Alzheimer's Disease & Related Disorders Association
3277-A Fruitville Road, Suite 1
Sarasota FL 34237
Mission

Alzheimer's Disease & Relation Disorders Association -- Florida Gulf Coast Chapter mission is to eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health. Our vision is a world without Alzheimer's disease.

Leadership
CEO/Executive Director Ms. Gloria J.T. Smith
Board Chair Andrew Weintraub
Board Chair Company Affiliation Health First, Inc. VP Sales & Business Development
History and Background
Former Names
Alzheimer's Association - Sarasota Manatee Chapter
Alzheimer's Association - Southwest Florida Chapter
Organization DBA
DBA
Alzheimer's Association
Alzheimer's Association - Florida Gulf Coast Chapter
Tax Exempt Status Public Supported Charity
Supported Organization n/a
Awarded a competitive grant from Community Foundation in the last 5 years?
Incorporation Year 1982
Financial Summary
 
 
Projected Revenue $2,075,308.00
Projected Expenses $2,074,304.00
Additional Documents
IRS Letter of Determination
IRS Determination Letter
State Info
State Charitable Solicitations Permit Yes July 2015
State Registration Yes July 2019
Statements
Impact
2014 ACCOMPLISHMENTS:
 
1. Completed the Purple Ribbon Plan which was the first statewide Alzheimer's Plan that was legislated by the State of Florida.
 
2. Renewed/Updated our three-year Strategic Plan ( including Program Outreach, Advocacy, Research and Development) through FY 17 incorporating components of the Purple Ribbon Plan into our Strategic Plan. Implemented the first year of the updated Strategic Plan.
 
2. Recognized by the national Alzheimer's Association for meeting 100% of FY12-14 Strategic Plan Goals, in 2 of 5 goal areas and over 90% in the remaining goal areas.
 
3. Developed programs specifically targeting female caregivers; who were identified in the 2014 Alzheimer's Disease Facts & Figures Report as most significantly impacted by the disease.
 
2015 GOALS (based on Strategic Plan):
 
1. Increase Alzheimer's concern and awareness through increasing media impressions and participation in Association activities.
2. Advance public policy initiatives on regional, State and Federal levels by increasing federal funding for research, creating early detection initiatives, care planning initiatives and developing a Federal and State Alzheimer's plan.
3. Enhance earlier access to care and support through physician outreach and access to services by newly diagnosed individuals and their caregivers.
4. Accelerate research progress through increasing research funding and earlier access to clinical trials.
5. Achieve significantly greater Chapter mission impact by growing combined events revenue by 45%, individual gifts by 17%, corporate and foundation gifts by 19%  and grant revenue by 30%.
Background

The Florida Gulf Coast Chapter was founded in 1982. Known then as the Tampa Bay Chapter, it served Pinellas, Hillsborough, and Polk counties. In 1999, the West Central Florida Chapter was merged with the Tampa Bay Chapter adding Citrus, Hernando, Pasco and Sumter counties increasing the Chapter's service region to seven counties.  In 2002, the Sarasota/Manatee Chapter and the Southwest Florida Chapters were merged into the Tampa Bay Chapter. These mergers added Charlotte, Citrus, Collier, DeSoto, Glades, Hardee, Hendry, Highlands, Lee, Manatee, and Sarasota counties to the Chapter's service region.  With this expansion, the Tampa Bay Chapter changed its name to the Florida Gulf Coast Chapter to better reflect its comprehensive 17-county service region. Within the 17 counties that comprise the Florida Gulf Coast Chapter, the Florida Department of Elder Affairs estimates that in 2008 there are 189,032 people living with Alzheimer's disease. This number does not include the “snowbirds” who reside in the region during the winter months. 

Our professional staff is dedicated to helping people navigate through the difficult decisions and uncertainties people with Alzheimer’s and their families face at every stage of the disease. Core services include a 24/7 helpline, care consultations, caregiver support groups, Medic Alert and Safe Return, and education/outreach regarding Alzheimer’s disease. The Chapter also features an advocacy program in which volunteer advocates take issues of concern directly to their legislators in Tallahassee and Washington D.C. to find better medical treatments and a cure. All of the Chapter’s services are provided free of charge and are funded through the Chapter’s grants program, and annual giving campaign, and other fundraising efforts.

Needs
  • Ability provide our Caregiver Connection Program to an additional 750 people living with Alzheimer's disease and their caregivers.   The Caregiver Connection is a coordinated array of services (including but not limited to Care Planning Consults, Caregiver Training, Support Groups, 24/7 Helpline, and Respite Care) designed to address the unique support needs of the target populations.  Cost $45,000
  • Provide 30 Medic Alert5 +Safe Return scholarships to people living with Alzheimer's disease to help locate them and return them safely home should they wander and become lost. 80% of people living with Alzheimer's disease will wander and become lost, if not found within 24 hours 50% will be seriously injured or die. The program has a 99% success rate of returning wanderers safely home. Cost: $1,890
  • Duplicate and package 400 DVDs that will be provided to physicians to distribute to newly diagnosed individuals and their caregivers to inform them about the disease and the support services that are available to them. This information will streamline access to support programs that can prevent costly mistakes as they learn to cope with this new hurdle in their lives.  Cost: $2,000
  • 24/7 Helpline services for 300 individuals providing them information on all aspects of Alzheimer's disease; including the complimentary mailing Helpline packets of information tailored to their specific needs. Cost: $1,440
Statement from the CEO/Executive Director
 
 I am proud to be a small part of a tremendous team of professionals and volunteers that have made it their life work to support families living with Alzheimer's disease and other memory disorders.

We have the rewarding opportunity to witness, on a daily basis, a family’s transition from fear and confusion to very visible signs of relief that they are not alone in the devastating journey caused by Alzheimer’s disease. 

 The number of families that need our assistance would be daunting if not for the knowledge and dedication we have to support our caregivers and their loved ones.  We know that through our array of services that families provide better care for their loved ones and that their own mental and physical health benefits. Services that include a 24/7 Helpline, individual and family Care Consultations, Support Groups, Caregiver trainings, Respite care, Early Onset Groups and much more. Each family receiving support to their unique needs.

 One in 8 persons over 65 and nearly half of all those 85 and older are developing Alzheimer’s disease. Our organization through the support of our communities is making sure we are prepared to address the increasing demand for help.   It is a rare occurrence to meet someone that has not been touched by this disease.  However, we stay very hopeful.  The Alzheimer’s Association in addition to supporting families is also the largest private non profit funder of Alzheimer’s research.  Our Association holds an annual international research conference bringing thousands of scientists and researchers together with the sole goal of destroying a disease that is taking away our loved ones and their memories with them.  We want all to know that until there is a cure we will be by your side providing support and care.

 
 
 
 
 
 
Areas Served
Areas Served
Area
In a specific U.S. city, cities, state(s) and/or region.
FL
FL- Charlotte
FL- DeSoto
FL- Hardee
FL- Hillsborough
FL- Lee
FL- Manatee
FL-Pinellas
FL- Sarasota
Service Categories
Primary Org Type Human Services
Programs
Description The Alzheimer's Association - Florida Gulf Coast Chapter's programs include a 24/7 Helpline, Support Groups, Care Consultations, Respite Care, Education, Caregiver Training, and the Medic Alert + Safe Return Program (for wandering prevention).
Budget $347,898
Category Human Services, General/Other Senior Services
Program linked to organizational strategy? Yes
Population Served People/Families with of People with Disabilities Aging, Elderly, Senior Citizens Families
Short Term Success

Outcomes:
1. 90% of Helpline callers indicate they would be comfortable accessing additional services.
2. 75% of respite recipients indicate a feeling of decreased care giving burden.
3. 85% of Support Group attendees report an increase in support through interaction with peers.
4. 80% of those receiving Care Consults feel more in control of their care giving responsibilities.
5. 85% of Caregiver Trainings participants report learning skills to help care for their loved one.
6. Overall, 90% satisfaction rate of program participants

 

Long Term Success

 The Caregiver Connection is a coordinated array of services designed to address the unique support needs of people living with Alzheimer’s disease or a memory related disorder and their caregivers. The program assists caregivers in overcoming barriers and guides them through the process of identifying and accessing support services that assist them in acquiring a higher level of care and life quality for themselves and the loved one for whom they provide care.

 

Program Success Monitored By The evaluation process is centered on client feedback through satisfaction surveys. Each program’s Satisfaction Survey asks specific questions which will indicate if the participants of that program are receiving the program’s desired outcome. For example, Satisfaction Surveys for Caregiver Trainings will solicit feedback that will indicate if the participant feels better equipped to meeting the needs of the individual for whom they provide care after participating in the training.Based on this feedback we are able to determine if our programs are producing the desired outcome. If the satisfaction surveys would indicate that we not achieving the desired outcome for a specific program, the information collected by the Satisfaction Surveys will alert us to this and provide us with information as to where the program has missed the mark and how it needs to be modified. This system provides us with an on-going method to evaluate program effectiveness and prevents us from unknowingly providing a program that is not achieving its intended outcomes.
Examples of Program Success  Over the past 12 months:
1. 96% of Helpline callers indicate they would be comfortable accessing additional services.

2. 87% of respite recipients indicate a feeling of decreased care giving burden.

3. 91% of Support Group attendees report an increase in support through interaction with peers.

4. 97% of those receiving Care Consults feel more in control of their care giving responsibilities.

5. 96% of Caregiver Trainings participants report learning skills to help care for their loved one.

6. Overall, 98% satisfaction rate of program participants

Description
Reaching out to physicians to increase their awareness of and streamline referrals of people living with Alzheimer's disease or a related disorder and their caregivers to the alzheimer's Association.
Budget $15,000
Category Human Services, General/Other Senior Services
Program linked to organizational strategy? Yes
Population Served Aging, Elderly, Senior Citizens People/Families with of People with Disabilities Families
Short Term Success Conduct outreach, consisting of at least two contacts, with the goal of reaching the clinical practices of 80 percent of neurologists and geriatricians and 50 percent of the top prescribingclinical practices within general/family medicine, internal medicine and psychiatry over the next three years.
Long Term Success The Alzheimer's Association will be an early and ongoing point of contact for at least 50 percent of people newly diagnosed with Alzheimer's disease, either directly or through a caregiver
Program Success Monitored By

 Improve meaningful engagement of early-stage constituents through a 50 percent increase in participation in consistent, high-quality and evidence-based early-stage programs, support groups and volunteer activities.

 

Examples of Program Success
This program has been in effect since July 2011. Measureable in the first six months of the program include identifying and mailing infomration to the top dementia medication physicians in the area, conducting in person outreach to the physician and the development of of data tracking mechanisms to monitor the programs progress towards its mezsurable outcomes.
Description
This program is specifically designed to meet the special needs of indivudals suffering from Younger Onset (20 - 60 years old) and their caregivers in addition to those who are in the early stages of the disease.
Budget $8,000
Category Human Services, General/Other
Program linked to organizational strategy? Yes
Population Served People/Families of People with Health Conditions
Short Term Success
Participants learn about their disease, how to prepare for the impact both in the presnet and the future and will gain peer support from fellow program participants.
Long Term Success
Planning and preparation is in place to prevent future crisis related to the advancement of thier disease.  Caregivers are better informed and equipped to meet their caregiving responsibilites in a healthier manner that will delat costly placement in the future.
Program Success Monitored By
Client feedback surveys that provide indicators of disease education, coping skills and decreased stress.
Examples of Program Success
Program is newly inplemented and program success stories are pending.
CEO/Executive Director
Executive Director Ms. Gloria J.T. Smith
CEO Term Start July 2000
Email smithg@alzflgulf.org
Experience Gloria J.T. Smith has 34 years of non-profit management expertise. She has been the President/CEO of Alzheimer’s Association – Florida Gulf Coast Chapter since 2000. She has been an executive with the United Way system, where she was Director of the Management Assistance Program for nonprofits and responsible for planning, evaluation and allocations for member agencies. She was also a nationally known administrator of an AIDS organization that was selected by the U.S. Assistant Secretary of Health as one of the top five AIDS organizations in the country. She has served on numerous of local, state and national boards of nonprofits including serving as Chairperson for the International AIDS Committee of the National AIDS Council.
Staff
Full Time Staff 23
Part Time Staff 1
Volunteers 1800
Contractors 2
Staff Retention Rate % 85
Professional Development Yes
Management Reports to Board Yes
Organization Plans
Fundraising Plan No
Communication Plan No
Strategic Plan Yes
Strategic Plan Years 3
Strategic Plan Adopted July 2014
Management Succession Plan No
Policies and Procedures Yes
Continuity of Operations Plan Yes
Former CEOs
NameTerm
Eric Green July 1996 - Feb 2000
Vivian Marshall Jan 1994 - Feb 1996
Formal Evaluations
CEO Formal Evaluation Yes
Senior Management Formal Evaluation Yes
NonManagement Formal Evaluation Yes
Collaborations

The Alzheimer’s Association works in collaboration with The Senior Friendship Centers, Southwest Florida Area Agency on Aging, West Central Florida Area Agency on Aging, Memory Disorders Clinic of Sarasota Memorial Hospital, Jewish Children and Family Services. We also have collaborative agreements with the following respite care providers to provide free or reduced cost respite care: A Banyan Residence, A Better Solution of Sarasota, A Better Solution of Venice, A Bridge for Independence, All Stat Home Health, Alterra Clare Bridge, Approved Home Health, BrightStar of South Sarasota, Catalano's Nurses Registry, Coastal Care Nursing, Comfort Keepers, Connections for Seniors, Cypress Gardens,  Emeritus at Colonial Park, Emeritus at Sarasota, Family Private Care, Granny Nannies, Hanson Services, Harmony Pavilion, Home Instead Senior Care, Kelly Home Care Services, Live Oak Manor, Manor Care, Maxim Healthcare Services, Nursing Resources, Nursing Resources, Nursing Styles, Osprey Pointe on Palmer Ranch, Palmer Ranch, Perfect Solutions For Seniors, Regal Home Care, ResCare HomeCare, Right Accord, Right at Home, Senior Helpers, Springwood Rehabilitation & Nursing Center, Take Care Home Health, Visiting Nurse Association and Whitsyms Nursing Service.

Affiliations
AffiliationYear
Affiliate/Chapter of National Organization1984
Awards
Awards
Award/RecognitionOrganizationYear
Non-Profit of the Year FinalistTampa Bay Buisness Journal2012
Non-Profit of the Year FinalistTampa Bay Business Journal2014
National Family Caregiving Award for Innovation, Responsiveness and EffectivenessNational Alliance for Caregivng2008
Government Licenses
Is your organization licensed by the Government? No
Policies
Nondiscrimination Policy Yes
Whistle Blower Policy Yes
Document Destruction Policy Yes
Directors and Officers Insurance Policy Yes
Board Chair
Board Chair Andrew Weintraub
Company Affiliation Health First, Inc. VP Sales & Business Development
Board Term Apr 2014 to Apr 2015
Email
Board Members
Board Members
NameAffiliation
Scott Anderson Senior Philantrophic Advisor, Gulf Coast Community Foundation
Brad Beatty Heart of Winter Haven, Inc. President/Owner
Paul Charlesworth March, Inc., Sr VP Managing Director, retired
Tom Conklin Esq.Elder Law Attorney
David Gollins JP Morgan Chase, Executive Director
William (Bill) Haley Ph.D.USF, Professor, School of Aging Studies
Aryn L. Harrison Bush Ph.D.University of South Florida Asst Prof School of Aging Studies
Paul Hasting AT&T, Division Manager, Retired
John Martinez MetLife - Vice President Specialized Accounting and Reporting
Susan Naselli M.D.Neurologist VA
Susan M. Naselli M.D.Veterans Health Administration, Neurology Consultant
Gail Neuharth Northern Trust
Jason A. Penrod Esq.Family Elder Law
Joseph (Joe) Raissi Raymond James Financial, Branch Manager
Stephanie Shaw Pastor RealtorPrudential
Alan Silverglat Knight Ridder, Inc. Corporate VP & Treasurer Retired
Abida Taher M.D., Ph.D.Abida Taher, P.A.
Patricia Turner R.N. BA , RetiredRetired RN
Andrew (Drew) Weintraub Health First, Inc. VP Sales & Business Development
Ron Wheeler The Sembler Company, CEO
Student serving on the board through Community Youth Development? No
Board Demographics - Ethnicity
African American/Black 1
Asian American/Pacific Islander 0
Caucasian 16
Hispanic/Latino 1
Native American/American Indian 0
Other 2 - Middle Eastern
Board Demographics - Gender
Male 13
Female 7
Unspecified 0
Governance
Board Term Lengths 2
Board Term Limits 4
Board Orientation Yes
Board Meeting Attendance % 90
Number of Full Board Meetings Annually 6
Board Self-Evaluation Yes
Written Board Selection Criteria Yes
Written Conflict of Interest Policy Yes
Percentage of Board Making Monetary Contributions 100
Percentage of Board Making In-Kind Contributions 100
Constituency Includes Client Representation Yes
Standing Committees
Audit
Development / Fund Development / Fund Raising / Grant Writing / Major Gifts
Executive
Finance
Nominating
Program / Program Planning
Financial Info
Fiscal Year 2014
Projected Revenue $2,075,308.00
Projected Expenses $2,074,304.00
Historical Financials
Revenue SourcesHelpThe financial analysis involves a comparison of the IRS Form 990 and the audit report (when available) and revenue sources may not sum to total based on reconciliation differences. Revenue from foundations and corporations may include individual contributions when not itemized separately.
Fiscal Year201420132012
Foundation and
Corporation Contributions
$0$0$0
Government Contributions$204,289$193,663$180,050
Federal$59,923$0$0
State$100,000$0$0
Local$44,366$0$0
Unspecified$0$193,663$180,050
Individual Contributions$2,399,954$2,114,001$992,728
$0$3,810$5,833
$6,600$7,145$15,078
Investment Income, Net of Losses$88,473$76,245$21,257
Membership Dues$1,456$1,577$1,743
Special Events$0$0$386,973
Revenue In-Kind$20,014$39,916$432,017
Other$0$16,659$0
Expense Allocation
Fiscal Year201420132012
Program Expense$1,525,678$1,612,343$1,530,604
Administration Expense$196,002$184,405$297,037
Fundraising Expense$215,612$243,274$102,229
Payments to Affiliates$0$0$0
Total Revenue/Total Expenses1.391.180.83
Program Expense/Total Expenses79%79%79%
Fundraising Expense/Contributed Revenue8%11%7%
Assets and Liabilities
Fiscal Year201420132012
Total Assets$3,166,876$2,429,348$2,002,310
Current Assets$2,457,720$1,825,436$1,981,141
Long-Term Liabilities$0$0$0
Current Liabilities$310,676$295,347$243,148
Total Net Assets$2,856,200$2,134,001$1,759,162
Top Funding Sources
Fiscal Year201420132012
Top Funding Source & Dollar AmountContributions, gifts, grants $2,399,954Contributions, gifts, grants $2,114,001Contributions, gifts, grants $992,728
Second Highest Funding Source & Dollar AmountGovernment Grants - State $100,000Government Grants - Unspecified $193,663Fundraising $386,973
Third Highest Funding Source & Dollar AmountInvestment Income $88,473Investment income $76,245Government grants $180,050
CEO Compensation
Co-CEO Compensation
Tax Credits No
Solvency
Short Term Solvency
Fiscal Year201420132012
Current Ratio: Current Assets/Current Liabilities7.916.188.15
Long Term Solvency
Fiscal Year201420132012
Long-Term Liabilities/Total Assets0%0%0%
Capital Campaign
Currently in a Capital Campaign? No
Capital Campaign Anticipated in Next 5 Years? No
Financials Comments
Financial Comments by Foundation
Financial figures taken from IRS Form 990 and audit documents. 990s and audits reconcile. Individual contributions include foundation & corporate support, as reported on Form 990s. 
Nonprofit Alzheimer's Disease & Related Disorders Association
Address 3277-A Fruitville Road, Suite 1
Sarasota, FL 34237
Primary Phone 941 365-8883
CEO/Executive Director Ms. Gloria J.T. Smith
Board Chair Andrew Weintraub
Board Chair Company Affiliation Health First, Inc. VP Sales & Business Development
Year of Incorporation 1982
Former Names
Alzheimer's Association - Sarasota Manatee Chapter
Alzheimer's Association - Southwest Florida Chapter

THE COMMUNITY FOUNDATION OF SARASOTA COUNTY, INC. IS A REGISTERED 501(C)(3) NON-PROFIT CORPORATION. A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE WITHIN THE STATE (1-800-HELP-FLA) OR FROM THE WEBSITE: WWW.FRESHFROMFLORIDA.COM. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE. ONE HUNDRED PERCENT (100%) OF EACH CONTRIBUTION IS RECEIVED BY THE COMMUNITY FOUNDATION OF SARASOTA COUNTY. REGISTRATION #SC-02471.