Neuro Challenge Foundation Inc
5602 Marquesas Circle #211
Sarasota FL 34233
Neuro Challenge Foundation, Inc for Parkinson's is dedicated to improving the quality of life of people with Parkinson's disease and their caregivers.
CEO/Executive Director Judith Lynn Bell
Board Chair Gale Rydel RN
Board Chair Company Affiliation Cigna
History and Background
Organization DBA
Neuro Challenge Foundation for Parkinson's
Tax Exempt Status Public Supported Charity
Supported Organization NeuroChallenge
Awarded a competitive grant from Community Foundation in the last 5 years?
Incorporation Year 2008
Financial Summary
Projected Revenue $386,850.00
Projected Expenses $386,850.00
Additional Documents
IRS Letter of Determination
IRS Tax Exempt Certificate
State Info
State Charitable Solicitations Permit Yes Jan 2016
State Registration Yes 0
Neuro Challenge Foundation for Parkinson's provides free care advising, services coordination, education and referrals to  patients and families living with Parkinson's.

 1.  Conducts annually North America's second largest Parkinson education event for patients and healthcare providers, the Annual Parkinson's Disease Symposium. Attendance is annually over 500 patients and healthcare professionals.

2.  Published the annual Living with Parkinsons Resource guide, an up-to-date resource providing guidance to effective treatment, management and support for those with Parkinson's disease.  Sent to over 20,000 households in the greater Sarasota area.

3.  Provide resource information through partnerships with Sarasota Memorial Healthcare, Southeastern Center on Parkinson Disease, SMH Healthfit, YMCA Sarasota County, Senior Friendship Centers, neurologists, occupational and physical therapists, and numerous health care related facilities and programs.  These partnerships allow us to help families meet the myriad of challenges associated with this disease; integrative medical services, including exercise and rehabilitation, education, emotional support and the latest pharmaceutical treatments.

4.  Answering questions and addressing concerns through over 2000 phone calls and visits from persons affected by Parkinsons Disease in 2014.

5.  Expansion into North Port, Venice and Bradenton through the provision of monthly Parkinsons Wellness Clubs; seminars which are educational and supportive.  Educators include nutritionists, doctors, and other healthcare practitioners.

Background Neuro Challenge Foundation, Inc. was established in 2008 to enhance the quality of life for people with Parkinson disease and their caregivers by providing high quality education and outreach programs to Parkinson's patients and the healthcare community.  When founded, the Board of Directors was struck by an important reality; our community is filled with talented and motivated people, hospitals and clinics are some of the best in the country.  Despite all of these excellent resources for Parkinson's patients, there was no central database or clearing house for coordinating services and information.  Until now.  The Foundation offers free and desperately needed advice and referrals and offers some of the most widely attended and distinguished education programs in the country.
Neuro Challenge Foundation is a growing organization, filling a unique niche in the nonprofit health marketplace.  The most pressing needs include:

  1. Our Care Partners, usually women, but all care partners are in desperate need of respite.  A fund for respite services would be a wonderful relief for these stressed care givers  $5000.00
  2.  A year's supply of office supplies, paper, stamps, ink, and file folders.  ($5000.00)
  3. Volunteers:  the staff of 3, works with numerous volunteers and can always use more as greeters, administrative support, writers, and golfers for the weekly outings.
  4. Support for educational programming:  includes 5 monthly wellness clubs and three annual symposia.  Underwriter for various support materials, AV, refreshments and educational materials handouts.
Statement from the CEO/Executive Director
Having witnessed families experiencing the impact of a diagnosis of Parkinsons, I am keenly aware of the frustrations brought on by financial, medical and emotional stresses.  Neuro Challenge Foundation can be a source of comfort, education and support.
Direct services have been provided through the Parkinson Wellnerss Programs to hundreds of residents of Sarasota and Manatee Counties in a calendar year.  Over 2000 calls for referrals and information were logged. These programs are dedicated to gathering, implementing and distributing the very best knowledge about PD.  Our Medical Director Dr. Dean P. Sutherland is a nationally renowned specialist in Parkinson's Disease.
Statement from the Board Chair/Board President
Neuro Challenge Foundation (NCF) is  dedicated to:
  • Maintaining the highest standards throughout the organization.
  • Operating as a unified entity - in a culture of service, respect and collaboration.
  • Helping Overcome Parkinson’s Everyday (HOPE)·       
  • Making a relentless effort to better understand, combat and ultimately conquer Parkinson’s disease.
Areas Served
Areas Served
FL- Charlotte
FL- Manatee
FL- Sarasota
Service Categories
Primary Org Type Health Care
Secondary Org Type Human Services
Description Parkinsons Wellness Clubs is a program which services both people with PD and their families, by partnering with professional services, health care providers and therapists for services they may need in their care.   NCF works to educate both people with PD and their loved ones so they can have a more informed dialogue with their physicians.  NCF also educates our professional care providers about Parkinson' disease treatments. Clubs are offered in Bradenton, Sarasota, Venice and North Port and offer monthly educational seminars to families.
Budget $33,000
Category Health Care, General/Other Health Care Issues
Program linked to organizational strategy? Yes
Population Served People/Families of People with Health Conditions Other Health/Disability
Short Term Success
The Care Advisors will see at least 100 patients per month for support and referral information.  Five monthly educational seminars are provided to an average of 30 people per seminar.
Long Term Success
Individuals with Parkinson's disease will remain in their homes longer, will show fewer PD symptoms and will report a higher quality of life on the Parkinson's Disease Questionnaire.  Participants complete an annual satisfaction survey and report 100% (!) satisfaction with these services.
How Program is Monitored
All services are evaluated for patient and professionals satisfaction through a survey.  The increase in attendance monthly, the increase in telephone and email requests for individual appointments indicates satisfaction.
Examples of Program Success
"My heart is bursting with gratitude for the genuine love and support we have received over the last three years.  Highly educated, carefully selected staff has not left one stone unturned in it's quest to meet the challenges of Neuro patients and their caregivers.  We look forward to the 2nd Wednesday of the month...this is our family meeting.  Wanda and Jennifer bring out the best in us..."  J Rall, February, 2014
Parkinson's patients, caregivers and healthcare professionals are eager for education and information on the latest research, movement therapy, speech therapy and other supportive services.  The Distinguished Speakers series provides CEU's, for healthcare professionals and information for patients.  Topics include the latest in stem cell research, music therapy, and brain stimulation among other topics.  These series also share information which is being collected from medical facilities around the world.
Budget $23,000
Category Medical Research, General/Other
Program linked to organizational strategy? Yes
Population Served People/Families of People with Health Conditions Other Health/Disability
Short Term Success
Patients, caregivers and healthcare professionals will be better educated and more knowledgeable of the latest in medical treatment for neurological diseases. The Distinguished Speakers events are held bi annually for feature internationally and local recognized Parkinson's experts.
Long Term Success
Neuro Challenge Foundation will be known internationally as a source of information on the diagnosis, treatment and progress of Parkinson's and other neurological disorders.
How Program is Monitored
The program is considered a success if:
1.   participants continue to return for subsequent speaking engagements.
2.   the speakers series continues to be filled to capacity.
3.   the participant reported satisfaction on the written evaluation form.
Examples of Program Success

“What a great event you arranged.  Full to the brim with the latest and best information on research about the disease and treatments that are working.  Important information presented in a mature yet entertaining way.  It is refreshing not to be talked down to, not to have a message or topic delivered in an over simplified fashion, sanitized of material  the audience might find upsetting.  The symposium offers us a
glimpse of their personalities outside of the structured environment of a
typical office visit.  But it also offers the attendee, who can plainly
observe the  mutual respect our doctors share with the other esteemed
presenters you have gathered,  reassurance that we have made the right
choice for our treatment.” – Brian Clark

This is the nation's largest patient, caregiver and health professional summit on Parkinson's Disease, drawing 600-plus attendees to Sarasota Memorial's Institute for Advanced Medicine annually.  CEU's are offered for nursing, OT, PT and speech therapists.  Drawing internationally known researchers, this symposium is sought after by the speakers.  It is the only venue of its kind which draws this size of audience. 
Budget $40,000
Category Health Care, General/Other Health Care Issues
Program linked to organizational strategy? Yes
Population Served People/Families of People with Health Conditions Other Health/Disability
Short Term Success

"Parkinson's Disease has affected my family on a private level too.  My father, a former USMC, was diagnosed with Parkinson's Disease when he was 57 years old.  The diagnosis was not readily accepted by any member of my family.  The methodologies used to diagnose his condition was compounded with various other scary prospects that left not just my father, but the rest of the family, absolutely sick at all "maybe's", "could be's" of the symptoms, treatments and other elements.  I attended the Parkinson's Symposium when it was held at the Ritz Carlton several years ago.  It was one the best things that I ever did for myself, and for my Dad.  I was amazed at the treatment options available, and I left believing that while Parkinson's is a serious diagnosis - there is certainly a lot out there to help slow the progression down, and that the diagnosis itself was not a "death sentence" which is what my father thought it originally was." - Catherine Swan, Healthcare provider

Long Term Success
"If you are living with Parkinson’s disease or other progressive neurological disorder, it can take more than medicine to stop it from taking over your life. Just getting dressed in the morning can be a difficult task. As time goes on, it’s easy for people to give in and give up.

Thanks to a collaborative effort between SMH, Sarasota Memorial Healthcare Foundation and the Neuro Challenge Foundation, area Parkinson patients have access to the latest research, treatments and complementary therapies developed to help keep their spirits and bodies up and moving.  Over the years, that support helped this annual symposium evolve into one of the nation’s largest annual Parkinson conferences – one we are proud to co-sponsor each year.  At this symposium, you will hear from world-renowned physicians, researchers and therapists who will share the latest treatments and strategies to slow this degenerative brain condition, which affects millions nationally and as many as 15,000 people in the Sarasota-Bradenton area."  David Verinder, COO, Sarasota Memorial Healthcare System.
How Program is Monitored
Patient and family feedback, phone calls, letters and a written evaluation all indicate levels of success and satisfaction for this annual event.
Examples of Program Success

“The 2012 Parkinsons’Symposium” was very well run and the parking went very smoothly, especially considering the amount of people.  You have so much information that you give at your meetings. I appreciate all the time and work that each of you put into the event.  The doctors are fabulous."  Helen Jodouin.

Parkinson's families often experience social isolation due to physical and other limitations, therefore NCF provides opportunities for PD families to meet, and enjoy company:  chorale groups, pot luck lunches, movie nights, caregivers support groups and all a part of monthly programs in Sarasota, North Port and Venice.
Budget $0
Category Health Care, General/Other
Program linked to organizational strategy? Yes
Population Served People/Families of People with Health Conditions Aging, Elderly, Senior Citizens
Short Term Success
PD families will say thank you and continue to refer friends.
Long Term Success
Parkinson's families will continue to attend, will refer other families and will express appreciation of opportunities for socialization.  Quality of life overall will improve, and those who have had PD for longer will mentor newly diagnosed families.
How Program is Monitored
Anecdotal reports collected.
Examples of Program Success
"We felt quite hopeless when we first heard the diagnosis of Parkinson's disease, tears rolled down my face.  By coming to the NCF programs, my wife and I have found so much hope, information and friends."
Description The key to our successful work with the Parkinson's family and community is our Care Advising services.  Offered free of charge, our Care Advisors meet individually with patients and/or family members to hear issues, recommend referral options, and provide a structured plan for the next steps which might be needed in the progression of the disease.  All services at no charge.
Budget $50,000
Category Health Care, General/Other Health Care Referrals
Program linked to organizational strategy? Yes
Population Served Aging, Elderly, Senior Citizens Aging, Elderly, Senior Citizens Aging, Elderly, Senior Citizens
Short Term Success If our clients refer us to others, if they come back to our Care Advisor with questions, if they return to our educational programs, we are confident they are receiving useful, valuable information.  We have achieved a high return rate.
Long Term Success An annual survey is sent to over 300 patients and comments about the service are requested.  100% of those responding to survey in past two years said they would recommend our service to others.  We work closely with those who have progressed and are in late stages to refer home care or assisted living, we have successful placements.  We work closely with those newly diagnosed to help through the anger and denial and direct them to educational supports.  Long term success is the family is able to have a more positive outlook on this disease.
How Program is Monitored Annual survey, and patient feedback as well as attendance.
Examples of Program Success In the past twelve months, we have seen 2212 families for Care Advising.  We consider that a huge success. 
Program Comments by Organization
The core programs of NCF are educational and resource referrals offered to individuals with Parkinson disease, their caregivers and medical professionals.  For the patient, they will be provided with a customized care plan by a trained Care Advisor located in the Neurologist's office..  Plans can include home care, rehabilitation referrals, transportation services, small group care activities, medication information, financial assistance information, nutritional information, alternative living options for assisted living or skilled nursing facilities.  The educational programs are for both the medical community and the patients and their families, to provide the latest in research, therapeutic and medical information.
NCF works closely with the Neurologists and the medical community in three counties.
CEO/Executive Director
Executive Director Judith Lynn Bell
CEO Term Start Jan 2012
Judith Bell has 33 years of experience in the fields of mental health, developmental disabilities, youth programming and domestic violence.   Judi has a well rounded health and human services, nonprofit background from programs delivery to administration. Most recently, Judith served as Vice President of Nonprofit Services at the Community Foundation and the head of the Nonprofit Resource Center, a well-recognized Executive Service Corps, management support organization, serving over 2000 individuals per year from over 450 nonprofits.   She is a Leadership Sarasota graduate with the class of 2010.

As a lifelong nonprofit professional who has served in a number of diverse leadership roles: as board chair, as executive director, as fundraiser and as a consultant, Judith is eager to grow the Neuro Challenge Foundation into more communities, provide services to those with other neurological challenges and establish the Foundation as a nationally recognized resource.
Full Time Staff 2
Part Time Staff 1
Volunteers 50
Contractors 3
Staff Retention Rate % 100
Professional Development Yes
Management Reports to Board Yes
Organization Plans
Fundraising Plan Yes
Communication Plan Yes
Strategic Plan Yes
Strategic Plan Years 2
Strategic Plan Adopted Mar 2013
Management Succession Plan No
Policies and Procedures Yes
Continuity of Operations Plan No
Senior Staff
Carisa Campanella Care Coordinator
Jennifer Williams Neuro Challenge Care Advisor - half time
Formal Evaluations
CEO Formal Evaluation Yes
Senior Management Formal Evaluation Yes
NonManagement Formal Evaluation Yes
2013-2016 Neuro Challenge Foundation has formal collaborations with Sarasota Memorial Hospital Healthcare, Southeastern Center for Parkinson Disease, University of South Florida College of Medicine, Shands Movement Disorder Clinic, Cleveland Clinic, Sarasota Magazine, Senior Friendship Centers, Artist Series Concerts, Key Chorale and numerous healthcare professional organizations.
Government Licenses
Is your organization licensed by the Government? No
Nondiscrimination Policy No
Whistle Blower Policy Yes
Document Destruction Policy Yes
Directors and Officers Insurance Policy
Leadership Comments by Organization
Neuro Challenge Foundation is a young and growing organization. The demand for its services is rapidly outgrowing the ability of volunteers alone.  With over 600 people attending the Symposium, the speakers series selling out every time and over 800 phone calls coming in annually, the organization is challenged by the ability to respond quickly and professionally to these needs.  We are in need of paid professional care counselors, and administrative support to track all of the information.  We will then have a greater ability to continue to offer the latest in research developments and lifestyle support for which our patients and families have come to rely upon us.
Board Chair
Board Chair Gale Rydel RN
Company Affiliation Cigna
Board Term Oct 2014 to Sept 2016
Board Members
Board Members
Mark Bisgeier CPARetired Accountant
Heidi Godman Heidi Godman Media, Inc.
Nola Hietbrink Community Volunteer
Kelley Lavin Gulfshore Media Group
Kathie Musto R.N.Gentiva
Gale Rydel R.N.CIGNA Healthcare
Stan Schuer retired
Jeffery Stevens CPAJRSBCS
Richard Stevens retired founder
Dr. Dean P Sutherland Southeastern Center for Parkinson Disease
Sharyn Weiner Community Volunteer
Jackie Wides Community volunteer
Richard Williams Flagship Auto Garage
Student serving on the board through Community Youth Development? No
Board Demographics - Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 13
Hispanic/Latino 0
Native American/American Indian 0
Other 0 0
Board Demographics - Gender
Male 6
Female 7
Unspecified 0
Board Term Lengths 2
Board Term Limits 2
Board Orientation Yes
Board Meeting Attendance % 69
Number of Full Board Meetings Annually 8
Board Self-Evaluation Yes
Written Board Selection Criteria Yes
Written Conflict of Interest Policy Yes
Percentage of Board Making Monetary Contributions 100
Percentage of Board Making In-Kind Contributions 100
Constituency Includes Client Representation Yes
Standing Committees
Board Governance
Governance Comments by Organization
The Board of Directors is an active governing board.  The board consists of sophisticated representatives of the medical, media and professional communities with significant governance experience.
Financial Info
Fiscal Year 2015
Projected Revenue $386,850.00
Projected Expenses $386,850.00
Spending Policy N/A
Historical Financials
Expense Allocation
Fiscal Year201320122011
Program Expense$199,992$95,340$99,589
Administration Expense$14,262$36,948$9,777
Fundraising Expense$15,368$32,769$9,935
Payments to Affiliates$0$0$0
Total Revenue/Total Expenses1.271.181.63
Program Expense/Total Expenses87%58%83%
Fundraising Expense/Contributed Revenue6%20%6%
Assets and Liabilities
Fiscal Year201320122011
Total Assets$319,038$256,953$224,312
Current Assets$315,573$252,130$218,942
Long-Term Liabilities$0$0$0
Current Liabilities$3,629$3,266$0
Total Net Assets$315,409$253,687$224,312
Top Funding Sources
Fiscal Year201320122011
Top Funding Source & Dollar AmountContributions, gifts, grants $162,595Contributions, gifts, grants $103,464Contributions, gifts, grants $101,956
Second Highest Funding Source & Dollar AmountFundraising $90,862Fundraising $59,859Fundraising $71,840
Third Highest Funding Source & Dollar AmountSymposium $22,389Symposium $18,169Symposium $18,502
CEO Compensation
Co-CEO Compensation
Tax Credits No
Short Term Solvency
Fiscal Year201320122011
Current Ratio: Current Assets/Current Liabilities86.9677.20--
Long Term Solvency
Fiscal Year201320122011
Long-Term Liabilities/Total Assets0%0%0%
Capital Campaign
Currently in a Capital Campaign? No
Capital Campaign Anticipated in Next 5 Years? Yes
Financials Comments
Financial Comments by Organization
Neuro Challenge Foundation is in a strong financial position with financial procedures and GAP in place.
Financial Comments by Foundation
Financial figures based on IRS Form 990. Individual contributions include foundation and corporate support, as reported on Form 990.
Nonprofit Neuro Challenge Foundation Inc
Address 5602 Marquesas Circle #211
Sarasota, FL 34233
Primary Phone 941 926-6413
CEO/Executive Director Judith Lynn Bell
Board Chair Gale Rydel RN
Board Chair Company Affiliation Cigna
Year of Incorporation 2008