Neuro Challenge Foundation Inc
5602 Marquesas Circle #201
Sarasota FL 34233

Neuro Challenge Foundation, Inc for Parkinson's is dedicated to improving the quality of life of people with Parkinson's disease and their caregivers.
CEO/Executive Director Robyn Faucy
Board Chair Kathie Musto
Board Chair Affiliation Kindred Home Health
General Info
Organization DBA
Neuro Challenge Foundation for Parkinson's
NeuroChallenge Foundation
Supported Organization
Former Names
Tax Exempt Status Public Supported Charity
Incorporation Year 2008
Awarded competitive grant from Community Foundation in the last 5 years?
State Charitable Solicitations Permit Yes Jan 2017
State Registration Yes 0
IRS Letter of Determination
Financial Summary
Projected Revenue $437,000.00
Projected Expenses $480,966.00
Impact Statement
Neuro Challenge Foundation provides care advising, referrals and educational and support programs for people with Parkinson's and their caregivers.

 1.  Conducts annually North America's second largest Parkinson education event for people with Parkinson's, their caregivers and healthcare providers, the Annual Parkinson's Disease Symposium. Attendance is annually over 500 patients and healthcare professionals.

2.  Published the annual Living with Parkinson's resource guide, an up-to-date resource providing guidance to effective treatment, management and support for those with Parkinson's disease. Over 3,000 resource guides have been distributed since September, 2015.

3.  Provide resource information through partnerships with Sarasota Memorial Healthcare,  YMCA Sarasota County, Friendship Centers, We Care Manatee, Pines of Sarasota, Venice Regional Hospital, Blake Medical Center, Bay Pines Veteran's Hospital, primary care physicians, neurologists, occupational and physical therapists, and numerous health care related facilities and programs.  These partnerships allow us to help families meet the myriad of challenges associated with this disease; integrative medical services, including exercise and rehabilitation, education, emotional support and the latest pharmaceutical treatments.

4.  Provided over 4,000 points of service to over 1,500 people with Parkinson's and their caregivers in 2015. 

5.  Expansion into North Port, Venice, and Manatee County through the provision of monthly educational and support services.  Educators include nutritionists, doctors, and other healthcare practitioners.

Needs Statement
Neuro Challenge Foundation is a growing organization, filling a unique niche in the nonprofit health marketplace.  The most pressing needs include:
CARE ADVISOR SERVICES: GOAL: $40,000 In order to meet the increasing demand for Neuro Challenge's services and programs throughout our three county service area (Manatee, Sarasota and Charlotte counties), the hiring of an additional part-time Care Advisor is needed. NCF currently serves more than 1,500 people with Parkinson's and their caregivers each year with two Care Advisors.  

RESOURCE GUIDE REPRINT:  GOAL:  $7,000.00   Neuro Challenge produced its first Parkinson's Resource Guide in September 2015. 5,000 copies of the guide were printed and over 3,000 have been distributed to date which far exceeds the expected distribution rate. The guide needs to be updated and reprinted as we expect to distribute the remaining inventory by early 2017. 

OFFICE SUPPLIES:  Goal:  $2,000.00.  It is amazing how expensive ink is for printers and stamps for mailing!

VOLUNTEERS:  the staff of 4, works with numerous volunteers and can always use more assistance to extend NCF's reach in the Parkinson's community. 

SUPPORT:  Underwriters for PD in Motion Dance Program, Parkinson's Cafe and the Off Key Chorale.

Background Statement
Neuro Challenge Foundation, Inc. was established in 2008 to enhance the quality of life for people with Parkinson disease and their caregivers by providing high quality education and outreach programs to Parkinson's patients and the healthcare community.  When founded, the Board of Directors was struck by an important reality; our community is filled with talented and motivated people, hospitals and clinics are some of the best in the country.  Despite all of these excellent resources for Parkinson's patients, there was no central database or clearing house for coordinating services and information.  Until now.  The Foundation offers free and desperately needed advice and referrals and offers some of the most widely attended and distinguished education programs in the country.
Areas Served
Areas Served
FL- Charlotte
FL- Manatee
FL- Sarasota
Service Categories
Primary Org Type Health Care
Secondary Org Type Human Services
Tertiary Org Type
Parkinson's Disease, education, caregiver, referrals, healthcare resources
Statement from the Board Chair/Board President
Neuro Challenge Foundation (NCF) is  dedicated to:
  • Maintaining the highest standards throughout the organization.
  • Operating as a unified entity - in a culture of service, respect and collaboration.
  • Helping Overcome Parkinson’s Everyday (HOPE)·       
  • Making a relentless effort to better understand, combat and develop a better approach to Parkinson’s disease.
  • Serving ALL people. 
Statement from the CEO/Executive Director
Families who experience a diagnosis of Parkinson's Disease are often left feeling hopeless. I am keenly aware of the frustrations brought on by financial, medical and emotional stresses. Neuro Challenge Foundation is a source of comfort, education and support for the person with Parkinson's and their caregivers. 
Direct services are provided to the Parkinson's community in Manatee, Sarasota and Charlotte counties in the form of Care Advising, educational opportunities and support services. These programs are dedicated to providing the very best knowledge and resources to people with Parkinson's and their caregivers. It is truly an honor to serve the Parkinson's community and to advance the mission of this impactful organization.  
Description Parkinsons Wellness Clubs is a program which services both people with PD and their families, by partnering with professional services, health care providers and therapists for services they may need in their care.   NCF works to educate both people with PD and their loved ones so they can have a more informed dialogue with their physicians.  NCF also educates our professional care providers about Parkinson' disease treatments. Clubs are offered in Bradenton, Sarasota, Venice and North Port and offer monthly educational seminars to families.
Budget $33,000
Category Health Care, General/Other Health Care Issues
Program Linked to Organizational Strategy Yes
Population Served People/Families of People with Health Conditions Other Health/Disability
Short Term Success
The Care Advisors will see at least 100 patients per month for support and referral information.  Five monthly educational seminars are provided to an average of 30 people per seminar.
Long Term Success
Individuals with Parkinson's disease will remain in their homes longer, will show fewer PD symptoms and will report a higher quality of life on the Parkinson's Disease Questionnaire.  Participants complete an annual satisfaction survey and report 100% (!) satisfaction with these services.
Program Success Monitoring
All services are evaluated for patient and professionals satisfaction through a survey.  The increase in attendance monthly, the increase in telephone and email requests for individual appointments indicates satisfaction.
Program Success Examples
"My heart is bursting with gratitude for the genuine love and support we have received over the last three years.  Highly educated, carefully selected staff has not left one stone unturned in it's quest to meet the challenges of Neuro patients and their caregivers.  We look forward to the 2nd Wednesday of the month...this is our family meeting.  Wanda and Jennifer bring out the best in us..."  J Rall, February, 2014
Parkinson's patients, caregivers and healthcare professionals are eager for education and information on the latest research, movement therapy, speech therapy and other supportive services.  The Distinguished Speakers series provides CEU's, for healthcare professionals and information for patients.  Topics include the latest in stem cell research, music therapy, and brain stimulation among other topics.  These series also share information which is being collected from medical facilities around the world.
Budget $23,000
Category Medical Research, General/Other
Program Linked to Organizational Strategy Yes
Population Served People/Families of People with Health Conditions Other Health/Disability
Short Term Success
Patients, caregivers and healthcare professionals will be better educated and more knowledgeable of the latest in medical treatment for neurological diseases. The Distinguished Speakers events are held bi annually for feature internationally and local recognized Parkinson's experts.
Long Term Success
Neuro Challenge Foundation will be known internationally as a source of information on the diagnosis, treatment and progress of Parkinson's and other neurological disorders.
Program Success Monitoring
The program is considered a success if:
1.   participants continue to return for subsequent speaking engagements.
2.   the speakers series continues to be filled to capacity.
3.   the participant reported satisfaction on the written evaluation form.
Program Success Examples

“What a great event you arranged.  Full to the brim with the latest and best information on research about the disease and treatments that are working.  Important information presented in a mature yet entertaining way.  It is refreshing not to be talked down to, not to have a message or topic delivered in an over simplified fashion, sanitized of material  the audience might find upsetting.  The symposium offers us a
glimpse of their personalities outside of the structured environment of a
typical office visit.  But it also offers the attendee, who can plainly
observe the  mutual respect our doctors share with the other esteemed
presenters you have gathered,  reassurance that we have made the right
choice for our treatment.” – Brian Clark

This is the nation's largest patient, caregiver and health professional summit on Parkinson's Disease, drawing 600-plus attendees to Sarasota Memorial's Institute for Advanced Medicine annually.  CEU's are offered for nursing, OT, PT and speech therapists.  Drawing internationally known researchers, this symposium is sought after by the speakers.  It is the only venue of its kind which draws this size of audience. 
Budget $40,000
Category Health Care, General/Other Health Care Issues
Program Linked to Organizational Strategy Yes
Population Served People/Families of People with Health Conditions Other Health/Disability
Short Term Success

"Parkinson's Disease has affected my family on a private level too.  My father, a former USMC, was diagnosed with Parkinson's Disease when he was 57 years old.  The diagnosis was not readily accepted by any member of my family.  The methodologies used to diagnose his condition was compounded with various other scary prospects that left not just my father, but the rest of the family, absolutely sick at all "maybe's", "could be's" of the symptoms, treatments and other elements.  I attended the Parkinson's Symposium when it was held at the Ritz Carlton several years ago.  It was one the best things that I ever did for myself, and for my Dad.  I was amazed at the treatment options available, and I left believing that while Parkinson's is a serious diagnosis - there is certainly a lot out there to help slow the progression down, and that the diagnosis itself was not a "death sentence" which is what my father thought it originally was." - Catherine Swan, Healthcare provider

Long Term Success
"If you are living with Parkinson’s disease or other progressive neurological disorder, it can take more than medicine to stop it from taking over your life. Just getting dressed in the morning can be a difficult task. As time goes on, it’s easy for people to give in and give up.

Thanks to a collaborative effort between SMH, Sarasota Memorial Healthcare Foundation and the Neuro Challenge Foundation, area Parkinson patients have access to the latest research, treatments and complementary therapies developed to help keep their spirits and bodies up and moving.  Over the years, that support helped this annual symposium evolve into one of the nation’s largest annual Parkinson conferences – one we are proud to co-sponsor each year.  At this symposium, you will hear from world-renowned physicians, researchers and therapists who will share the latest treatments and strategies to slow this degenerative brain condition, which affects millions nationally and as many as 15,000 people in the Sarasota-Bradenton area."  David Verinder, COO, Sarasota Memorial Healthcare System.
Program Success Monitoring
Patient and family feedback, phone calls, letters and a written evaluation all indicate levels of success and satisfaction for this annual event.
Program Success Examples

“The 2012 Parkinsons’Symposium” was very well run and the parking went very smoothly, especially considering the amount of people.  You have so much information that you give at your meetings. I appreciate all the time and work that each of you put into the event.  The doctors are fabulous."  Helen Jodouin.

Parkinson's families often experience social isolation due to physical and other limitations, therefore NCF provides opportunities for PD families to meet, and enjoy company:  chorale groups, pot luck lunches, movie nights, caregivers support groups and all a part of monthly programs in Sarasota, North Port and Venice.
Budget $0
Category Health Care, General/Other
Program Linked to Organizational Strategy Yes
Population Served People/Families of People with Health Conditions Aging, Elderly, Senior Citizens
Short Term Success
PD families will say thank you and continue to refer friends.
Long Term Success
Parkinson's families will continue to attend, will refer other families and will express appreciation of opportunities for socialization.  Quality of life overall will improve, and those who have had PD for longer will mentor newly diagnosed families.
Program Success Monitoring
Anecdotal reports collected.
Program Success Examples
"We felt quite hopeless when we first heard the diagnosis of Parkinson's disease, tears rolled down my face.  By coming to the NCF programs, my wife and I have found so much hope, information and friends."
Description The key to our successful work with the Parkinson's family and community is our Care Advising services.  Offered free of charge, our Care Advisors meet individually with patients and/or family members to hear issues, recommend referral options, and provide a structured plan for the next steps which might be needed in the progression of the disease.  All services at no charge.
Budget $50,000
Category Health Care, General/Other Health Care Referrals
Program Linked to Organizational Strategy Yes
Population Served Aging, Elderly, Senior Citizens Aging, Elderly, Senior Citizens Aging, Elderly, Senior Citizens
Short Term Success If our clients refer us to others, if they come back to our Care Advisor with questions, if they return to our educational programs, we are confident they are receiving useful, valuable information.  We have achieved a high return rate.
Long Term Success An annual survey is sent to over 300 patients and comments about the service are requested.  100% of those responding to survey in past two years said they would recommend our service to others.  We work closely with those who have progressed and are in late stages to refer home care or assisted living, we have successful placements.  We work closely with those newly diagnosed to help through the anger and denial and direct them to educational supports.  Long term success is the family is able to have a more positive outlook on this disease.
Program Success Monitoring Annual survey, and patient feedback as well as attendance.
Program Success Examples In the past twelve months, we have seen 2212 families for Care Advising.  We consider that a huge success. 
Program Comments by Organization
The core programs of NCF are educational, support services, and resource referrals offered to individuals with Parkinson disease, their caregivers and medical professionals.  For the person with Parkinson's, they will be provided with a customized care plan by a trained Care Advisor. Plans can include home care, rehabilitation referrals, transportation services, small group care activities, medication information, financial assistance information, nutritional information, alternative living options for assisted living or skilled nursing facilities.  The educational programs are for both the medical community and the patients and their families, to provide the latest in research, therapeutic and medical information.
NCF works closely with the medical community in three counties.
Program Comments by Foundation
CEO/Executive Director
CEO/Executive Director Robyn Faucy
CEO Term Start Apr 2016
CEO/Executive Director Email

Robyn has held leadership roles with Big Brothers Big Sisters, American Cancer Society, Sylvan Learning Centers, and most recently the Education Foundation of Sarasota County.

Robyn has an impressive mix of academics, leadership and organizational leadership that includes fundraising, capacity-building, and synergistic partnership development. She is a member of the Sarasota Chamber of Commerce’s 2016 Leadership Sarasota program.
Former CEOs/Executive Directors
Judith Lynn Bell Jan 2012 - Apr 2016
Senior Staff
Carisa Campanella Care Coordinator
Sara Weinberg Office Administrator
Jennifer Williams Neuro Challenge Care Advisor - half time
Staff & Volunteer Statistics
Full Time Staff 4
Part Time Staff 0
Staff Retention Rate % 100
Professional Development Yes
Contractors 3
Volunteers 50
Management Reports to Board Yes
CEO/Executive Director Formal Evaluation Yes
Senior Management Formal Evaluation Yes
Non-Management Formal Evaluation Yes
Neuro Challenge Foundation has collaborations with numerous community and healthcare professional organizations.
External Assessments and Accreditations
Awards & Recognition
Frank G. Berlin Sr Small Business of the Year Healthcare/WellnessSarasota Chamber of Commerce2014
Risk Management Provisions
General Property Coverage
Government Licenses
Organization Licensed by the Government No
Fundraising Plan No
Communication Plan No
Strategic Plan Yes
Strategic Plan Years 3
Strategic Plan Adopted Mar 2013
Management Succession Plan No
Continuity of Operations Plan No
Nondiscrimination Policy No
Whistle Blower Policy Yes
Document Destruction Policy Yes
Directors and Officers Insurance Policy Yes
Policies and Procedures Yes
Management Comments by Organization
Neuro Challenge Foundation is a growing organization. The demand for its services is rapidly outgrowing the ability of volunteers alone.  With over 500 people attending the Symposium and serving over 1500 people with Parkinson's annually, the organization is challenged by the ability to respond quickly and professionally to these needs.  We need and additional Care Advisor as this population continues to grow and require more services and programs.
Management Comments by Foundation
Planning & Policies Comments by Organization Neuro Challenge Foundation's Board of Directors and Executive Director are currently developing a new strategic framework to guide the organization's expansion from 2017-2020.  
Planning & Policies Comments by Foundation
Multi-Media Comments by Organization Neuro Challenge Foundation is inspired daily by our Parkinson's community. We strive to empower our families with education, service and support as we fight this disease together.
Board Chair
Board Chair Kathie Musto
Company Affiliation Kindred Home Health
Board Term Sept 2016 to Sept 2017
Board Chair Email
Board Members
Board Members
Babette Bach Attorney at LawBach & Jacobs
Gana Gilkey Michael A. Gilkey, Inc.
Nola Hietbrink Community Volunteer
Kathie Musto R.N.Gentiva
Steve Oppen Retired
Stan Schuer retired
Jeffery Stevens CPAJRSBCS
Jackie Wides Community volunteer
Student serving on the board through Community Youth Development? No
Constituency Includes Client Representation Yes
Board Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 8
Hispanic/Latino 0
Native American/American Indian 0
Other 0 0
Board Gender
Male 3
Female 5
Unspecified 0
Board Term Lengths 3
Board Term Limits 2
Board Orientation Yes
Number of Full Board Meetings Annually 6
Board Meeting Attendance % 81
Board Self-Evaluation Yes
Written Board Selection Criteria No
Board Conflict of Interest Policy Yes
% of Board Making Monetary Contributions 100
% of Board Making In-Kind Contributions 100
Standing Committees
Board Governance
Program / Program Planning
Development / Fund Development / Fund Raising / Grant Writing / Major Gifts
Governance Comments by Organization
The Board of Directors is an active governing board.  The board consists of sophisticated representatives of the medical, media and professional communities with significant governance experience.  Board donations, individual and from foundations, totaled over $75,000 in 2015.
Governance Comments by Foundation
Fiscal Year Projections
Fiscal Year Begins 2016
Fiscal Year Ends 2016
Projected Revenue $437,000.00
Projected Expenses $480,966.00
Total Projected Revenue includes "in-kind" contributions/ donations
Endowment Value
Endowment Spending Policy N/A
Endowment Spending Policy %
Capital Campaign
In a Capital Campaign No
Campaign Purpose
Campaign Goal
Campaign Dates 0 to 0
Amount Raised To Date 0 as of 0
Anticipate Campaign within 5 years? Yes
Historical Financial Review
Expense Allocation
Fiscal Year201520142013
Program Expense$310,681$324,293$199,992
Administration Expense$97,967$22,790$14,262
Fundraising Expense$420$17,033$15,368
Payments to Affiliates$0$0$0
Total Revenue/Total Expenses1.110.881.27
Program Expense/Total Expenses76%89%87%
Fundraising Expense/Contributed Revenue0%6%6%
Assets and Liabilities
Fiscal Year201520142013
Total Assets$330,519$277,853$319,038
Current Assets$307,212$92,922$315,573
Long-Term Liabilities$0$0$0
Current Liabilities$4,325$18$3,629
Total Net Assets$326,194$277,835$315,409
Top Funding Sources
Fiscal Year201520142013
Top Funding Source & Dollar AmountProgram Service Revenue $293,501Contributions, gifts, grants $152,203Contributions, gifts, grants $162,595
Second Highest Funding Source & Dollar AmountContributions, gifts, grants $108,992Fundraising $139,190Fundraising $90,862
Third Highest Funding Source & Dollar AmountFoundation & Corporate Support $51,000Speaker Series $12,667Symposium $22,389
CEO/Executive Director Compensation $75,001 - $100,000
Co-CEO/Executive Director Compensation
Tax Credits No
Short Term Solvency
Fiscal Year201520142013
Current Ratio: Current Assets/Current Liabilities71.035162.3386.96
Long Term Solvency
Fiscal Year201520142013
Long-Term Liabilities/Total Assets0%0%0%
Financials Comments
Financial Comments by Organization
Neuro Challenge Foundation is in a strong financial position with financial procedures and GAAP in place.  The 2015 990 will be submitted by August of 2016.  The organizations first audit will be conducted for the 2016 fiscal year in 2017. 
Financial Comments by Foundation
2015 Audit & 990 to be completed in May.   Income & expense information for 2015 taken solely from the organization's unaudited compilations. Financial figures based on IRS Form 990. Individual contributions include foundation and corporate support, as reported on Form 990.
Nonprofit Neuro Challenge Foundation Inc
Address 5602 Marquesas Circle #201
Sarasota, FL 34233
Phone 941 926-6413