Stroke Association of Florida Inc
P.O. Box 25082
Sarasota FL 34277
Mission
To reduce the incidence and impact of stroke in Sarasota and Manatee counties by educating the community about stroke risks, prevention, signs and symptoms.
Leadership
CEO/Executive Director Kim E James
Board Chair Holly J. Dykema
Board Chair Affiliation Stroke Association of Florida
General Info
Organization DBA
DBA
Stroke Association of Florida, Inc
Supported Organization
Former Names
No former name.
Tax Exempt Status Public Supported Charity
Incorporation Year 2009
Awarded competitive grant from Community Foundation in the last 5 years? Yes
State Charitable Solicitations Permit Yes Sept 2015
State Registration Yes Dec 2015
IRS Letter of Determination
View
Financial Summary
 
 
Projected Revenue $100,325.00
Projected Expenses $94,781.00
Other Documents
Impact Statement

Fifth Annual Victory Over Stroke Sarasota - 2014

Sixth Annual Victory Over Stroke Manatee - 2015
 

Needs Statement

$15,000 for public service announcements raising awareness about the signs and symptoms of stroke and the importance of calling 911 immediately to help reduce the impact of disability.

Background Statement

There are no words to adequately describe the instant, devastating and lifelong effects of a stroke! Founder and Program Director, Holly Dykema, knows the challenges first hand; her husband suffered a massive stroke at the age of 50. This life event inspired her to share her story and help others in her community by enlisting her sister, Kim James to create the Stroke Association of Florida (SAF).

SAF is modeled after the Peninsula Stroke Association, a California non-profit that helped Holly and Richard as they began to rebuild their lives after the stroke.

Stroke is the leading cause of adult disability and can happen at any age. It’s the 5th cause of death nationwide. More women die of stroke every year than of breast cancer. Approximately 2,800 strokes happen in Sarasota and Manatee counties annually. With over 8,000 baby boomers turning 65 every day for the next 19 years, that number will significantly rise!

By managing risk factors with regular medical care, appropriate screenings and lifestyle modifications, 80% of strokes are preventable. 85% of strokes are treatable within 3 hours of onset if the patient knows the warning signs and calls 911 promptly. The estimated cost of stroke is over $68 billion each year; loss of earnings is expected to be the highest cost contributor in the next 50 years.

Studies suggest that an aggressive, multilevel stroke education and awareness program can increase recognition of stroke symptoms and reduce delay in getting treatment in a timely manner thus increasing chances for a better outcome.

Since its inception in 2009, Stroke Association of FL has touched over 8500 lives through stroke prevention presentations, participation in health fairs and distribution of educational materials and has provided over 700 free stroke risk health screenings. The devastating effects of stroke can be overwhelming. Caregivers have identified the transition to home life as being the most difficult during the first two years. The Resource Guide for Stroke Survivors and Caregivers can help minimize many of those transition challenges through its listing of over 500 local services.
 
Stroke Association of FL has built relationships with local hospitals, healthcare professionals, non-profit organizations, stroke survivors and caregivers. We have become a recognized source for education on stroke prevention.

Areas Served
Areas Served
Area
FL- Sarasota
FL- Manatee
Service Categories
Primary Org Type Diseases Disorders & Medical Disciplines
Secondary Org Type Education
Tertiary Org Type Education
Keywords
Stroke Awareness and Education, Stroke Resources and Referrals
Statement from the Board Chair/Board President
Statement from the CEO/Executive Director
Programs
Description

Lectures: Presentations to schools, churches, senior centers, community groups and corporations on stroke risk factors, prevention, symptoms and critical need to call 911 for emergency treatment.
 
Screenings: Free stroke risk screenings (carotid artery ultrasound, blood pressure, cholesterol, glucose) are provided by healthcare professionals at events organized by Stroke Association of FL.

Annual Victory Over Stroke Symposium: Stroke risks and prevention presentations by distinguished speakers, free stroke risk screenings, and exhibitors showcasing health and wellness information and services for stroke survivors and caregivers.

Health Fairs: Staff and volunteers provide educational brochures, stroke risk assessment worksheets, stroke warning signs magnets and wallet cards.

Website: Information on stroke, risk factors, prevention, symptoms, women & stroke and life after stroke. A calendar of events, lectures and health fairs. Links to national stroke and caregiver websites.

Budget $38,678
Category Diseases, Disorders & Medical Disciplines, General/Other Cardiovascular Diseases
Program Linked to Organizational Strategy Yes
Population Served Adults Aging, Elderly, Senior Citizens At-Risk Populations
Short Term Success

More women die each year of stroke than breast cancer; yet more women know the risks of breast cancer and are unaware of the signs and symptoms of stroke and the risk factors that can be addressed in order to prevent a stroke from occurring. The Stroke Association of Florida is opening the door to increase that awareness through its presentations, website, and information sharing at health fairs.

Education and awareness about the importance of identifying the symptoms of stroke and seeking immediate medical help is paramount. Two million brain cells die every minute a stroke goes untreated. 85% of strokes are treatable within 3 hours of onset. Studies show there has been a 40 percent increase in the use of the clot busting drug tPA in recent years. Education and awareness programs like those provided by the Stroke Association of Florida have helped people identify the signs and symptoms of stroke early and reach the hospital in time for this life-saving treatment.

Long Term Success
By identifying the risk factors of stroke through education and free screenings provided by the Stroke Association of Florida, further medical care and treatment can be sought to help prevent a stroke from happening in the future. 80% of strokes are preventable. Medications and lifestyle changes can significantly reduce the risk of stroke over the long term.

Stroke can happen at any age. Nearly 75% of strokes occur in people over the age of 65. 8,000 to 10,000 baby boomers will be turning 65 every day for the next 19 years. The Stroke Association of Florida through their free screenings, education and awareness will influence this large population to take steps necessary to prevent the devastating effects of stroke in their future. This particular population traditionally doesn’t think it could happen to them; however this is the population at most risk for significant devastating outcomes physically, emotionally and financially.
Program Success Monitoring
Screening Outcome Reports – each stroke risk screening that is conducted is tracked along with an indication of “within normal” or “outside of normal”. Participants with screening results “outside of normal” range are advised to consult with their doctor for further review of the test results.

Lecture Surveys – Guests are asked to complete a survey after the lecture to assess the percentage of those who increased their knowledge of prevention & risks of stroke, signs and symptoms of stroke, and the importance of calling 911.
 
Website – We collect site usage and analytics to determine where best to focus website content.

Board – We survey the board annually to review results against plan and make adjustments to the next 12 month plan if necessary.
Program Success Examples

The Stroke Association of Florida reaches over 4000 people every year through presentations, magnets, wallet cards and break room posters outlining the signs and symptoms of stroke. These tools have been utilized by the community for quick reference before calling 911.

The Stroke Association of Florida conducts its Annual Victory Over Stroke Symposium with free screenings. A 98% blocked artery was detected in a woman attending the Symposium which resulted in life-saving surgery. Many of the risk factors of stroke (high blood pressure, diabetes, high cholesterol, atrial fibrillation, and blocked carotid arteries) are silent and produce no symptoms. The Stroke Association of Florida provides over 500 free screenings each year to detect these stroke risk factors.

Awareness programs across the country like the one the Stroke Association of Florida provides have helped to influence a 50% increase in smoking cessation, smoking being one of the major risk factors for stroke.
Description

Resource Guide: Online guide of resources for stroke survivors, caregivers, counselors, health professionals and stroke group leaders in over 45 categories including rehabilitation services, independent living skills training, daily living aids, recreation, companion and home health care services, and more.

Website: One-stop access to stroke information, resource guide, stroke survivor and caregiver stories, calendar of support group meetings, health fairs and lectures. Rather than searching the internet, use the LINKS section to access credible stroke and caregiver sites, on-line support groups, and stroke magazines.


Budget $30,491
Category Diseases, Disorders & Medical Disciplines, General/Other Diseases & Disorders
Program Linked to Organizational Strategy Yes
Population Served Elderly and/or Disabled People/Families with of People with Disabilities Victims
Short Term Success

The Joint Commission on Accreditation of Healthcare Organizations has applauded the Stroke Association of Florida’s Resource Guide for Stroke Survivors and Caregivers as a valuable tool for hospitals to utilize in their discharge process to help stroke survivors and caregivers easily find needed resources for day to day life upon returning home after the stroke.

The Stroke Association of Florida’s website is a one-stop resource with a calendar of local support groups and other related stroke and caregiving events in the community. Additionally, there are links to over 40 stroke, caregiver and aphasia websites to help navigate the devastating aftermath of a stroke.

The Abilities Possibilities Expo provides easy access, in the course of one afternoon, to over 50 organizations who offer services or products specifically for the disabled. Survivors have the opportunity to explore solutions which could help manage their condition, adapt their environment and add some fun to their lives.

Long Term Success
Stroke survivors and caregivers have identified the transition to home life as being the most difficult during the first two years. By providing a one-stop Resource Guide for Stroke Survivors and Caregivers the Stroke Association of Florida will help to ease the process of finding the various resources needed once the survivor is discharged from the hospital.

The Abilities Possibilities Expo is a mini “live” version of the Resource Guide for Stroke Survivors and Caregivers. At this annual event, survivors and caregivers can continue the education process concerning solutions available to them to help with their condition. Recovery from stroke is a lifelong process, access to the latest products, services and technologies helps the survivor and their caregivers continue to find new ways to help in their recovery.
Program Success Monitoring

Abilities Possibilities Expo – We conduct surveys to collect feedback from the exhibitors, volunteers and the event participants. We also hold a post-event review meeting with the event committee. This feedback, along with anecdotal comments received are used as input for the planning of the next event.

Website – We collect site usage and analytics to determine where best to focus website content.

Board – We survey the board annually to review results against plan and make adjustments to the next 12 month plan if necessary.

Program Success Examples

Abilities Possibilities Expo provides over 200 people the opportunity to explore solutions from over 50 organizations inspiring them to improve daily life and increase independence. Many organizations offered equipment assessments to evaluate product viability for the participants’ situation. At the 2012 Expo Innovative Neurotronics announced a clinical trial of the WalkAide system, an electrical stimulation medical device to improve walking ability of people with foot drop. Many individuals signed up for this study which provides a free WalkAide to study participants ($5000 value).

“It was a great event. I plan on sending an email to our VP and CEO thanking them for purchasing the table – the contacts and people I met were wonderful.” --Blake Medical Center

“It was a pleasure to reconnect with some past students in our program who came to the adaptive golf class with their spouses the following day. Getting folks involved with what they truly love is INVALUABLE!” --Adaptive Golf Academy

Comments
Program Comments by Organization
Program Comments by Foundation
CEO/Executive Director
CEO/Executive Director Kim E James
CEO Term Start Jan 2009
CEO/Executive Director Email Kim@StrokeFL.org
Former CEOs/Executive Directors
NameTerm
Senior Staff
NameTitle
Staff & Volunteer Statistics
Full Time Staff 0
Part Time Staff 2
Staff Retention Rate % 100
Professional Development Yes
Contractors 0
Volunteers 34
Management Reports to Board Yes
CEO/Executive Director Formal Evaluation No
Senior Management Formal Evaluation N/A
Non-Management Formal Evaluation No
Collaborations

Alderman Oaks Retirement Community

Bioness
Blake Medical Center
Boyer & Boyer
Doctors Hospital of Sarasota
HealthSouth Rehabilitation Hospital
Hedges Health Mart Pharmacy
H2U
Intercoastal Medical Group Cardiac & Vascular Specialists
Sarasota Memorial Healthcare System
Sarasota Vascular Specialists
Senior Friendship Centers
Venice Regional Medical Center
 
 
Affiliations
AffiliationYear
External Assessments and Accreditations
Assessment/AccreditationYear
Awards & Recognition
Award/RecognitionOrganizationYear
President's Recognition AwardNational Academy of Elder Law Attorneys, Inc.2012
Risk Management Provisions
Government Licenses
Organization Licensed by the Government
Plans
Fundraising Plan No
Communication Plan No
Strategic Plan No
Strategic Plan Years
Strategic Plan Adopted 0
Management Succession Plan No
Policies and Procedures No
Continuity of Operations Plan
Policies
Nondiscrimination Policy Yes
Whistle Blower Policy Yes
Document Destruction Policy Yes
Directors and Officers Insurance Policy No
Comments
Management Comments by Organization
Management Comments by Foundation
Board Chair
Board Chair Holly J. Dykema
Company Affiliation Stroke Association of Florida
Board Term June 2015 to June 2017
Board Chair Email holly@strokefl.org
Board Members
Board Members
NameAffiliation
Mary Ellen Bond MS, RN, CNRNBlake Medical Center
Brian Caswell Economic Development Investment Fund
Holly Dykema Stroke Association of Florida
Bernard Gaines Stroke Survivor
Dominique Kohlenberger MSPT, CHCHealthy Longevity
Maurie West CPACazley Financing Solutions
Student serving on the board through Community Youth Development? No
Board Demographics - Ethnicity
African American/Black 1
Asian American/Pacific Islander 0
Caucasian 5
Hispanic/Latino 0
Native American/American Indian 0
Other 0 0
Board Demographics - Gender
Male 3
Female 3
Unspecified 0
Governance
Board Term Lengths 2
Board Term Limits 0
Board Orientation Yes
Number of Full Board Meetings Annually 1
Board Meeting Attendance % 40
Board Self-Evaluation No
Written Board Selection Criteria Yes
Written Conflict of Interest Policy Yes
% of Board Making Monetary Contributions 15
% of Board Making In-Kind Contributions 100
Constituency Includes Client Representation No
Standing Committees
Education
Comments
Governance Comments by Organization
Governance Comments by Foundation
Fiscal Year Projections
Fiscal Year Begins 2015
Fiscal Year Ends 2015
Projected Revenue $100,325.00
Projected Expenses $94,781.00
Endowment Value
Endowment Spending Policy N/A
Endowment Spending Policy %
Capital Campaign
In a Capital Campaign No
Campaign Purpose
Campaign Goal
Campaign Dates 0 to 0
Amount Raised To Date 0 as of 0
Capital Campaign Anticipated in Next 5 Years?
Audit/Financial Documents
Historical Financial Review
Expense Allocation
Fiscal Year201320122011
Program Expense$12,003$10,560$70,225
Administration Expense$3,925$0$0
Fundraising Expense$0$0$0
Payments to Affiliates$0$0$0
Total Revenue/Total Expenses1.131.001.24
Program Expense/Total Expenses75%100%100%
Fundraising Expense/Contributed Revenue0%0%0%
Assets and Liabilities
Fiscal Year201320122011
Total Assets$37,688$35,558$35,546
Current Assets$37,147$34,700$34,371
Long-Term Liabilities$0$0$0
Current Liabilities$0$0$0
Total Net Assets$37,688$35,558$35,546
Top Funding Sources
Fiscal Year201320122011
Top Funding Source & Dollar AmountContributions, gifts, grants $14,140Contributions, gifts, grants $19,281Contributions, gifts, grants $74,988
Second Highest Funding Source & Dollar AmountProgram Service Revenue $3,9180 $0Fundraising $11,743
Third Highest Funding Source & Dollar Amount0 $00 $00 $0
CEO/Executive Director Compensation $0 - $50,000
Co-CEO/Executive Director Compensation
Tax Credits No
Solvency
Short Term Solvency
Fiscal Year201320122011
Current Ratio: Current Assets/Current Liabilities------
Long Term Solvency
Fiscal Year201320122011
Long-Term Liabilities/Total Assets0%0%0%
Financials Comments
Financial Comments by Organization
Financial Comments by Foundation Financial information was taken from Federal Form 990-EZ.  Contributions include corporate and foundation support.
Nonprofit Stroke Association of Florida Inc
Address P.O. Box 25082
Sarasota, FL 34277
Primary Phone 941 346-1122

Related Information

Spirit of Manatee

The Spirit of Manatee, an awards event held each February since 2006, publicly recognizes individuals and organizations for their philanthropic spirit and commitment to building a community legacy in Manatee County.


THE COMMUNITY FOUNDATION OF SARASOTA COUNTY, INC. IS A REGISTERED 501(C)(3) NON-PROFIT CORPORATION. A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE WITHIN THE STATE (1-800-HELP-FLA) OR FROM THE WEBSITE: WWW.FRESHFROMFLORIDA.COM. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE. ONE HUNDRED PERCENT (100%) OF EACH CONTRIBUTION IS RECEIVED BY THE COMMUNITY FOUNDATION OF SARASOTA COUNTY. REGISTRATION #SC-02471.