 0
Volunteers 0
Management Reports to Board Yes
CEO/Executive Director Formal Evaluation Yes
Senior Management Formal Evaluation Yes
Non-Management Formal Evaluation Yes
Collaborations
Loan from related entity Parkinson Research Foundation
External Assessments and Accreditations
Assessment/AccreditationYear
Awards & Recognition
Award/RecognitionOrganizationYear
Top-Non-Profit 2014Great Non-Profits2014
Top-Non-Profit 2015Great Non-Profits2015
Top-Non-Profit 2016Great Non-Profits2016
Top- Non-Profit 2017Great Non- Profits2017
Risk Management Provisions
Government Licenses
Organization Licensed by the Government No
Plans
Fundraising Plan No
Communication Plan No
Strategic Plan No
Strategic Plan Years 15
Strategic Plan Adopted Jan 2014
Management Succession Plan No
Continuity of Operations Plan No
Policies
Nondiscrimination Policy Yes
Whistle Blower Policy Yes
Document Destruction Policy Yes
Directors and Officers Insurance Policy No
Policies and Procedures Yes
Comments
Management Comments by Organization Macular degeneration has reached epidemic proportions funding for research, new programs and resources are in desperate need. We are continuing to work to find new ways of producing the funds that we are lacking.
Board Chair
Board Chair Mr. Lawrence S Hoffheimer
Company Affiliation Macular Degeneration Association
Board Term Jan 2010 to Jan 2021
Board Chair Email info@macularhope.org
Board Members
Board Members
NameAffiliation
Mrs. Donna Jean Auger Director
Mrs. Amy Carroll Secretary-Treasurer
Mr. Lawrence Samuel Hoffheimer Chairman
Constituency Includes Client Representation No
Board Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 3
Hispanic/Latino 0
Native American/American Indian 0
Other 0 0
Board Gender
Male 1
Female 2
Unspecified 0
Governance
Board Term Lengths 50
Board Term Limits 99
Board Orientation No
Number of Full Board Meetings Annually 7
Board Meeting Attendance % 86
Board Self-Evaluation Yes
Written Board Selection Criteria No
Board Conflict of Interest Policy Yes
% of Board Making Monetary Contributions 66
% of Board Making In-Kind Contributions 33
Fiscal Year Projections
Fiscal Year Begins 2017
Fiscal Year Ends 2017
Projected Revenue $281,690.00
Projected Expenses $249,994.00
Total Projected Revenue includes "in-kind" contributions/ donations No
Organization has Endowment No
Capital Campaign
Currently In a Capital Campaign No
Campaign Purpose
Campaign Goal
Campaign Dates 0 to 0
Amount Raised To Date 0 as of 0
Historical Financial Review
Expense Allocation
Fiscal Year201620152014
Program Expense$806,893$554,891$547,237
Administration Expense$176,658$136,071$150,667
Fundraising Expense$254,059$268,043$352,902
Payments to Affiliates$0$0$0
Total Revenue/Total Expenses0.941.091.10
Program Expense/Total Expenses65%58%52%
Fundraising Expense/Contributed Revenue22%26%31%
Assets and Liabilities
Fiscal Year201620152014
Total Assets$313,173$340,057$251,214
Current Assets$312,475$337,340$245,430
Long-Term Liabilities$0$0$0
Current Liabilities$92,625$48,370$49,963
Total Net Assets$220,548$291,687$201,251
Top Funding Sources
Fiscal Year201620152014
Top Funding Source & Dollar AmountContributions, gifts, grants $1,166,471Contributions, gifts, grants $1,043,941Contributions, gifts, grants $1,154,603
Second Highest Funding Source & Dollar Amount0 $00 $00 $0
Third Highest Funding Source & Dollar Amount0 $00 $00 $0
CEO/Executive Director Compensation $50,001 - $75,000
Co-CEO/Executive Director Compensation $50,001 - $75,000
Tax Credits No
Solvency
Short Term Solvency
Fiscal Year201620152014
Current Ratio: Current Assets/Current Liabilities3.376.974.91
Long Term Solvency
Fiscal Year201620152014
Long-Term Liabilities/Total Assets0%0%0%
Financials Comments
Financial Comments by Organization Strategic planning/setting priorities
 
Raising and securing money to accomplish our mission
 
Increasing awareness of our organization and the value we bring to the communities and states that we serve
 
Priorities have been set for research projects 
 
We are working with several groups to add more to each of our programs to give the participants more information to accomplish our part of our mission, education.
Financial Comments by Foundation The financial information is taken from Federal Form 990 and audited financial statements.  Tax returns and audited information reconcile.  Contributions include both foundation and corporate support as they are not separately stated.
Nonprofit Macular Degeneration Association
Address 5969 Cattleridge Blvd
Ste 100
Sarasota, FL 34232
Phone 941 870-4399 104

THE COMMUNITY FOUNDATION OF SARASOTA COUNTY, INC. IS A REGISTERED 501(C)(3) NON-PROFIT CORPORATION. A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE WITHIN THE STATE (1-800-HELP-FLA) OR FROM THE WEBSITE: WWW.FRESHFROMFLORIDA.COM. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE. ONE HUNDRED PERCENT (100%) OF EACH CONTRIBUTION IS RECEIVED BY THE COMMUNITY FOUNDATION OF SARASOTA COUNTY. REGISTRATION #SC-02471.