Neuro Challenge Foundation Inc
722 Apex Road, Office A
Sarasota FL 34240


Mission
Neuro Challenge Foundation for Parkinson's, Inc is dedicated to improving the quality of life of people with Parkinson's and their caregivers.
Leadership
CEO/Executive Director Robyn Faucy
Board Chair Kathie Musto
Board Chair Affiliation Kindred Home Health
General Info
Organization DBA
DBA
Neuro Challenge Foundation for Parkinson's
Neuro Challenge Foundation
Tax Exempt Status Public Supported Charity
Incorporation Year 2008
State Charitable Solicitations Permit Yes Jan 2018
State Registration Yes 0
Financial Summary
 
 
IRS Letter of Determination
Name
IRS Tax Exempt CertificateView
Other Documents
Code of EthicsView
Gift Acceptance PolicyView
Impact Statement
Neuro Challenge Foundation provides care advising, educational and support programs, and community resource referrals for people with Parkinson's and their caregivers.
 
Accomplishments: 

 1.  Conducts areas largest Parkinson education event for people with Parkinson's, their caregivers and healthcare providers, the Annual Parkinson's Symposium. The event sells out annually with over 550 attendees. NEW in 2017- The Annual Parkinson's Symposium will be provided at no charge to attendees and two identical sessions will be held to accommodate more attendees. 

2.  Published the Parkinson Disease Resource Guide, an up-to-date resource providing guidance to effective management and support for those with Parkinson's disease. Over 5,000 resource guides have been distributed since September, 2015.

 3.  Provide community resource information through partnerships with Sarasota Memorial Healthcare,  YMCA Sarasota County, Friendship Centers, We Care Manatee, Pines of Sarasota, Venice Regional Hospital, Manatee Memorial Hospital, Blake Medical Center, Bay Pines Veteran's Hospital, primary care physicians, neurologists, occupational and physical therapists, and numerous health care related facilities and programs.  These partnerships allow us to help families meet the myriad of challenges associated with this disease; integrative medical services, including exercise and rehabilitation, education, emotional support and the latest pharmaceutical treatments.

4.  Provided over 4,500 points of service to over 1,500 people with Parkinson's and their caregivers in 2016. 

5. Created a Medical Advisory Committee that includes nine medical experts from Manatee, Sarasota and Charlotte counties who serve the PD community. 

6. Expansion into Charlotte, Manatee and Pinellas Counties through the provision of monthly educational and support services.  Educators include nutritionists, doctors, and other healthcare practitioners.
Needs Statement
Neuro Challenge Foundation is a growing organization, filling a unique niche in the nonprofit health and human services marketplace.  The most pressing needs include:
 
CARE ADVISOR SERVICES: GOAL: $40,000 In order to meet the increasing demand for Neuro Challenge's services and programs throughout our four county service area (Manatee, Sarasota, Charlotte and Pinellas counties), an additional part-time Care Advisor was hired. NCF currently serves more than 1,500 people with Parkinson's and their caregivers each year with two Care Advisors.  
 
GRANT WRITING SERVICES: GOAL: All NCF development activities are performed by the executive director. A grant writer would allow NCF to apply for more grants in its four county service area while allowing the ED to focus on philanthropic pursuits. 

RESOURCE GUIDE REPRINT:  GOAL:  $7,500.00   Neuro Challenge produced its first Parkinson's Resource Guide in September 2015. 5,000 copies of the guide were printed and have been distributed to date which far exceeds the expected distribution rate. The guide needs to be updated and reprinted. 

OFFICE SUPPLIES:  GOAL:  $3,500.00.  It is amazing how expensive ink is for printers and stamps for mailing!

VOLUNTEERS: GOAL: A designated volunteer to assist in the office each day of the week. The staff of 4 works with numerous volunteers and can always use more assistance to extend NCF's reach in the community. 

SUPPORT:  GOAL: $1,500 for each program. Underwriters for PD in Motion Dance Program, Parkinson's Cafe and the Off Key Chorale.

Background Statement
Neuro Challenge Foundation, Inc. was established in 2008 to improve the quality of life for people with Parkinson disease and their caregivers by providing high quality education and outreach programs to people affected by Parkinson's and the healthcare community.  When founded, the Board of Directors was struck by an important reality; our community is filled with talented and motivated people, hospitals and clinics are some of the best in the country.  Despite all of these excellent resources for people with Parkinson's, there was no central database or clearing house for coordinating services and information.  Until now.  Neuro Challenge Foundation offers free and desperately needed support, community resource referrals and offers some of the most widely attended and distinguished education programs in the country.
Areas Served
Areas Served
Area
FL- Charlotte
FL- Manatee
FL- Sarasota
FL-Pinellas
Areas Served Comments
Monthly programs are provided in the following counties: Manatee, Sarasota, Charlotte and Pinellas; however, Neuro Challenge provides services via telephone and through the distribution of Parkinson Disease Resource Guide to people throughout the state and country.  Attendance at the Annual Symposium and Distinguished Speakers series includes attendees from all parts of Florida and some come from out of state to attend.  NCF also serves international patients, particularly from Canada.
Service Categories
Primary Org Type Human Services
Secondary Org Type Health Care
Tertiary Org Type Education
Statement from the Board Chair/Board President
Neuro Challenge Foundation (NCF) is  dedicated to:
 
  • Maintaining the highest standards throughout the organization.
  • Operating as a unified entity - in a culture of service, respect and collaboration.
  • Helping Overcome Parkinson’s Everyday (HOPE)·       
  • Making a relentless effort to better understand, combat and develop a better approach to Parkinson’s disease.
  • Serving ALL people. 
Statement from the CEO/Executive Director
Families who experience a diagnosis of Parkinson's Disease are often left feeling hopeless. I am keenly aware of the frustrations brought on by financial, medical and emotional stresses. Neuro Challenge Foundation is a source of education, empowerment and support for the person with Parkinson's and their caregivers. 
 
Direct services are provided to the Parkinson's community in Manatee, Sarasota, Charlotte and Pinellas counties in the form of Care Advising, educational opportunities and support services. These programs are dedicated to providing the very best knowledge and resources to people with Parkinson's and their caregivers. It is truly an honor to serve the Parkinson's community and to advance the mission of this very important organization.  
Programs
Description Neuro Challenge provides monthly educational and support programs for people with PD and their families, by partnering with professional services, health care providers and other community agencies.   NCF works to educate both people with PD and their loved ones so they can have an improved quality of life and a more informed dialogue with their physicians.  NCF also educates our professional care providers about Parkinson Disease. Monthly programs are offered in Manatee, Sarasota, Charlotte, and Pinellas counties.
Budget $67,945
Category Human Services, General/Other Services for Specific Populations
Program Linked to Organizational Strategy Yes
Population Served People/Families of People with Health Conditions Other Health/Disability Aging, Elderly, Senior Citizens
Short Term Success
Neuro Challenge provides 28 educational and support programs every month at no charge. The success of monthly programming is partially determined by attendance. Between 12 and 60 people attend each monthly educational program. 
Long Term Success
Individuals with Parkinson's will remain in their homes longer, will show fewer PD symptoms and will report a higher quality of life as reported on the Parkinson Disease Questionnaire.  Participants complete an annual satisfaction survey and report nearly 100% satisfaction with these services.
Program Success Monitoring
All services are evaluated for patient and professionals satisfaction through a survey.  Monthly attendance and increased telephone and email requests for individual appointments indicates satisfaction.
Program Success Examples
"My heart is bursting with gratitude for the genuine love and support we have received over the last three years.  Highly educated, carefully selected staff has not left one stone unturned in it's quest to meet the challenges of Neuro patients and their caregivers.  We look forward to the 2nd Wednesday of the month...this is our family meeting.  Wanda and Jennifer bring out the best in us..."  J Rall, February, 2014
Description
People with Parkinson's, their caregivers and healthcare professionals are eager for education and information on the latest information, research, movement therapy, speech therapy and other supportive services.  The Distinguished Speakers series provides the PD community the latest information from medical experts.  Topics have included the latest in stem cell research, alternative therapies, and brain stimulation among other topics.  
Budget $25,000
Category Medical Research, General/Other Parkinson Disease Research
Program Linked to Organizational Strategy Yes
Population Served People/Families of People with Health Conditions Other Health/Disability Aging, Elderly, Senior Citizens
Short Term Success
Patients, caregivers and healthcare professionals will be better educated and more knowledgeable of the latest in medical treatment and management for neurological diseases. The Distinguished Speakers events are held bi annually and feature internationally and local recognized Parkinson's experts.
Long Term Success
Neuro Challenge Foundation will be the go-to resource for people with PD, their caregivers and the medical community for information on living well with Parkinson's.
Program Success Monitoring
The program is considered a success if:
 
1.   participants continue to return for subsequent speaking engagements.
2.   the speakers series continues to be filled to capacity.
3.   the participant reported satisfaction on the written evaluation form.
Program Success Examples

“What a great event you arranged.  Full to the brim with the latest and best information on research about the disease and treatments that are working.  Important information presented in a mature yet entertaining way.  It is refreshing not to be talked down to, not to have a message or topic delivered in an over simplified fashion, sanitized of material  the audience might find upsetting.  The symposium offers us a
glimpse of their personalities outside of the structured environment of a
typical office visit.  But it also offers the attendee, who can plainly
observe the  mutual respect our doctors share with the other esteemed
presenters you have gathered,  reassurance that we have made the right
choice for our treatment.” – Brian Clark

Description
This is the areas largest annual summit on Parkinson's Disease. The 2017 Parkinson's Symposium attracted 817 attendees to Sarasota Memorial's Institute for Advanced Medicine on January 21.  Drawing internationally known researchers and medical experts, this symposium is sought after by the speakers and people affected by PD alike.  
People with PD, their caregivers, and healthcare workers attend annually to hear the latest developments about PD from experts.  
Budget $25,000
Category Health Care, General/Other Health Care Issues
Program Linked to Organizational Strategy Yes
Population Served People/Families of People with Health Conditions Other Health/Disability Aging, Elderly, Senior Citizens
Short Term Success

"Parkinson's Disease has affected my family on a private level too.  My father, a former USMC, was diagnosed with Parkinson's Disease when he was 57 years old.  The diagnosis was not readily accepted by any member of my family.  The methodologies used to diagnose his condition was compounded with various other scary prospects that left not just my father, but the rest of the family, absolutely sick at all "maybe's", "could be's" of the symptoms, treatments and other elements.  I attended the Parkinson's Symposium when it was held at the Ritz Carlton several years ago.  It was one the best things that I ever did for myself, and for my Dad.  I was amazed at the treatment options available, and I left believing that while Parkinson's is a serious diagnosis - there is certainly a lot out there to help slow the progression down, and that the diagnosis itself was not a "death sentence" which is what my father thought it originally was." - Catherine Swan, Healthcare provider

Long Term Success
"If you are living with Parkinson’s disease or other progressive neurological disorder, it can take more than medicine to stop it from taking over your life. Just getting dressed in the morning can be a difficult task. As time goes on, it’s easy for people to give in and give up.

Thanks to a collaborative effort between SMH and the Neuro Challenge Foundation, area Parkinson patients have access to the latest research, treatments and complementary therapies developed to help keep their spirits and bodies up and moving.  Over the years, that support helped this annual symposium evolve into one of the nation’s largest annual Parkinson conferences – one we are proud to co-sponsor each year.  At this symposium, you will hear from world-renowned physicians, researchers and therapists who will share the latest treatments and strategies to slow this degenerative brain condition, which affects millions nationally and as many as 15,000 people in the Sarasota-Bradenton area."  David Verinder, CEO, Sarasota Memorial Healthcare System.
Program Success Monitoring
Patient and family feedback, phone calls, letters and a written evaluation all indicate levels of success and satisfaction for this annual event.
The number of attendees, more than 800 in 2017, is also an indicator of success.  
Program Success Examples

“The Parkinson's Symposium” was very well run and the parking went very smoothly, especially considering the amount of people.  You have so much information that you give at your meetings. I appreciate all the time and work that each of you put into the event.  The doctors are fabulous."  Helen Jodouin.

Description
Parkinson's families often experience social isolation due to physical and other limitations, therefore NCF provides opportunities for PD families to meet, and enjoy company: chorale groups, pot luck lunches, movie nights, dance classes, cultural activities and more. 
Budget $25,000
Category Human Services, General/Other Senior Services
Program Linked to Organizational Strategy Yes
Population Served People/Families of People with Health Conditions Aging, Elderly, Senior Citizens Adults
Short Term Success
PD families will feel less isolated and more connected to a community of people who can sympathize with their situation. 
Long Term Success
Parkinson's families will continue to attend, will refer other families and will express appreciation of opportunities for socialization.  Quality of life overall will improve, and those who have had PD for longer will mentor newly diagnosed families.
Program Success Monitoring
Anecdotal reports collected.
Program Success Examples
"We felt quite hopeless when we first heard the diagnosis of Parkinson's disease, tears rolled down my face.  By coming to the NCF programs, my wife and I have found so much hope, information and friends."
Description The key to our successful work with the Parkinson's family and community is our Care Advising services.  Offered free of charge, our Care Advisors meet individually with people with Parkinson's and/or family members to hear issues, recommend referral options, and provide a structured plan for the next steps which might be needed in the progression of the disease.  All services are provided at no charge.
Budget $75,000
Category Human Services, General/Other Senior Services
Program Linked to Organizational Strategy Yes
Population Served Aging, Elderly, Senior Citizens Families Adults
Short Term Success If our clients refer us to others, if they come back to our Care Advisor with questions, if they return to our educational programs, we are confident they are receiving useful, valuable information.  We have achieved a high return rate.
Long Term Success An annual survey is sent to over 300 patients and comments about the service are requested.  100% of those responding to survey in past two years said they would recommend our service to others.  We work closely with those who have progressed and are in late stages to refer home care or assisted living.  We work closely with those newly diagnosed to help through the anger and denial and direct them to educational supports.  Long term success is the family's ability to have a more positive outlook on this disease.
Program Success Monitoring Annual survey, and patient feedback as well as attendance.
Program Success Examples Neuro Challenge Foundation is the only organization that provides individualized Care Advising to people affected by Parkinson's. There is a video on our website and attached to this profile that exemplifies the important and efficacy of this program. Sara Weinberg, care partner to her spouse who has PD, states in the video "Neuro Challenge saved my life". 
Comments
Program Comments by Organization
The core programs of NCF are educational and support services, care advising, and community resource referrals offered to individuals with Parkinson disease, their caregivers and medical professionals.  For the person with Parkinson's, they will be provided with a customized care plan by a trained Care Advisor. Plans can include referrals to community resources, small group care activities, financial assistance information, nutritional information, alternative living options for assisted living or skilled nursing facilities.  The educational programs are for both the medical community and people with PD and their families, to provide the latest information in order to live well with Parkinson's. 
 
NCF works closely with the medical community in Manatee, Sarasota, Charlotte and Pinellas counties. 
CEO/Executive Director
CEO/Executive Director Robyn Faucy
CEO Term Start Apr 2016
CEO/Executive Director Email Robyn@neurochallenge.org
Experience

Robyn has held leadership roles with Big Brothers Big Sisters, American Cancer Society, Sylvan Learning Centers, and most recently the Education Foundation of Sarasota County.

Robyn has an impressive mix of academics, leadership and organizational leadership that includes fundraising, capacity-building, and synergistic partnership development. She is a member of the Sarasota Chamber of Commerce’s 2016 Leadership Sarasota program. 
Former CEOs/Executive Directors
NameTerm
Judith Lynn Bell Jan 2012 - Apr 2016
Senior Staff
NameTitle
Carisa Campanella Care Coordinator
Sara Weinberg Office Administrator
Jennifer Williams Neuro Challenge Care Advisor - half time
Staff & Volunteer Statistics
Full Time Staff 4
Part Time Staff 0
Staff Retention Rate % 100
Professional Development Yes
Contractors 5
Volunteers 50
Management Reports to Board Yes
CEO/Executive Director Formal Evaluation Yes
Senior Management Formal Evaluation Yes
Non-Management Formal Evaluation Yes
Collaborations
Neuro Challenge Foundation has collaborations with numerous community and healthcare professional organizations.
External Assessments and Accreditations
Assessment/AccreditationYear
Awards & Recognition
Award/RecognitionOrganizationYear
Frank G. Berlin Sr Small Business of the Year Healthcare/WellnessSarasota Chamber of Commerce2014
Risk Management Provisions
General Property Coverage
Government Licenses
Organization Licensed by the Government No
Plans
Fundraising Plan No
Communication Plan No
Strategic Plan Yes
Strategic Plan Years 3
Strategic Plan Adopted Feb 2017
Management Succession Plan No
Continuity of Operations Plan No
Policies
Nondiscrimination Policy No
Whistle Blower Policy Yes
Document Destruction Policy Yes
Directors and Officers Insurance Policy No
Policies and Procedures Yes
Comments
Management Comments by Organization
Neuro Challenge Foundation is a growing organization. The demand for its services is rapidly outgrowing the ability of volunteers alone.  With over 500 people attending the Symposium and serving over 1500 people with Parkinson's annually, the organization is challenged by the ability to respond quickly and professionally to these needs.  We need an additional Care Advisor as this population continues to grow and require more services and programs.
Planning & Policies Comments by Organization Neuro Challenge Foundation's Board of Directors and Executive Director are currently developing a new strategic framework to guide the organization's expansion from 2017-2020.  
Multi-Media Comments by Organization Neuro Challenge Foundation is inspired daily by our Parkinson's community. We strive to empower our families with education, service and support as we fight this disease together.
Other Documents
Board Chair
Board Chair Kathie Musto
Company Affiliation Kindred Home Health
Board Term Sept 2016 to Sept 2017
Board Chair Email musto.kathie@gmail.com
Board Members
Board Members
NameAffiliation
Babette Bach Attorney at LawBach & Jacobs
Gana Gilkey Michael A. Gilkey, Inc.
Nola Hietbrink Community Volunteer
Kathie Musto R.N.Gentiva
Steve Oppen Retired
Stan Schuer retired
Jeffery Stevens CPAJRSBCS
Jackie Wides Community volunteer
Constituency Includes Client Representation Yes
Board Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 8
Hispanic/Latino 0
Native American/American Indian 0
Other 0 0
Board Gender
Male 3
Female 5
Unspecified 0
Governance
Board Term Lengths 3
Board Term Limits 2
Board Orientation Yes
Number of Full Board Meetings Annually 9
Board Meeting Attendance % 84
Board Self-Evaluation Yes
Written Board Selection Criteria Yes
Board Conflict of Interest Policy Yes
% of Board Making Monetary Contributions 100
% of Board Making In-Kind Contributions 100
Standing Committees
Finance
Board Governance
Executive
Program / Program Planning
Development / Fund Development / Fund Raising / Grant Writing / Major Gifts
Advisory Board / Advisory Council
Comments
Governance Comments by Organization
The Board of Directors is an active governing board.  The board consists of community leaders, people with PD, caregivers of people with PD, and individuals with significant non-profit Board experience.  Board donations, individual and from foundations, totaled over $75,000 in 2015.
Fiscal Year Projections
Fiscal Year Start Month Jan
Fiscal Year Start Day 01
Fiscal Year Begins 2017
Fiscal Year End Month Dec
Fiscal Year End Day 31
Fiscal Year Ends 2017
Projected Revenue $437,000.00
Projected Expenses $480,966.00
Total Projected Revenue includes "in-kind" contributions/ donations No
Organization has Endowment No
Endowment Spending Policy N/A
Capital Campaign
Currently In a Capital Campaign No
Anticipate Campaign within 5 years? No
Campaign Purpose
Campaign Goal
Campaign Dates 0 to 0
Amount Raised To Date 0 as of 0
Historical Financial Review
Expense Allocation
Fiscal Year201620152014
Program Expense$294,645$361,090$324,293
Administration Expense$106,132$6,644$22,790
Fundraising Expense$0$4,687$17,033
Payments to Affiliates$0$0$0
Total Revenue/Total Expenses0.861.110.88
Program Expense/Total Expenses74%97%89%
Fundraising Expense/Contributed Revenue0%1%6%
Assets and Liabilities
Fiscal Year201620152014
Total Assets$288,571$319,855$277,853
Current Assets$257,012$307,762$92,922
Long-Term Liabilities$0$0$0
Current Liabilities$17,279$4,325$18
Total Net Assets$271,292$315,530$277,835
Top Funding Sources
Fiscal Year201620152014
Top Funding Source & Dollar AmountProgram service revenue $195,168Fundraising $170,303Contributions, gifts, grants $152,203
Second Highest Funding Source & Dollar AmountContributions, gifts, grants $123,204Contributions, gifts, grants $159,991Fundraising $139,190
Third Highest Funding Source & Dollar AmountFoundation and corporate support $18,500Program service revenue $77,540Speaker Series $12,667
CEO/Executive Director Compensation $75,001 - $100,000
Tax Credits No
Solvency
Short Term Solvency
Fiscal Year201620152014
Current Ratio: Current Assets/Current Liabilities14.8771.165162.33
Long Term Solvency
Fiscal Year201620152014
Long-Term Liabilities/Total Assets0%0%0%
Financials Comments
Financial Comments by Organization
Neuro Challenge Foundation is in a strong financial position with financial procedures and GAAP in place.  
***It is important to note that the organization changed from a cash to accrual accounting basis in 2016 which gives the appearance that certain income goals were were not achieved.  
The organizations first audit will be conducted for the 2016 fiscal year in 2017. 
Financial Comments by Foundation
Financial figures based on IRS Form 990. Individual contributions include foundation and corporate support, as reported on Form 990.  Financial information for 2016 taken solely from the unaudited compilations as the Federal tax return was not available at time of review.
Nonprofit Neuro Challenge Foundation Inc
Address 722 Apex Road, Office A
Sarasota, FL 34287
Phone 941 926-6413

THE COMMUNITY FOUNDATION OF SARASOTA COUNTY, INC. IS A REGISTERED 501(C)(3) NON-PROFIT CORPORATION. A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE WITHIN THE STATE (1-800-HELP-FLA) OR FROM THE WEBSITE: WWW.FRESHFROMFLORIDA.COM. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE. ONE HUNDRED PERCENT (100%) OF EACH CONTRIBUTION IS RECEIVED BY THE COMMUNITY FOUNDATION OF SARASOTA COUNTY. REGISTRATION #SC-02471.